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Hypothyroidism After gluten-free Diet-Any Improvement?


Cinderella64

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Cinderella64 Newbie

Hi!

It's me again, sorry for so many questions. I have been diagnosed with hypothyroidism few month ago, but I don't have Hashimoto disease.

I have read that gluten intolerance may cause hypothyroidism and high prolactin levels too. ( I have both of them). Is there a chance that after the body recovered of gluten the thyroid and the pituitary will start to work normal again? Any experiences?

Thank you!


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UKGail Rookie

Celiac definitely messes with your hormone systems somehow. There are quite well documented links between celiac disease and thyroid problems, and also reproductive hormones. I experimented with a gluten free diet about 6 or 7 years ago, and within a short time I felt really weird. The Doc found my thyroid was hyperactive. Instead of accepting a prescription for whatever hormone they give you to control a hyperactive thyroid, I accepted a prescription for antibiotics and reintroduced some gluten back into my diet. A few months later I tested as hypothyroid, and the thyroid then normalised after about 6 months while I stayed on a low gluten diet.

As I test negative for celiac, and at that time I didn't get stomach pains from eating gluten, I gradually moved back onto a normal diet. 4 years later, at the age of 45, my periods stopped and the hot flushes started with a vengeance. I was treated for ovarian cysts, and my periods restarted for another year, and then stopped again, again with ferocious flushes and night sweats. I was finally diagnosed as celiac 6 months later (after some blood tests confirmed me as post menopausal). Within a couple of days of going gluten free the sweats stopped and my periods restarted, and are now regular as ever.

Maybe this is all just coincidence, but it doesn't feel like it to me. My TSH levels are currently a bit erratic, sometimes within the normal threshold, and sometimes under it, so I may end up as hypoactive yet. I am hoping it will settle down, but it is too soon to say yet.

angel9165 Newbie

I have been on thyroid meds for about 15 years. Last year I was diagnosed a Celiac and have been on a gluten-free diet since. I had asked to be retested a few months back and they were able to reduce my dosage based on the results so I know it is improving for me. :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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