Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Days & Bad Days -- Is This Normal?


BabsV

Recommended Posts

BabsV Enthusiast

Just checking in. All the suggestions have been helpful. I started the probiotics and they have made a big difference in my gut gurgle. My more detailed food diary has helped pinpoint a couple other things that were causing discomfort (one was gluten-free rice cakes, RICE CAKES?!?!) Still having ups and downs but I'm taking it one day at a time -- actually had two really good days this past week and I went to the movies. Doesn't sound like much but 4 months ago I was basically housebound with an occasional trip to the grocery store that would knock me flat for at least a couple of days.

Tomorrow we leave for Athens -- the one in Greece! I'm still puny but this trip was planned and although the thought of travel rather terrifies me at the moment I decided I could either be puny at home or puny in Athens where it is warmer and sunnier. Not a hard decision. And getting from Poland to Greece isn't as tough as it would be if we were coming from the States. We're staying in an apartment so I'll be able to cook my own food and I'm taking a carry-on bag crammed full of snacks. Wish me luck...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Just checking in. All the suggestions have been helpful. I started the probiotics and they have made a big difference in my gut gurgle. My more detailed food diary has helped pinpoint a couple other things that were causing discomfort (one was gluten-free rice cakes, RICE CAKES?!?!) Still having ups and downs but I'm taking it one day at a time -- actually had two really good days this past week and I went to the movies. Doesn't sound like much but 4 months ago I was basically housebound with an occasional trip to the grocery store that would knock me flat for at least a couple of days.

Tomorrow we leave for Athens -- the one in Greece! I'm still puny but this trip was planned and although the thought of travel rather terrifies me at the moment I decided I could either be puny at home or puny in Athens where it is warmer and sunnier. Not a hard decision. And getting from Poland to Greece isn't as tough as it would be if we were coming from the States. We're staying in an apartment so I'll be able to cook my own food and I'm taking a carry-on bag crammed full of snacks. Wish me luck...

Yeah, I am a big believer in probiotics for gut repair. I was a HUGE burning mess from mouth to you know where...and they did the trick.

LUCK!! and have FUN!!! You may want to look at this guy's website about tips for traveling abroad ---and carry a few cards! Do you speak fluent Greek? If not, these may help.....

Open Original Shared Link

Please, let me know how your trip goes!! :) I am living vicariously through you for now, until I can travel again!! :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    2. - Known1 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

    3. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

    4. - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

    5. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,470
    • Most Online (within 30 mins)
      7,748

    Melinda pedraza
    Newest Member
    Melinda pedraza
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Theresa2407
      You are correct.  Same place.  I have used their site for so long and have it bookmarked.  Still living in past.  Our support group was affiliated with them.
    • Known1
      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
    • knitty kitty
      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
    • knitty kitty
      @Heatherisle, Newly diagnosed people often suffer from nutritional deficiencies.  Thiamine B1 stores can be depleted within a few weeks.  Thiamine deficiency can be localized in the gastrointestinal tract causing Gastrointestinal Beriberi.  It is under diagnosed by doctors!  Dysfunction of the gallbladder can be seen in Gastrointestinal Beriberi.   Have your daughter mention the possibility of Gastrointestinal Beriberi to her dietician!  Gastrointestinal Beriberi will be improved with high dose Thiamine administration, orally or by IV.  It's important to have thiamine deficiency corrected as quickly as possible to prevent life threatening health problems and risk permanent damage.   I had Gastrointestinal Beriberi but my doctors did not recognize it.  I had diarrhea.  I had my gallbladder removed (gallbladder attack).  Still had diarrhea.  My thiamine deficiency progressed to Wernickes Encephalopathy.  My doctors diagnosed me as "depressed".   I corrected the thiamine deficiency at home with over the counter Thiamine Hydrochloride tablets.  I'm very thankful I studied Nutrition.   See if the symptoms match:  Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Gastrointestinal Beriberi Presenting With Chronic Diarrhea: A Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC12794365/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.