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An Interesting Read

Glutinator Girl

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Glutinator Girl Rookie
Glutinator Girl
Posted

I found this on another forum, it is a long read but interesting.

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pricklypear1971 Community Regular
pricklypear1971
Posted

Very interesting, indeed.

I've also been considering the "gut health" issue, and have been considering supplements to address that issue specifically.

That said, I am someone who HATES taking pills/supplements so that's saying a lot.

glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

I also am someone who hates pills. Anyone know what kind of allergy test she had done? My insurance runs out in about 6 days and would love to have a panel ran. Also- in the us- will they test for vitamin deficiencies if you ask? I know vitamin D is low for me, but I'd love to know what else

We really need better Drs in my area.....

Glutinator Girl Rookie
Glutinator Girl
Posted
  • Author

I'm not a pill person either but I'm going through the Helobactor Pylori treatment uggh I will be glad when thats finished!

I think it was very fortunate that the person found such a great doctor, I know myself when my digestive system is happy so is the rest of my body!

domesticactivist Collaborator
domesticactivist
Posted

Interesting. While it takes a different approach, (diet to restore gut health rather than just supplementation or elimination of IgG indicated foods) the basic concept of gut inflammation causing poor absorption, food reactions, and mental health issues is all covered in the GAPS book as well.

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    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      Am I nuts?

      By trents · Posted

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
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      Am I nuts?

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      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
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