Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Or Lactose Intolerance?


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi All

Lately, I've been having trouble when I have milk. Not so much stomach-wise other than a bit of nausea, but dizziness, headache, pressure in my sinuses, general brain fog. I've been dealing with mild vertigo (non-vestibular) and milk tends to make it worse.

Because of that, I've started cutting cow's milk out of my diet as much as possible. Instead eating sheep and goat's milk cheese, drinking almond milk (cause I hate soy/rice milk), and even cut back on yogurt (which I can usually handle ok)

I've been doing a bit better in the head department, and notice that if there's butter, milk, or too much salt in something my head goes a little swimmy.

The question is: am I developing an intolerance to lactose, or to casein? Is there a difference in symptoms?

I've been trying my best as usual to stick to the gluten-free diet, but these symptoms seem a bit different, more immediate and more to do with head/concentration.

A friend of mine recommended trying raw milk (she gets it from a supplier, and brought a bit to try) Perhaps the bacteria etc in raw milk might make it easier to digest. I had a sip of it this morning and felt not so hot after, but will try a bit more and see how it is.

Any advice would be welcome.

Thanks!

Peggy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

HI Peggy,

I went round and round with this question for a few years of what is it about milk that is bothering me? Is it casein? lactose? some other component? Is is an autoimmune issue? a functional issue? and never got anywhere by looking at symptoms and reading up on it. I recommend that you try some tests. There are a number of them. You can do skin or blood allergy testing for casein, cow and goat separately. You can also get what is called a milk subfraction test(blood) that looks at about 4 components of milk if I remember right. It may help you to figure out which products your body will be ok with. I ended up being casein allergic(skin test). I wanted to know if my immune system was involved because I suspected other immune isssues and didn't want to be consuming dairy if it challenged my immune system even if I didn't have symptoms. I found that even if I didn't have significant symptoms, cow dairy raise my blood sugar quite a bit, showing that immune system component.

At some point I also did a omplete elimination and could breathe SO much better! I had no idea it was affecting me that way and so much!

After the pos. skin test for cow dairy and eliminating all dairy for a while I tried got and could successfuly consume it and had a neg test. I was good with that for about a year and then started getting symptoms and found that my cow casein allergy had crossed over to goat :( I really miss it.

Good luck to you sorting it out.

Skylark Collaborator

Neuro symptoms are usually casein, not lactose.

Lactose gives gas, diarrhea, and other purely GI issues because it gets broken down by bacteria and/or pulls excess water into your intestines. Casein causes allergic and intolerance reactions that affect your whole body.

Raw milk will still cause you trouble with casein issues. It's also not particularly safe to drink. This article is worth a read - it's pretty balanced.

Open Original Shared Link

Pegleg84 Collaborator

Neuro symptoms are usually casein, not lactose.

Lactose gives gas, diarrhea, and other purely GI issues because it gets broken down by bacteria and/or pulls excess water into your intestines. Casein causes allergic and intolerance reactions that affect your whole body.

Raw milk will still cause you trouble with casein issues. It's also not particularly safe to drink. This article is worth a read - it's pretty balanced.

Open Original Shared Link

Thanks

I'm also thinking it's casein more likely than lactose. It's a bit like getting glutened but without the bloating, and I get the head-fogginess almost immediately.

I think I will try an elimination diet for a few weeks and see how it goes. I've also cut back on salt significantly, since it gets my dizziness going too.

I've heard both sides of the raw milk issue, and think its likely safe as long as you get it from good sources (there's been a huge controversy here in Ontario about farmer selling raw milk. His house/farm got raided and was treated like he was cooking meth or something! Ridiculous!) in any case, I don't think cow's milk is for me anymore...

Anyway, any further advice would be great. If I can't figure it out on my own, visiting a GI specialist or an allergist might be the next step.

Thanks

Peggy

Pegleg84 Collaborator

Thinking its definitely casein. Just clued in that casein being similar to gluten also means it could be causing some intestinal damage. It hasn't gotten as bad as before I went gluten-free, but I have lost a lot of weight over the past several months (though i'm clinging to the hope that I'm eating right and getting exercise and won't suddenly gain it back once I figure this out. ie: I just bought new pants).

Also did a little reading concluding that it (along with salt, naturally occuring and added) is causing and/or aggravating my head symptoms (mild vertigo/dizziness, brain fog, sinus pressure/congestion, fluid in ears...)

Of casein intolerance: "Symptoms in adults can include headaches (yep), gastritis, light-headedness (seriously), vertigo (yuhun), skin rashes, jock itch (unfortunately), nasal and sinus congestion (sniff. off and on all the time), depression and anxiety (thankfully not too much lately, but feeling bleh), nausea (a little), asthma and bronchitis (thank god no)."

ding ding ding!

So (despite the fact that I just bought some yogurt) no more cow's milk for me. I'm hoping goat will still be ok, since it's supposed to have a lot less casein, or a different form, but will figure that out later.

Now, to figure out a Gluten and Casein-free diet... yey.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,036
    • Most Online (within 30 mins)
      7,748

    Darcy22
    Newest Member
    Darcy22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.