Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Burning Sensation On Skin...

SherryBerry72

Recommended Posts

SherryBerry72 Newbie
SherryBerry72
Posted

I have been experiencing a burning sensation on my skin (my face mainly) off and on since 2002. I have been tested for MS, Lupus, and other misc. diseases/disorders.

I am iron deficient anemic is about the only thing that has been found.

I ache all over sometimes, go through stages of fatigue, feeling sluggish, etc....

A friend of a friend has Celiac and said she had burning sensations as well. I am considering going to get tested for Celiac.

What is your opinion?

I am miserable!

Thanks!

Sherry

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


curlyfries Contributor
curlyfries
Posted

I have been experiencing a burning sensation on my skin (my face mainly) off and on since 2002. I have been tested for MS, Lupus, and other misc. diseases/disorders.

I am iron deficient anemic is about the only thing that has been found.

I ache all over sometimes, go through stages of fatigue, feeling sluggish, etc....

A friend of a friend has Celiac and said she had burning sensations as well. I am considering going to get tested for Celiac.

What is your opinion?

I am miserable!

Thanks!

Sherry

I used to get a burning sensation......on my forearm, mostly. It felt like there should've been a visible red burn in that spot. And also a sensation that someone spilled cold water on my leg. Those are finally gone. It could be celiac, but it might be difficult to get a doctor to order the test based on that and fatigue. There are a variety of symptoms for celiac, but many doctors don't recognize anything but stomach disorders and weight loss <_<

IrishHeart Veteran
IrishHeart
Posted

I suffered horrible burning sensations from scalp to toes. :blink:

No one could tell me what it was. I was also red (like I had a sunburn and a constant histamine response) and had a burning face. (I was tested repeatedly, not lupus,MS etc.) I had several neurological issues as a result of gluten, but they are resolving.

It was this burning that "got my attention" back in Feb. 2008 and the first indicator that something was going very, very wrong inside me. I had other health problems and gastro symptoms prior to that but "lived with them"...Dozens of symptoms developed after that, and it took nearly 3 years to be DXed.

The burning has tamped down a bit, but it is extremely uncomfortable and is worse if I am accidentally glutened.

Phayah Newbie
Phayah
Posted

I'm going through the process of getting tested for Celiac disease and other possibilities right now. About a year ago, I started having a numb/tingling feeling while lying down wherever I was touched. So weird! Then one morning I woke up and my entire chest/head felt like that. My doc told me to go to the ER but they said it was just anxiety and low magnesium. How you can be anxious when you first wake up, I have no idea! At the followup with my doc she scheduled a brain/spine MRI and full abdominal ultrasound. Both were normal.

Anyway, I just started getting a burning/pain sensation in/under my skin, particularly my arms/upper back but also my scalp. I also have thinning hair. Well, I found an article that a pinched nerve in the shoulder might cause the sensation in the arms/upper back. Alopecia or hormones is said to sometimes cause similar scalp problems. It seems like Celiac could cause almost anything though. It certainly wouldn't hurt to check into it, especially since anemia is also a symptom. =)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,608
    • Most Online (within 30 mins)
      7,748
    lorrasmama
    Newest Member
    lorrasmama
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Potential celiac need advice

      By Scott Adams · Posted

      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.