Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worth Looking Into Celiac?


pinkcloud

Recommended Posts

pinkcloud Rookie

I am a 32 year old female. I've wondered if i could possible have Celiac for at least the last 15 years. i started noticing in college, where i'd have horrible episodes of cramping, very strong abdominal pain, alternating with episodes of running to the bathroom with soft, foamy, mucus-filled stools. i've had gurgling sounds in my tummy all the time and it seemd as though i was physically unable to pass the air/gas that was trapped there. i've noticed it was worse after eating bread/beer, but it was college and my options were limited. i did see a doctor, who diagnosed me with IBS and told me to take anti-anxiety meds. of course they didn't help. he then advised to stay away from bread if i thought that was a problem...

years later i had a similar experience with the military docs. i had an endoscopy, but not a colonoscopy. nothing besides IBS was found.

last April, in desperation, my mom made me get a "food sensitivities' test (the (Company Name Removed - They Spammed This Forum and are Banned)). it turned out i was sensitive to a lot of things. gluten was a 'mild' sensitivity.

so here i am now. still in pain, still bloated, tired, with itchy skin and severe sinus issues, still running to the bathroom (three times a day max, usually just one, and on some days not at all (well, normal, not the 'urgent' kind)--so not terribly often). i have an endocrynologist that i see to watch the small cysts on my thyroid, who ran blood tests for thyroid stuff and also auto-immune ones, and all were fine. does it mean it can't possible be Celiac? with the negative auto-immune test, and the 'mild' sensitivity to gluten, that is. or should i pursue further?

thanks and sorry this is so long!@


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nora-n Rookie

Could be celiac or gluten sensitivity.

what "auto-immunity"-tests did your ob/gyn run?

The food intolerance test, was it IgG antibodies?

The normal tests for celiac are:

tissue transglutaminase IgA

Endomysium Ab

deaminated gliadin IgA

total IgA to check if IgA type tests are valid

Also, b-12 and vitamin D and ferritin tend to be lowish with celiac

pinkcloud Rookie

Could be celiac or gluten sensitivity.

what "auto-immunity"-tests did your ob/gyn run?

The food intolerance test, was it IgG antibodies?

The normal tests for celiac are:

tissue transglutaminase IgA

Endomysium Ab

deaminated gliadin IgA

total IgA to check if IgA type tests are valid

Also, b-12 and vitamin D and ferritin tend to be lowish with celiac

let's see--the doctor did an Antinuclear Antibodies, IFA test which was netagive

my Vit D was low

I'think' the (Company Name Removed - They Spammed This Forum and are Banned) is the IgG test, but i am no scientist and therefore am confused.

I think i should also add that I have Raynaud's syndrome, which i think is an auto-immune condition. it was discovered when i went in for a thyroid check because i'm constantly cold, my fingers turn blue, i get muscle cramps and aches and pains like crazy, and i have freakishly dry and itchy skin.

nora-n Rookie

You lack celiac tests, and the newest one is the daminated gliadin test, make sure you get at least that one

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,573
    • Most Online (within 30 mins)
      7,748

    Dawn Nauman
    Newest Member
    Dawn Nauman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.