Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed..how Long Of Eating gluten-free Until I Feel Better?

ScarlettsMommy

Recommended Posts

ScarlettsMommy Explorer
ScarlettsMommy
Posted

With my celiac and crohns, I went undiagnosed for 2 years and I was going to dr after dr. I finally went to Johns Hopkins and was diagnosed 2 days ago. I am starting my gluten-free lifestyle change tomorrow. I was always so sick to my stomach like i had a stomach flu or like something was rotting in my stomach. How long after eating gluten-free will I actually start to feel better? Does it happen instantly or dos it take days, weeks, months? Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


amberskids Newbie
amberskids
Posted

My son was dx recently at age 2 -- they told expect at least 90 days and to also eliminate dairy because the body does not have the proper digestive enzymes to handle the dairy --- that said, since we started going gluten-free and Dairy free last tuesday, his DH is nearly disappeared, his eczema has cleared and he has gone from 5-7 BM a day down to 3 and is mostly sleeping through the night. He still wakes and is sometimes fussy and when I feel his tummy I can feel lots of "talking" rumbling, grumbling - so I know he's not completely healed, but MAN! what a difference!

Skylark Collaborator
Skylark
Posted

It's different for everyone. My stomach felt better in a couple weeks but my gluten-caused bipolar illness took another year and a lot of nutritional supplements to resolve.

AVR1962 Collaborator
AVR1962
Posted

You should notice a difference in a few weeks. Keep the diet real clean and you will recover faster. Since your symptoms have been on-going for quite some time there will probably be a length of time for repair to your system.

BabsV Enthusiast
BabsV
Posted

When I was diagnosed the doctor told me a minimum of 3 months gluten-free to start to see some sort of improvement...and that it could be 6-12 months for real improvement. I am 3.5 months in and things are definitely better (less pain, less brain fog, insomnia improving, less aching joints) but I'm far from 100%. Also, it hasn't been a steady improvement -- at the beginning I'd have a good day and then go back to feeling awful, I felt like I was all over the place and wondering if I was glutening myself without realizing it. Keeping a food diary really helped in terms of pinpointing things that were just too tough on my system (some of which I've just started reintroducing to my diet.) Also probiotics have been a HUGE help. Good luck. And be patient. Which coming from me is funny because I am notorious for not being patient!

Ginger Sturm Newbie
Ginger Sturm
Posted

Hello I'm new on here and dont really know my way around yet so I'm hoping I get a reply! (:

I just found out 3 months ago that I have a high allergy to wheat. I know Celiac Disease and wheat allergies are different but does anybody know how long it takes to feel better from a wheat allergy??

I have been gluten free/wheat free for about 3 months with barely any improvement =/ feelin a little discouraged so replies would be awesome!

Thanks for listening and I hope this works!

Duhlina Apprentice
Duhlina
Posted

I am 3.5 months in and things are definitely better (less pain, less brain fog, insomnia improving, less aching joints) but I'm far from 100%. Also, it hasn't been a steady improvement -- at the beginning I'd have a good day and then go back to feeling awful, I felt like I was all over the place and wondering if I was glutening myself without realizing it.

It's been 8 weeks for me as of yesterday and the only differences I have noticed so far are that my swelling/bloating has gone down a lot, I feel a bit more alert and not as exhausted and I'm not getting the migraines anymore. My eczema is flaring up again though as is my depression. I'm hoping it's just whatever's toxicity that is still in me working its way out. Trying to remain patient, it's only been two months for me!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celiac Maniac Newbie
Celiac Maniac
Posted

I was symptomatic for 10 years, at least, before diagnosis.

I started feeling better within a few days. Much better in 2 weeks.

Gluten is like smacking yourself in the head with a ball peen hammer: it feels so good when you stop.

TK Kenyon

ScarlettsMommy Explorer
ScarlettsMommy
Posted
  • Author

Thank you everyone for the input! Today was my first day eating gluten-free and i didnt feel sick today. Hopefully a sign of good things to come.

quincy Contributor
quincy
Posted

Thank you everyone for the input! Today was my first day eating gluten-free and i didnt feel sick today. Hopefully a sign of good things to come.

I hope you heal faster than I have. Its taken me more than a year to settle down and I am dealing with the residual affects such as loss of bone density, reflux and a sluggish gall bladder... I am at least tolerant of dairy again after 18 mos gluten free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748
    Gabs
    Newest Member
    Gabs
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.