Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Scalp Post!


Monael

Recommended Posts

Monael Apprentice

Well I have seen posts that question whether contact with wheat products can give someone DH and frankly I just don't have time to do the research so I don't know what the arguments are pro/con. I didn't give it much thought really. I did notice that going gluten free gave me the glorious side effect of stopping my insane scalp itch (that was accompanied by little sores that scabbed over) that I never even thought were related to my diet, I just thought I had dandruff or something and nothing made it go away so I just learned to live with it. When I read about DH in association with gluten free diets I was convinced that that was the reason why my scalp itched so horribly and why it went away with the gluten free diet.

Then I bought some Potion 9, which I had used a lot in the past but coincidentally I had not used for a while when I went gluten free but recently bought it again because it is great at controlling my frizzy hair. THE ITCH AND SORES CAME BACK! But I didn't immediately associate it with the Potion 9, I thought maybe I was being cc'd at a low dose that wasn't giving me the dreaded D but causing the scalp itch to come back. But a post on here drove me to read the labels on my hair products and LO AND BEHOLD Potion 9 had wheat protein :( I stopped using it and what do you know? My scalp itch went away too! I don't know the mechanism but I guess it doesn't matter. Does anyone know of a good gluten free hair product that works like Potion 9? It works so well-I am so sad that it has wheat in it.

I am really amazed at this whole thing, if someone had told me this previously I would have thought they were nuts but I can't argue with the results. I am just glad I don't itch any more because it was truly driving me crazy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Di2011 Enthusiast

I am really amazed at this whole thing, if someone had told me this previously I would have thought they were nuts but I can't argue with the results. I am just glad I don't itch any more because it was truly driving me crazy.

Be glad it was only your scalp!!! And you have resolution to the problem. :)

Sorry I can't help you with a replacement for your product but thought I should check with you that you have been through your other products - make up, cleaning, laundry, soaps etc. If you have an obvious problem on your scalp you might not want to develop a problem in the future on other areas. Just a thought. Took me & my DH a while to get serious about all those other products and I wouldn't want you looking like me :ph34r:

ciamarie Rookie

I had a shampoo with wheat in it I just ditched, and another with panthenol that may be derived from wheat that is questionable. But I searched the forums, and apparently garnier, dove and suave are good at labeling any gluten ingredients. So I went out and got some suave shampoo and conditioner, and though I've only used it twice so far my scalp itch is basically gone. The ones I got were from the Suave Professionals line, just read the labels and avoid anything with wheat, other gluten-y ingredients and also panthenol I think.

Climber7 Newbie

Well I have seen posts that question whether contact with wheat products can give someone DH and frankly I just don't have time to do the research so I don't know what the arguments are pro/con. I didn't give it much thought really. I did notice that going gluten free gave me the glorious side effect of stopping my insane scalp itch (that was accompanied by little sores that scabbed over) that I never even thought were related to my diet, I just thought I had dandruff or something and nothing made it go away so I just learned to live with it. When I read about DH in association with gluten free diets I was convinced that that was the reason why my scalp itched so horribly and why it went away with the gluten free diet.

Then I bought some Potion 9, which I had used a lot in the past but coincidentally I had not used for a while when I went gluten free but recently bought it again because it is great at controlling my frizzy hair. THE ITCH AND SORES CAME BACK! But I didn't immediately associate it with the Potion 9, I thought maybe I was being cc'd at a low dose that wasn't giving me the dreaded D but causing the scalp itch to come back. But a post on here drove me to read the labels on my hair products and LO AND BEHOLD Potion 9 had wheat protein :( I stopped using it and what do you know? My scalp itch went away too! I don't know the mechanism but I guess it doesn't matter. Does anyone know of a good gluten free hair product that works like Potion 9? It works so well-I am so sad that it has wheat in it.

I am really amazed at this whole thing, if someone had told me this previously I would have thought they were nuts but I can't argue with the results. I am just glad I don't itch any more because it was truly driving me crazy.

My problem was very similar to yours and it kept getting worse and worse. The itchy dry scalp turned greasy and I don't think I need to go into much detail as you probably know what I'm talking about.

I've tried every shampoo I could find and none of them ever really worked. Sometimes it seemed like something worked but it was just an illusion. I tried a prescription shampoo which can also easily be purchased without prescription in most chemists here; It's called Ketopine shampoo. There are many shampoos with the active ingredient ketoconazole but this particular shampoo is of high quality and smells rather nice/pleasant. I've used this shampoo and nothing else for about 7 years now and I can't say I've noticed any problems with it (touch wood). It does dry my skin after a shower for a few hours but generally everything after is great. I once forgot about using this shampoo and used a normal one for 2 weeks. All of the initial problems returned. I'd say if you take this shampoo for 2 weeks your scalp and hair problems may well disappear; at least that's the only thing that worked for me. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Celiac disease symptoms

    2. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Celiac disease symptoms

    3. - Churro posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Celiac disease symptoms

    4. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      4

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,051
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Churro
      Thanks for your insight. I've been eating wheat bread at least 5 times a week for several months. I've been eating chicken or eggs 5 days a week for at least a year. 
    • trents
      Welcome to the celiac.com community, @Churro! Several things need to be said here: 1. Your physician neglected to order a "total IGA" test to check for IGA deficiency. If a person is IGA deficient, the results of other IGA antibody tests specific to celiac disease will not be valid. A total IGA test should always be ordered when checking for celiac disease with blood IGA antibody test. You should ask your physician to order a total IGA test. 2. Iron deficiency anemia can also give distorted IGA celiac disease blood antibody tests. 3. If you were already on a gluten-free diet or had been restricting gluten consumption for weeks/months prior to the antibody testing blood draw, then the test results would not be valid. Accurate celiac disease blood antibody testing requires you to have been consuming significant amounts of gluten for a significant time period leading up to the blood draw. It takes time for the antibody levels in the blood to build up to detectable levels. 4. Your low iron levels and other symptoms could be due to celiac disease but could also be caused by lots of other medical issues.
    • Churro
      Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease tests. In 2021 I was dealing with severe constipation and hemorrhoids. I'm no longer dealing with constipation. I still deal with hemorrhoids but only about once a week. Also, I've been dealing with very pale skin for at least 5 years. Do you think I have celiac disease? 
    • tiffanygosci
      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.