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Child Back In Hospital


Mommy2GlutenFreeChild

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kareng Grand Master

OMG!

All I could think of while you were describing the nose tube thing is, why don't they use laughing gas like the children's dentist does? Its very safe, cheap, relaxes them. Especially at 5 am. Just let him keep sleeping. If there is a next time for any of us.

I do know several adults and kids where they can have a light case of pneumonia, maybe not realize it, & it suddenly gets worse.

Glad he is better!

I have seen some real cases of Von M's. Pneumonia or TB are not things they usually have or can fake. Though I saw one where the kid had a severe allergic asthma to mold & cats(?). The mom had cats sleep on his bed & exposed him to mold.


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mommida Enthusiast

OMG!! :huh:

The torture your son, husband and you have gone through! On top of the lose your mind worry, someone dared to say crap about your parenting!!!?

Sending you warm wishes for speedy healing! :) Big cyber ((HUGS))

I do know in some highly contagious cases they will run multiple tests to prove the dianoses and identify the exact baterium.

(When I had meningitus, they drew blood from all of my limbs to have a clean, seperate sample.)

sandsurfgirl Collaborator

Wow I'm just coming to this thread today and I couldn't stop reading your story. I was on the edge of my seat. I am so sorry you and your family went through all of that!

Whoever called Child Services on you is just a despicable human being. That is just sick to do that to a sick child and his suffering parents.

I hope everything gets better from here on out.

I homeschool my kids and I hadn't even thought of all the issues you deal with having a celiac kid in school. My son did have a kid mess with his food after a baseball game but we were standing right there and I told the kid off.

We use playdough at home but we wash like crazy afterwards. I need to look for gluten free playdough or find out how to make it so we don't have to be so careful with it.

I was a teacher before I was diagnosed and I can see after reading this thread how so many things could be an issue.

Di2011 Enthusiast

I know it seems like you have been victimised but the reality is that Child Services exists to keep kids safe. In your case it is obviously a mistake but PLEASE keep in mind that these people keep abused children from being further treated so. Like gluten intolerance, child abuse is an imperfect science.

luvs2eat Collaborator

Wow... I've just come upon this thread too and all I want to do is give you and your boy and your husband a huge hug. What an amazingly messed up ordeal you've been through... and you must be absolutely terrified. I sure would be. Your composure and willingness/need to follow up w/ his school, cafeteria, art room are so admirable to me, especially given all the other stuff you're worried about/seeking answers for.

I don't have any other advice aside from what others have said. I just wanted you to know that I'm pulling for you and your son and have the utmost admiration for you and your boy is lucky to have such a persistent and interested mom.

(((((huge hugs))))

Mommy2GlutenFreeChild Rookie

He turned 6 in October

What an ordeal! I know this will sound crazy but has he been tested for pertussis? It is going around this year, even among vaccinated folks. Both my kids got it last year very badly despite having been vaccinated.

Mommy2GlutenFreeChild Rookie

You are right and I am glad they are there to help people. I am not so mad at Children Services because by law if a report is made by someone against a person they are legally required to look into it. I have been more mad at the person who made the bogus report to begin with, but regardless of any of the CS stuff, I am far more mad at what my son has been through with all of it the last month. But things have calmed down. We had a nice Thanksgiving, he's better and he goes back to school on Monday. I appreciate everyone's thoughts. We are coming up on the 2 year "anniversarry" of his diganosis in Jan and it is just amazing to me how much we still have to learn about it.

I know it seems like you have been victimised but the reality is that Child Services exists to keep kids safe. In your case it is obviously a mistake but PLEASE keep in mind that these people keep abused children from being further treated so. Like gluten intolerance, child abuse is an imperfect science.


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    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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