Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Weak


dick'sgal

Recommended Posts

dick'sgal Newbie

I have read on this site that one of the symptoms of celiac disease is weakness. I was diagnosed as a celiac about three years ago, but never had any symptoms of weakness. Mostly it was severe stomach cramps, diarrhea, etc. This past spring I began to feel weak, it seems to start just around the time I eat breakfast, seems to be worse around the time I want to eat.

Sometimes I have a really fast heartbeat. I took a stress test at the hospital but it didn't reveal any problems. It feels as though my normally healthy body is struggling. Now, I think all this is celiac related. Thanks for any advice you can give. I just joined this site and think it is wonderful. Dick's gal :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
I have read on this site that one of the symptoms of celiac disease is weakness.  I was diagnosed as a celiac about three years ago, but never had any symptoms of weakness. Mostly it was severe stomach cramps, diarrhea, etc. This past spring I began to feel weak, it seems to start just around the time I eat breakfast, seems to be worse around the time I want to eat.

Sometimes I have a really fast heartbeat. I took a stress test at the hospital but it  didn't reveal any problems. It feels as though my normally healthy body is struggling.  Now, I think all this is celiac related. Thanks for any advice you can give. I just joined this site and think it is wonderful. Dick's gal :huh:

<{POST_SNAPBACK}>

My problem is fatigue. When I get glutenated I'm down for nearly two weeks - just dog tired. Or if I'm hit with something else where I don't eat quite right resulting in reduced protein intake I'm tired and weak until I get built back up. Usually that takes me another week or so from after I've recovered from whatever got me off course in the first place. And that's been more so as I've gotten older (physically, not mentally :lol: ). So, what do you normally eat for breakfast? If it's cereal based, has the manufacturer changed the ingredients? (I'm always checking labels even on "safe" foods. You never know when something will be changed to save a fraction of a cent for the makers) How long has the fast heartbeat been happening? I've read a lot of threads here - it seems there are thyroid problems that are related to having celiac disease. Just a thought. And I agree with you, this site is wonderful!

ianm Apprentice

The three biggest problems for me were in order:

1. Brain fog - To the point of being crippling.

2. Fatigue - Almost as bad as the brain fog.

3. Weight gain - Lots of it.

I did not have a lot of gut problems like some do but it was more than normal. I used to have times of very rapid heart beat also. All of these have gone away since I quit gluten.

Merika Contributor

Hi,

I had rapid heartbeat when I first had celiac symptoms and was eating gluten. I also had with this electrolyte imbalance, which maybe triggered it? It came and went for about a year. Then got less frequent. Then went away - it's rare that it happens to me now. Mind you, I was eating gluten all those years.

I found traditional chinese medicine very helpful, and teaching myself some biofeedback to calm it (by trial and error, no real method).

Does that help? Can you be more specific? Oh, I would also get ridiculously exhausted from it afterwards sometimes - like a heart-attack victim afterwards almost - barely able to wash my own hair, etc. I probably would have passed a stress test too.

Merika

nogluten- Newbie

I have read on this site that one of the symptoms of celiac disease is weakness. I was diagnosed as a celiac about three years ago, but never had any symptoms of weakness. Mostly it was severe stomach cramps, diarrhea, etc. This past spring I began to feel weak, it seems to start just around the time I eat breakfast, seems to be worse around the time I want to eat.

Sometimes I have a really fast heartbeat. I took a stress test at the hospital but it didn't reveal any problems. It feels as though my normally healthy body is struggling. Now, I think all this is celiac related. Thanks for any advice you can give. I just joined this site and think it is wonderful. Dick's gal :huh:

<{POST_SNAPBACK}>

[/quote

I'm always tired, but something that helps me is a Boost Breeze. They're gluten and lactose free and the tropical fruit ones taste good chilled. I drink them as meal replacers when i'm too sick to eat or cook. Maybe you should be checked for anemia as well? I'm also on a low dose of anti-depressant, which helps a little. I used to take Provigal for energy, but I felt too wired with it. It's also insanely expensive and many insurance companies won't pay for it unless youre a diagnosed narcoleptic or a couple of other conditions. Good luck to you- hope youre feeling better soon. Take care.

jenvan Collaborator

dick's gal--

as no gluten suggested...i think you should have your iron cked out. anemia can also make one feel week, and it can affect your heart as well. i had a heart murmur showing up while i was anemic. now that i have normal iron levels--no murmur. it might be worth a try. anemia is fairly common for celiacs too...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    2. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    4. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

    5. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Blood Test for Celiac wheat type matters?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,139
    • Most Online (within 30 mins)
      7,748

    kathleen apodaca
    Newest Member
    kathleen apodaca
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
      I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten-free ever since along with other lovely food allergies. Prayers
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.