Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can 24 Hrs Of Gluten-Free Make You Feel This Much Better?


silveylane

Recommended Posts

beebs Enthusiast

I do not have *normal* GI symptoms either. Some people only have neuro symptoms, some celiacs don't have one symptom.

Yes you can feel better quickly, the day I quit gluten was the day that I stopped taking meds for GERD, and I had been on meds for years and they didn't even work - my reflux was bad, I couldn't swallow water. So anyhow - It was noticeable straight away how much better I was.

I would ask your husband to be tested. Honestly - what can it hurt?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

My primary symptoms and food linkages are below along with onset (there is some symptom overlap):

Gluten/celiac disease related:

  • Chest pain/Tachyacardia - age 19 (20+) years ago, would come and go for 20 years
  • Gradually developing fatigue, always tired - first observed 10 years pre-gluten-free
  • Insomnia - first observed 14 years pre-gluten-free
  • OCD issues - first observed 6 years pre-gluten-free
  • GERD - first observed 8 years pre-gluten-free
  • Diarrhea - Onset 6 years pre-gluten-free
  • Memory issues - Onset 6 years pre-gluten-free
  • Weight loss - Six months prior to going gluten-free
  • Brain Fog - Onset 6 years pre-gluten-free
  • Stomach pains of undetermined cause 8 years pre-gluten-free
  • Skin issues (infections, psoriasis) - Onset 20 years Pre-gluten-free
  • Anxiety - Lifelong
  • Depression - Lifelong
  • Rapid Mood swings - Lifelong
  • Vitamin deficiencies (D,B,K)
  • Mineral deficiencies (Sodium, Copper, Magnesium, Iron)

Soy related:

  • Panic Attacks - first observed 8 years pre-gluten-free
  • Anxiety - first observed 12 years pre-gluten-free
  • Night sweats - first observed 2 years ago 5 months post-gluten-free

Pasteurized Dairy(* See footnote):

  • Stomach pains of undetermined cause 8 years pre-gluten-free
  • Diarrhea - Onset 6 years pre-gluten-free
  • Nausea/Vomiting - Onset 6 years pre-gluten-free
  • Nasal Allergies/Sinus infections - Onset 20 years pre-gluten-free

Diagnosed (D), Diagnosed and treated (DT), Suspected/Tested for (T) I've received over the years (some multiple times) prior to going gluten-free:

  • IBS(DT)
  • Clinical Depression(DT)
  • Chronic Fatigue(S)
  • Bipolar(T)
  • Hernia (T)
  • Bowel Obstruction (T)
  • GERD(T)
  • Stress(DT)
  • Anxiety Disorder(DT)
  • Hypochondria(S)
  • Hypertension(DT)
  • Hyper-thyroid(T)
  • Hypo-thyroid(T)
  • Ulcer(D)
  • Atherosclerosis/Heart Disease (T) - Heart was perfectly healthy every time I was tested)
  • Vitamin Deficient (DT) - Supplements never helped of course because I wasn't absorbing them

Some interesting things to me: My GI symptoms were related to pasteurized dairy products and gluten both, but were only present near the end when I started getting really sick. I never had any GI issues until 6 years prior to my diagnosis. Both gluten AND pasteurized dairy will produce GI issues now. Pasteurized dairy produces violent uncontrollable vomiting and diarrhea, gluten produces diarrhea. Raw milk does not produce any negative issues.

Another interesting part is that my Dad also suffered from many of these same conditions and diagnosis. He was diagnosed with non-treatable chemical depression and on multiple meds much of his adult life. Within a few months of getting diagnosed with celiac disease and going gluten, casein, and soy free he was off all but one med, which he takes at half-dose on an as needed basis (for anxiety).

Also - Every one of the symptoms listed above either improved dramatically or is entirely gone after 2.5 years on a strict gluten, soy, and (for two years) cow dairy free diet.

* Please note that I am not recommending (in this post) that anyone drink raw milk products. I'm merely reporting what I have discovered for my own personal health. Raw milk is considered by the FDA to be unhealthy.

anabananakins Explorer
QUESTIONS: Were any of you overweight? Do any of you take antacids (Prilosec)? Do any of you have this high end anxiety and fear of dying before you were diagnosed? Did any of you have this lethargy and fatigue? (My extended family calls that "laziness"!) Do any of you have those dark shadows around your eyes? This nonstop belching, chest pain -- is that esophageal spasms?

Yes. I'm overweight. I used to take antacids all the time (not a one since I went gluten free). I've been anxious since a small child, always lethargic and tired and those dark shadows lifted considerably when I went gluten free. Also, not sure about the last bit but when I used to throw up I would throw up for hours (like, 12) uncontrollably. Likewise when I cough I have trouble stopping - I'll cough for 6 months. The chiro thought they were connected. I haven't had either since I went gluten free (though that may not be conclusive since I take any cough medication I can avoid starting to cough and I don't throw up after I drink as much now because I'm not coming home and lining my already delicate stomach with gluten-y toast)

All the best to you both.

Korwyn Explorer
QUESTIONS: Were any of you overweight? Do any of you take antacids (Prilosec)? Do any of you have this high end anxiety and fear of dying before you were diagnosed? Did any of you have this lethargy and fatigue? (My extended family calls that "laziness"!) Do any of you have those dark shadows around your eyes? This nonstop belching, chest pain -- is that esophageal spasms?

I missed this paragraph earlier. Yes, I was overweight (obese). I've lost over 50 lbs (healthily) after going gluten-free. I no longer need antacids. Yes on the anxiety (see my previous response), and no on the fear of dying. About a week before my 40th birthday (two weeks before I went gluten-free) I told my wife I was pretty sure I was dying. At that point I was so sick physically (I lost 13 lbs in one week) and mentally that I wanted to die. I wasn't suicidal (yet) but another few weeks and I would have been there. The lethargy and fatigue - most definitely. Common symptom. Dark shadows around the eyes are also common (almost classic I think), though mostly in younger people from what I have read.

These doctors think I am a (b)witch because I am soooooo demanding that they help this child and none of them seem concerned that he has missed a solid straight month of school.

What's your take? Thanks.

With this disease, unfortunately, you must be your own researcher and find physicians who will listen to you. We usually have to educate our medical health care providers.

Booghead Contributor

I will just say this: get a new therapist. Your child is severly depressed. He sounds so anxious and depressed it breaks my heart. Celiacs Disease is not a death sentence, espiecally since he is so young. I am 17 and found out about 2 weeks ago. Do not have a therapist pump him full of meds. He needs to talk and calm down. Really calm down. Keep him off gluten as that seems to have helped. I do think he has a gluten allergy or celiacs. I also think he has SEVERE anxiety and depression. Those get worse when you take him off of the meds. I know because I have done it. After going off anxiety meds and depression meds I was a jerk to everyone for a whole month. I cried at everything. He is 15 years old. A young adult. Talk to him. He shouldn't freak out from a diagnosis like celiacs. Give him some info. Me and my mother went through this process together and I think part of his anxiety is because you treat him like a child and tell him nothing. :unsure: It's ok to feel protective. But from what I can tell your son has 2 very big problems. The vomiting CAN be caused by anxiety and panic attacks. Same as Dihirea (sp?). His gastro problems could possibly all be caused by his anxiety tho I do not think so.Gluten is a factor in this case.

I am 17 so only a little older then he is. He is not a child so give him some respect to include him in your quest for anwsers. B)

Good Luck and I hope to not have offended you or anyone else.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.