Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh! Bad Day...


jswog

Recommended Posts

jswog Contributor

OK, so I'm a server and, therefore, HATE Sundays with a passion. No offence to anyone here, but the 'church crowd' is HORRIBLE! They are needy, cheep, and awful tippers in general. I have found the same to be true everywhere I have worked, several different states, different restaurants, over the course of about 18 years, but this town is WAY worse than any other place I've worked with all tipping in general (and especially on Sundays). Anyway, all of that to say that I had a pretty rough day at work, then at the end of my shift, my manager told me that a guest had 'complained' about what I believe to be DH on my face and that I have to get a doctor's note to say that I'm not contageous before I can return to work. I have been to a dermatologist, but he took the damn biopsy a full SIX INCHES from where it should have been taken. We have spent so much money on doctors in the last six months and now they are trying to make us spend more for a job where I'm some days lucky to take home $30 for the ENTIRE DAY!!!

And then, to top it off, I got home, tired, hungry, and frusterated, ate dinner and was about to go to bed when I suddenly had a huge rush of acid reflux and then started vomiting a few minutes later. Now (because I've not been as religious as I know I should be about my food journal) I'm trying to back track everything I've eaten the last few days. I know I haven't had anything that my husband and I haven't made from scratch here at home and only one thing that I haven't had regularly, but that in no way shape or form should have given me any problems. So IDK if the stress of everything tonight set my system off, if I accidently could have gotten CC'd at work at some point over the last few days (which is ALWAYS a potential problem), or if I've suddenly developed other food sensetivities.

Now I just don't know what to do!

Jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

So, so sorry to hear about your rotten day...and the rotten job. Since you're a server, I'm wondering if flour in the air or touching food that contains gluten (and then touching something that you put in your own mouth) might be causing your symptoms. Since you believe you have DH, have you tried avoiding iodine? For many of us, iodine is the real trigger behind DH. It appears to take BOTH gluten and iodine to cause the rash....so if you haven't already eliminated iodine, you might consider doing so.

If you've had your rash for more than a week, your manager should not be requiring you to get a doctor's note, because only measles and chicken pox would indicate contagious rashes....and you've had the rash for a while. Instead, he should have stuck up for you by telling them that you have a non-contagious skin disorder. You manager sounds both ignorant and lacking in compassion...

Here's hoping that tomorrow is a better day for you...

jswog Contributor

So, so sorry to hear about your rotten day...and the rotten job. Since you're a server, I'm wondering if flour in the air or touching food that contains gluten (and then touching something that you put in your own mouth) might be causing your symptoms. Since you believe you have DH, have you tried avoiding iodine? For many of us, iodine is the real trigger behind DH. It appears to take BOTH gluten and iodine to cause the rash....so if you haven't already eliminated iodine, you might consider doing so.

If you've had your rash for more than a week, your manager should not be requiring you to get a doctor's note, because only measles and chicken pox would indicate contagious rashes....and you've had the rash for a while. Instead, he should have stuck up for you by telling them that you have a non-contagious skin disorder. You manager sounds both ignorant and lacking in compassion...

Here's hoping that tomorrow is a better day for you...

I'm honestly a little confused as to how to go about a low iodine diet. I really don't eat much salt, but beyond that, I'm not sure where iodine hides.

And, yes, every day at work is potential cross-contamination everywhere. I do (and always have) washed my hands VERY frequently, but there could always be gottchas flying around the kitchen. Job prospects are few and far between in this town, so IDK what to do about that. We cannot afford for me to not work, but I don't want work to keep making me sick either.

The rash (if you could call it that, it's not exactly a rash, but most definately not acne either) has been going on for much longer than a week. And this manager is definately ignorant and lacking in compassion. There have been several 'incidents' involving her lately and I'd be surprised if they don't end up with a law suit.

So I'm stuck in a town full of ignorant people and totally incompetant medical (non)professionals who continually fail me.

Jen

mushroom Proficient

If this has been an ongoing rash, and your doctor has not required you to stay off work because of your rash (i.e., not contagious); with your manager NOW requiring a doctor's certificate that your rash is not contagious I think I would be asking my manager to pay for the certificate :P You have been doing everything you can to get diagnosis, so let your manager do better :o;

Di2011 Enthusiast

I'm not religous, many Australians don't tend to be very religous, and I think that most who are would be quite understanding of 'difference'. I think I'm pretty lucky to live and work where I do...

however...

Two years ago I resigned from my $90000 a year job because I simply couldn't do it. I was a mess at home and at work. Initially I worked in a kitchen nearby and later took on cleaning which meant I could stretch the savings for a while. About a year later the savings ran out so I took a job working in a bakery (turns out I'm a great sales person even for product I didn't particularly fancy). Well now I'm still itchy-recovering but finding it hard to consider myself worthy of a decent paying no-food job. I'm working really hard at getting over my confidence issues and trying to get through a few courses to make me fell 'worthy'.

So I am still working in a kitchen feeding school kids for $200 a week and barely covering my&sons expenses

however..

I've been off the gluten (with lots of mistakes and still having problems with bathroom products) for a few months now. And I feel good. Better than I have for years. I even know that how I feel now is not the best I might feel.

I know:

I am lucky that there is lots of work options where I live.

Other people have the energy I am now beginning feel but aren't as pro-active/work disciplined as I am.

I *always* considered myself as very *introvert* but I now think it was some mutant depression in disguise - a massive impediment to my hopeless attempts at job-hunting.

I will never take gluten to get a "diagnosis" (exception being the (presumed) DH might allow me one(repeat ONE)-off diagnosis at some time - when I can afford it@!!)

Last week I had a few people look at me like I was a leper. I know exactly how you feel. I wear head to toe when/wherever I can but at work my hands can't be hidden. When I get a bad flare up I wear (powder free) gloves. My boss (who I have know for years and has seen my disintegration - phew) is very accomodating. I asked to be spared bread/toast duties though I said I would do it if required (gloves on) and he was accommodating.

Given that I've been working in that kitchen/dining room for off&on 2 years my co-workers are very aware that I am obviously not contagious. Don't be shy. Tell them what you have. Show them - your boss, coworkers (even tonight I showed a couple of our regulars my arms, they were so concerned for me to be well/better that I almost cried) etc. The staff need to know how to deal with the complaints/concerns of other customers AND they need to learn about allergy related problesm. Be brave and bold. I am the new advocate for allergy customers and they need us!!!!!

ravenwoodglass Mentor

I'm honestly a little confused as to how to go about a low iodine diet. I really don't eat much salt, but beyond that, I'm not sure where iodine hides.

Iodine is not required for a DH outbreak but it keeps the antibodies active in the skin and if the antibodies are still present even the tiniest amount of gluten will cause an outbreak. I simply dropped iodized salt and made sure my vitamins didn't have iodine in them and that was enough for me.

One problem I had with the facial lesions was that I kept using different makeups to cover the lesions. That only made things worse as I wasn't thinking to check my makeup and other toiletries for gluten at that time.

You might want to try dropping the iodized salt, you can buy uniodized as it is used in pickling and check your topicals and see if that is enough to heal before you go through the hassle of dropping hordes of food out of your diet that you may not need to. After you have been outbreak free for a while do add iodine back in as it is a vital nutrient.

jswog Contributor

Iodine is not required for a DH outbreak but it keeps the antibodies active in the skin and if the antibodies are still present even the tiniest amount of gluten will cause an outbreak. I simply dropped iodized salt and made sure my vitamins didn't have iodine in them and that was enough for me.

One problem I had with the facial lesions was that I kept using different makeups to cover the lesions. That only made things worse as I wasn't thinking to check my makeup and other toiletries for gluten at that time.

You might want to try dropping the iodized salt, you can buy uniodized as it is used in pickling and check your topicals and see if that is enough to heal before you go through the hassle of dropping hordes of food out of your diet that you may not need to. After you have been outbreak free for a while do add iodine back in as it is a vital nutrient.

Thank you, Raven! I have been trying to do just that (no iodized salt), but I think I often don't realize some things have salt in them. I guess that means I have to be more diligent about watching for that now. As for my facial products, I've generally been skipping makeup at work right now so as to take no chances on it irritating this crap and I know the cleansers I've been using are safe (not so sure about the makeup, having a difficult time finding that information).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jswog Contributor

Given that I've been working in that kitchen/dining room for off&on 2 years my co-workers are very aware that I am obviously not contagious. Don't be shy. Tell them what you have. Show them - your boss, coworkers (even tonight I showed a couple of our regulars my arms, they were so concerned for me to be well/better that I almost cried) etc. The staff need to know how to deal with the complaints/concerns of other customers AND they need to learn about allergy related problesm. Be brave and bold. I am the new advocate for allergy customers and they need us!!!!!

My co-workes (and I THOUGHT managers) know what's going on and *they* are very understanding. This guest didn't ask me anything, but instead went and found my manager to complain. And with this manager, she always throws the employee under the bus in situations like that. I've talked to her multiple times about what's going on, but last night she acted like I'd never told her before.

sariesue Explorer

My co-workes (and I THOUGHT managers) know what's going on and *they* are very understanding. This guest didn't ask me anything, but instead went and found my manager to complain. And with this manager, she always throws the employee under the bus in situations like that. I've talked to her multiple times about what's going on, but last night she acted like I'd never told her before.

If a customer complained about the possibility of you being contagious, your employer being a restaurant(where you work with food and the public) has every right to require a note saying that the rash isn't contagious. They need to have legal proof that you really aren't contagious. I know at the restaurant where I work they can demand a note if they think you are sick, its in the handbook. I learned this when I had poison ivy and they wouldn't allow me to work until I got a note saying I wasn't contagious, Even though EVERY dr I have ever seen for poison ivy has assured me that the rash is not contagious, they need it in writing from a dr for them to be covered legally. Personally, I would just go to a walk in clinic or your mdoc and have them write you a note, they can call it contact dermatitis and you can move on.

jswog Contributor

As for my facial products, I've generally been skipping makeup at work right now so as to take no chances on it irritating this crap and I know the cleansers I've been using are safe (not so sure about the makeup, having a difficult time finding that information).

Well, wasn't this article timely?

Open Original Shared Link

Jen

heidi g. Contributor

if your gut isn't fully healed it can cause heavy foods to give you indigestion such as meats (chicken, steak, ground beef) potatoes, etc. also stress and anxiety can definitly cause you to get indigestion. indigestion can give you acid reflux. but id relate it to stress because i always get a nervous stomach when im stressed and i get indigestion and acid reflux.

rosetapper23 Explorer

In addition to iodized salt, iodine can be found in some dairy products (depends on where you live in the U.S.), especially soft cheeses, seafood, and asparagus. Make sure that you avoid any salty foods (french fries, chips, crackers, nuts, etc.) and foods with carageenan (which comes from seaweed).

Believe me--if you handle the iodine problem, the DH will improve. Before I ever knew I had celiac (at age 47), I took care of the DH problem at age 34 when I discovered that eliminating iodine caused the hideous rash to go away. I was able to keep my skin clear all the way until my thyroid failed (yeah, probably because I eliminated iodine for so long--but I didn't know about the gluten). By that time, I knew I had celiac and was off gluten, but the iodine being in my system 24/7 causes the rash to come back at the tiniest cross-contamination from gluten.

My DH was mainly on my face, but I also got it on one hand and one foot. I know how disheartening it is to go out in public and have people wonder what's wrong with your skin. I sure hope you're able to get some relief soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748

    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.