Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Days & Bad Days -- Is This Normal?

BabsV

Recommended Posts

BabsV Enthusiast
BabsV
Posted
  • Author

Just checking in. All the suggestions have been helpful. I started the probiotics and they have made a big difference in my gut gurgle. My more detailed food diary has helped pinpoint a couple other things that were causing discomfort (one was gluten-free rice cakes, RICE CAKES?!?!) Still having ups and downs but I'm taking it one day at a time -- actually had two really good days this past week and I went to the movies. Doesn't sound like much but 4 months ago I was basically housebound with an occasional trip to the grocery store that would knock me flat for at least a couple of days.

Tomorrow we leave for Athens -- the one in Greece! I'm still puny but this trip was planned and although the thought of travel rather terrifies me at the moment I decided I could either be puny at home or puny in Athens where it is warmer and sunnier. Not a hard decision. And getting from Poland to Greece isn't as tough as it would be if we were coming from the States. We're staying in an apartment so I'll be able to cook my own food and I'm taking a carry-on bag crammed full of snacks. Wish me luck...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Just checking in. All the suggestions have been helpful. I started the probiotics and they have made a big difference in my gut gurgle. My more detailed food diary has helped pinpoint a couple other things that were causing discomfort (one was gluten-free rice cakes, RICE CAKES?!?!) Still having ups and downs but I'm taking it one day at a time -- actually had two really good days this past week and I went to the movies. Doesn't sound like much but 4 months ago I was basically housebound with an occasional trip to the grocery store that would knock me flat for at least a couple of days.

Tomorrow we leave for Athens -- the one in Greece! I'm still puny but this trip was planned and although the thought of travel rather terrifies me at the moment I decided I could either be puny at home or puny in Athens where it is warmer and sunnier. Not a hard decision. And getting from Poland to Greece isn't as tough as it would be if we were coming from the States. We're staying in an apartment so I'll be able to cook my own food and I'm taking a carry-on bag crammed full of snacks. Wish me luck...

Yeah, I am a big believer in probiotics for gut repair. I was a HUGE burning mess from mouth to you know where...and they did the trick.

LUCK!! and have FUN!!! You may want to look at this guy's website about tips for traveling abroad ---and carry a few cards! Do you speak fluent Greek? If not, these may help.....

Open Original Shared Link

Please, let me know how your trip goes!! :) I am living vicariously through you for now, until I can travel again!! :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      14

      Related issues

      Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value. Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus...
    2. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      2

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      I'm being SERIOUS here! Absolutely none of the styles of beer I use to drink are ever represented in the gluten-free market.
    3. Theresa2407
      - Theresa2407 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

      You are correct. Same place. I have used their site for so long and have it bookmarked. Still living in past. Our support group was affiliated with them.
    4. Known1
      - Known1 replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Books about celiac

      Hmm, I think you mean the Gluten Intolerance Group®? Their website is not gig.net. Maybe it was at one point? I am new to all of this, but did find their website here: https://gluten.org/ Kind Regards, Known1
    5. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten. Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8. Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification. Maize...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,472
    • Most Online (within 30 mins)
      7,748
    Eddie Graham
    Newest Member
    Eddie Graham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Related issues

      By Wheatwacked · Posted

      Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine  and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value.   Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus?  Atopic Dermatitis and dermatitis herpetiformis share symtoms and atopic dermatitis patients have higher risk of dermatitis herpetiformis.  dermatitis herpetiformis is a symptom of Celiac diagnosis. When I had the carotid artery stent, the hospital put down "wheat allergy" for the food service.  I guess allergy puts the fear of god in them more than the misunderstood Celiac Disease.  Whatever keeps me alive in this world.   
    • Theresa2407
      Books about celiac

      By Theresa2407 · Posted

      You are correct.  Same place.  I have used their site for so long and have it bookmarked.  Still living in past.  Our support group was affiliated with them.
    • Known1
      Books about celiac

      By Known1 · Posted

      Hmm, I think you mean the Gluten Intolerance Group®?  Their website is not gig.net.  Maybe it was at one point?  I am new to all of this, but did find their website here:  https://gluten.org/ Kind Regards, Known1
    • knitty kitty
      Barilla gluten free pasta

      By knitty kitty · Posted

      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      Barilla gluten free pasta

      By Scott Adams · Posted

      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.