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CH16

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CH16 Newbie

Hello,

I'm writing on behalf of a family friend. She is 89 years old and has had Celiac Shrue for many years. While she has been careful to maintain a gluten free diet for years; with her advancing age she is having trouble maintaining her weight. Not being computer savy she has asked if I could find any information (particularly any new information) on this disorder and maintaining weight or diet advice. A higher calorie diet that would be tolerated by a celiac patient (and an older lady) would be most welcome. I should note that she has had excellent medical care and seems to have no other known complicating factors, beyond her age. This woman is a dear friend to the the family, and a strong old gal; I would be thankful for any information, suggestions, links to articles, etc. that anyone could provide. Thanks in advance for any information.

CH


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Jnkmnky Collaborator

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All of these bread products are tasty and filling. There are even donuts! Adding carbs to the diet may help her gain weight. We like the white tapicoca rice bread. Make sandwiches, french toast, etc.

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Chebe is nice because she can make anything bread related she'd like. Even "hot pockets"-- stuff with cheese, ham, turkey broccoli, pepperoni, mozzerella, and on and on ....

gf4life Enthusiast

It would be helpful to know what her diet consists of now, so we don't suggest too many things that she is already eating.

Is she mainly just needing help with eating more calories, and a wider variety of foods? Or does she think she might be getting some gluten in her diet accidentally and needing help to find the source?

I am glad that she is maintaining her health and that she has good medical care. If she is loosing weight then she must not be eating enough.

God bless,

Mariann

lbsteenwyk Explorer

Since she was diagnosed years ago, she may be over-restricting her diet. There are some ingredients that celiacs can use that were once restricted - vinegar for instance. Here are a few links to current diet information.

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tarnalberry Community Regular

I agree that it'd be helpful to know what she's eating now. If the main problem is not getting enough calories because she's not hungry or fills up fast, then she'll want to go with foods that don't cause her to fill up fast and are very calorie dense. Many store-bought gluten-free bread items are this way, because they may have a lot of fat, but I've found they also leave me VERY full for a while - especially if I'm drinking enough water with them to not get dehydrated - so it may work, but you'll want to be careful what items you go for. (The Kinnickinnick stuff I've tried isn't as "keep you full for half a day" as the Enjoy Life stuff I've had, for instance, and still has plenty of calories, so I'd second taking a look at the link for them that was already provided.)

Other things to go with are good sources of fat - like avocado, coconut, nuts, and oils. Eating frequently throughout the day can help too, as can getting low-intensity exercise. (For instance, if she's up to a fair amount of walking, doing that quite a bit in the day - slow walking, strolling, really - it can help stimulate the appetite. Though, again, it's important to see how it works for her.)

nettiebeads Apprentice
Hello,

    I'm writing on behalf of a family friend. She is 89 years old and has had Celiac Shrue for many years. While she has been careful to maintain a gluten free diet for years; with her advancing age she is having trouble maintaining her weight. Not being computer savy she has asked if I could find any information (particularly any new information) on this disorder and maintaining weight or diet advice. A higher calorie diet that would be tolerated by a celiac patient (and an older lady) would be most welcome. I should note that she has had excellent medical care and seems to have no other known complicating factors, beyond her age. This woman is a dear friend to the the family, and a strong old gal; I would be thankful for any information, suggestions, links to articles, etc. that anyone could provide. Thanks in advance for any information.

            CH

<{POST_SNAPBACK}>

Does she have a dr that specializes in geriatrics? Has she been tested for diabetes? Weight loss is a symptom of that too, and at her age it could be a possibility. I'd like for her to be able to rule out other factors before focusing just on the Celiac aspect.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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