Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Problems


CODACatWoman

Recommended Posts

CODACatWoman Newbie

Hi there...

This is my first time posting. I have recently been dx with gulten sensitivity as well as very high levels for Candidia. I have been pretty successful in avoiding gluten and barley. My ibs stuff is way better. My issue at this point is the weight loss. I have dropped quite a bit, I'm down to about 105 and hating it. Any one else going through this?

Cat


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



saintmaybe Collaborator

Hi there...

This is my first time posting. I have recently been dx with gulten sensitivity as well as very high levels for Candidia. I have been pretty successful in avoiding gluten and barley. My ibs stuff is way better. My issue at this point is the weight loss. I have dropped quite a bit, I'm down to about 105 and hating it. Any one else going through this?

Cat

I was rapidly losing weight, but made a concerted effort to address the issue since my doctor freaks out about it every time I'm in her office. If I've lost even a few pounds, I get a stern talking to.

What have you replaced your "gluten" diet with? You need to remember that you still need nutritionally dense foods off of gluten. I've found I had to reorder how I thought about food, and eat for nutrition instead of fullness. Also, many celiacs have a fat malabsorption problem, especially in the beginning of their healing. We still need fats in our diets to help us function, so focus on getting good fats from sources like fish (mercury free if possible!).

Also, I personally supplement with Boost, twice a day, fairly religiously. You may want to look into sublingual multivitamins, or other liquid nutrition, since tablet forms are ineffective at the beginning stages of healing.

In addition, for the Candida you should be eating at least one yogurt with live cultures a day, and be following what's called the Candida diet. Google it, there's tons of links out there. There are even people on this forum following it. It involves mostly restricting a lot of sugars from the diet until the yeast are under control, but believe me, I know from personal experience, you will feel a million times better once you have your infection under control.

Finally, you should check with your medical practitioner about getting on a six month to year long anti-fungal treatment of nystatin or diflucan. Yes, it does need to be that long. I had a very deeply ingrained systemic candida infection that is under treatment right now, and it is very difficult to get rid of. Also time consuming. It is my opinion that these infections are intractable without antifungals. I have done every herbal, every OTC, EVERYTHING. Save yourself time and heartache, please, and get the medication.

Hope this helps!

thleensd Enthusiast

It's a struggle for me to keep it on, but I've been successful - coconut, coconut milk, nuts, nut butters, avocado, lots of smoothies. I eat often. Even though I'm a fan of eating plenty of raw foods, I couldn't break them down for a good year, so lots of soups and stews worked well. Anything in a blender, also! I had to eat about 2x the recommended calories for my size/weight, but now I'm back to a fairly normal calorie count and maintaining weight. For a while, I was taking protein powder, which some people recommend, too.

If you have candida, yes, check out the diet... and stay away from sugars and white rice.

I have to go against the "boost" recommendation, here are the first few ingredients: Water, sugar, corn syrup solids, milk protein concentrate, vegetable oil (canola, high oleic sunflower, corn oils)... The LAST thing you need with candida is to chug down a bunch of sugar and corn syrup.

Add healthy oils to your diet, and keep at it. There may be some other sensitivity preventing you from gaining.

CODACatWoman Newbie

Hi there...

Thanks for the replies. I know my 1st post was general at best so I will try to go into a little more detail w/out boring you. My candida is 177 ...should be 100... I have made a conscious decision to focus on the gluten stuff. I had an endoscopy in March of 2010 and my upper gi is "smooth pink & healthy"...some doctors are not worth my time. After a lot of head,stomach & heart ache I was finally directed to an allergist who basically saved my life after taking 1/2 my blood.

I am lactose intolerant (have been most of my life so that was no big surprise). I cannot tolerate casein, whey, barley and oats. There are a myriad of fruits, veggies and nuts I have to avoid and that doesn't even include cocoa and vanilla.

He has given me a vegetable based protein powder that I admit I haven't tried yet :( In the meanwhile I eat chicken like it's going out of style; a ton of avocado; lots of poco de gallo with a ton of garlic. I am not a lover of fish...come to find out I have a sensitivity to white fish so that works ;)

The idea of counting calories never crossed my mind..I will try that approach. I have always been hypoglycemic and have had low blood pressure w/a sky high metabolism rate. I am finding that I am starting to come out the other side with this mess after several years of frustration and thinking I am a hypocondriact going crazy. I even started therapy a little over a year ago.

I'm gonna be 40 in a couple of months and have never really had any health issues until this. I know it is manageable but dang it is a royal pain. Now they (doctors) are thinking I may also have fibromyalsia. My father and sister have it so am not too terribly concerned ... its just another thing.

I just don't want to be a walking skeleton anymore.

Thank you so much for y'all's patience and replies ... it helps knowing I am not the only one.

Have a great weekend!

Cat

PS..sorry for typos am doing this on my phone.

Katrala Contributor

I'm not familiar with Candida, but I did lose a lot of weight (approx. 70 pounds) before being diagnosed with Celiac and it's taken me about 6 months to put on 10 pounds.

This may just be my body, but I found it helpful to eat dinner (or a snack) later than I was used to, just before going to bed.

Nuts, nut butters, etc. are also really good for helping to gain some weight.

rainer83 Newbie

I have the same issue. I used to be a very overweight child, up until I was about 19, then for 5 years I was about average, then gained 50lbs again, then lost it again. As I was losing it, I noticed I was having trouble keeping weight on. I had stopped going to the gym at this point since my membership ran out, but was still eating relatively healthy, but I was never gaining weight despite lack of physical activity. I've been the same weight for the last 4 years, gaining maybe 5lbs here and there, then losing it again. More recently, I've gone quite a few months since I've last really exercised, and only noticed a slight change of maybe 5lbs of weight gain in maybe 5 months.

Some things I did to even gain 5lbs was eat late at night before bed, even changed my workout routine to gain muscle mass instead of more cardio, and vegan protein shakes in the morning.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,015
    • Most Online (within 30 mins)
      7,748

    CravingADonut
    Newest Member
    CravingADonut
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.