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wagongirl

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wagongirl Newbie

Hi, all...I will keep this short. Just had an endoscopy for upper right quadrant & belly button region pain. It came back positive for Celiac. My symptoms are pretty mild compared to most people, I think...bloating, moodiness, anxiety, occasional hives. I'm a 38-year-old active & weight-appropriate female. This pain/pinching feeling started about three weeks ago and it's not cramping...it's more like something is scratching the inside of my body, sort of a "niggling" feeling. It comes and goes and is not severe. I'm going in for blood work & a CT scan this week. My questions are:

1. What additional tests (if any) should I make sure the gastroenterologist orders? I've seen some people mentioning the camera pill. I'm extremely nervous about having some type of malignancy, so that's why I want to make sure I'm proactive.

2. I plan on going gluten-free as soon as my blood tests are done tomorrow. Does anyone have a good recommendation for a gluten-free cookbook? I'm an omnivore.

3. Anything else I should be aware of aside from gluten-free prep for the CT?

Thanks for your help in advance!! I've been lurking this site since the procedure and it's encouraging to find that so many are having a positive gluten-free experience!


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Jestgar Rising Star

Endoscopy is pretty much it for testing for celiac disease.

I'm sure others will chime in with books, but in the mean time, try searching the forum - you'll find some awesome recipes. :)

And welcome to the group!

Celtic Queen Explorer

I can't recommend a particular cookbook, but there are a ton of blogs with recipes on-line. Do a search for Gluten Free Goddess' blog. She's a chef and has posted tons of yummy looking recipes on line. There's a link here on the board someone put up recently about their favorite gluten-free blogs. Most of the gluten free blogs have lots of recipes. I still use my old cookbooks too - just avoiding those recipes that have gluten items or making substitutions as needed (like gluten-free tamari soy sauce instead of regular). Just be careful when you're baking. Most gluten-free flours don't react the same as regular flour. So if you're going to bake, you'll probably want a recipe that's been created gluten-free, instead of trying to substitute gluten-free flour in a regular baking recipe.

Cathey Apprentice

Thank you Celtic I googled and found it,now in my favorites. I too am a newbie (blood and scope confirmed). I did order 2 Gluten Free Bread Machine Books. I'm throwing out the old machine concerned w/ cross contamination. Trial and error I'm not happy w/ the bread I'm buying. I did find Udi's brand @ Trader Joe's and not bad. I have thrown out 3 loaves or bread, 1 pkg of English Muffins,1 pkg. buns and 1 pkg. of muffins.

wagongirl Newbie

I can't recommend a particular cookbook, but there are a ton of blogs with recipes on-line. Do a search for Gluten Free Goddess' blog. She's a chef and has posted tons of yummy looking recipes on line. There's a link here on the board someone put up recently about their favorite gluten-free blogs. Most of the gluten free blogs have lots of recipes. I still use my old cookbooks too - just avoiding those recipes that have gluten items or making substitutions as needed (like gluten-free tamari soy sauce instead of regular). Just be careful when you're baking. Most gluten-free flours don't react the same as regular flour. So if you're going to bake, you'll probably want a recipe that's been created gluten-free, instead of trying to substitute gluten-free flour in a regular baking recipe.

Thank you so much!! I took the advice of another poster and didn't run out and buy a bunch of gluten-free stuff....I'm sticking with proteins, fruit, veggies, rice, salad, corn chex for now and will gradually add in some gluten-free items. Today is day 3 and I feel good....the main issue is the gnawing pain in my mid-abdomen. It seems to be getting worse instead of better =(...it's actually causing me a lot of worry!

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    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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