Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elimination Diet

Fairy Dancer

By Fairy Dancer
in Coping with Celiac Disease

Recommended Posts

Fairy Dancer Contributor
Fairy Dancer
Posted

Hi, despite taking gluten and grains out I am still getting stomach problems. I can no longer tolerate either the fatigue (or rather malaise) and running to the toilet 10 times plus a day. I am desperate and want to try a complete elimination diet but I am having trouble finding a clear list of allowed foods during the elimination phase. Can some one help me by linking me to an allowed foods list?

I have tried google and I get lots of pages saying go via a dietician (no can afford and the NHS are useless and keep putting my issues down to IBS without running sufficient tests) and basic instructions but no list of ALLOWED FOODS and foods to avoid.

If I know what I can and can't eat I can at least try it myself. The other option is to do a complete fast and then try adding one food at a time if I can't find any safe foods to eat until I do a challenge.

I really just want a break from feeling ill and having to run to the bathroom. There is no time for any kind of life between those two symptoms. Even if I do manage to feel well enough to get up (and I'm back to having to stay in bed again due to feeling bad) to get anything done I spend so much time going to the loo that I can't get anything accomplished.

On the bright side Im losing weight at around 5lbs a week without trying so there is a silver lining as I am over weight anyway and could do with being thinner..ha!

Help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Mine was really simple because I was testing for allergies. Lamb, rice, and lettuce.

Right now I'm starting into the GAPS diet to see if it helps my thyroid autoimmunity. If you have really bad diarrhea you basically make soup and eat just broth and cooked vegetables at first.

Open Original Shared Link

domesticactivist Collaborator
domesticactivist
Posted

We have been using GAPS for 8 months. I have lots of posts about it on the blog on the site linked from my profile.

CR5442 Contributor
CR5442
Posted

Hi Fairy Dancer, boy I totally agree with you on the NHS. I kind of gave up when they sent me to a dietician who basically just looked at what I was eating and said Ummm, yes, and do you have this book (the celiac.org) book... which you aren't allowed until you are actually diagnosed positively with Celiac. She said 'no, itching isn't normal' but didn't have anything to add to that, any solutions, nothing! At that point I knew I just needed to carry on figuring things out for myself as I get blinding migraines on gluten and as a mum on my own with two tiny children couldn't risk being debilitated by a gluten challenge.

Have you tried eliminating the following: dairy (including butter), rice, soya (including milk), and solanacae family (potato, tomato, aubergine, pepper, chilli?). Try taking all that and any processed gluten-free foods you are eating out of your diet. Perhaps also try taking some L-glutamine. The combination of all this actually completely settled my tummy down... I too was running far too often to the loo after being quite a while on the diet. Are you taking a good probiotic too? A great one that I take, which is the only dried one I know from experience that works is Bio-Kult by Proteinex (sp?).

Try this for a couple of weeks and see if things start to get under control a bit on the loo front. If not then you may have allergies apart from these. I was literally living on The Black Farmer sausages (gluten-free) with a little potato starch in and peas for about a week until I was brave enough to introduce anything else! Also, take only multivit, magnesium and calcium that you know for sure are gluten-free. That will take out any possibility that you are being glutened by those.

Hope that you get to the bottom of things. I too was loosing 5lbs a week at the beginning. Now everything has stabilised and I'm even putting back on a little weight.

Hugsx

CR5442 Contributor
CR5442
Posted

Sorry, I would also cut out any citric/acidic type foods (as they are when they start in your system), so all the citric fruits and any vinegars, including cider vinegar.

Fairy Dancer Contributor
Fairy Dancer
Posted
  • Author

I do know that my diarrhoea and feeling ill get worse when I eat gluten or bread and some cereals so I took those out first.

There was some improvement but not enough.

Then I found it was getting worse with corn so I took all grains out at that point.

Things seemed to get a bit better and I thought I had cracked it. Then things started to slide backwards again so I took dairy out. No change. I also went onto a whole foods diet and stopped eating processed foods except for the occasional bit of chocolate ice cream and later on when I took dairy out a gluten free, dairy free, nut free, egg free dark chocolate bar. Other than that I eat no processed at all.

The more fruits and veg I eat the worse it seems to get...so now I'm becoming afraid of eating them. Actually as I don't know what exactly is upsetting me I am becoming afraid to eat anything. I am hungry but don't want to eat because I don't know what will make me feel worse and upset my gut and what will not. I spend my time either feeling so unwell I can't get out of bed or running to the toilet. Its ludicrous and I feel powerless to do anything about it because I don't know what is causing it!

CR5442 Contributor
CR5442
Posted

I do know that my diarrhoea and feeling ill get worse when I eat gluten or bread and some cereals so I took those out first.

There was some improvement but not enough.

Then I found it was getting worse with corn so I took all grains out at that point.

Things seemed to get a bit better and I thought I had cracked it. Then things started to slide backwards again so I took dairy out. No change. I also went onto a whole foods diet and stopped eating processed foods except for the occasional bit of chocolate ice cream and later on when I took dairy out a gluten free, dairy free, nut free, egg free dark chocolate bar. Other than that I eat no processed at all.

The more fruits and veg I eat the worse it seems to get...so now I'm becoming afraid of eating them. Actually as I don't know what exactly is upsetting me I am becoming afraid to eat anything. I am hungry but don't want to eat because I don't know what will make me feel worse and upset my gut and what will not. I spend my time either feeling so unwell I can't get out of bed or running to the toilet. Its ludicrous and I feel powerless to do anything about it because I don't know what is causing it!

Oh dear, I really sympathise. It might be an idea to get a pulse test done. This is different from allergy testing. It shows intolerances rather than allergy. I had mine done by my acupuncturist. She found out that I shouldn't be eating coconut - which was one that I was very surprised about. I took along small bits of food like butter, honey, linseed, etc. wrapped in one layer of clingfilm, put it against my face covered by my hand whilst she took pulses. You might find a local acupuncturist who can do the same... I would check before going however. There will be other complementary medicine practitioners who may do it too. It saved me a lot of time and grief of trying to get the NHS to take me seriously, particularly as i knew it was my gut letting things leak through to my blood that was irritating me rather than an actual allergy. If you need help finding one let me know.

I stopped eating a lot of things like you because i was so fed up of feeling bad. Now I have added a lot back in. Still struggling because my liver is very congested still, but am slowly sorting that out with herbs.

Let me know how you get on. One thing that you could do in the meantime is perhaps eat just one or two veggies per day with some plain white boiled rice and a small amount of organic chicken. Boring I know but as you go on and stabilise you should be able to add one thing back in at a time.

What supplements are you taking?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celtic Queen Explorer
Celtic Queen
Posted

Open Original Shared Link

This link might help.

Celtic Queen Explorer
Celtic Queen
Posted

Okay, for some reason that didn't work. Try this:

Open Original Shared Link

CR5442 Contributor
CR5442
Posted

This site might also be useful for other possible sensitivities. Lots of useful info. Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748
    bobadigilatis
    Newest Member
    bobadigilatis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.