New And Hungry

[Bambamonabike]

I'm overwhelmed with information, and I'm hungry!!! My girlfriend found the Healthy Choice chicken rice soup, and made some gluton free brownie's for my B-day that I munch on....ummm banana's, apples. I had been gluten-free for a week and was so amazed at the results!!! Wow Wow Wow......and finally ...Wow! Then we went for Sushi last night we my daughter and boyfriend. I have been so sick! Every symptom has come back with a vengence.

PS: I'm not diagnosed , Dr. told me to try to gluton free and set me up for the GI consult. Now I wonder if I need to continue killing myself to get the positive test???

Confused and overwhelmed.....and hungry

[mamaw]

To get accurate testing for celiac you need to be eating gluten... Your doctor is wrong by telling you to go gluten-free then see a GI doc.. He's got it A__ __ backwards......Plus I assume you are an adult& you tried going gluten-free & felt instant relief when not eating gluten.Then you went to a sushi place & got sick... That should help you make your choice..

Not everyone needs a stamped certificate stating you need to be gluten-free... It' s your choice to get tested or not be tested... With children they need to be tested & dx'd for school...adults can make their own choice ...

[samie]

If you are gonna get tested than you got keep eating gluten. If you stop eating it the test can come back negitive. So decide if you want an offical dignostic. If not you can do a gluten challenge but that can be negative to.

[Metoo]

Thats up to you.

I would 'like' an official diagnosis so I would know what to do with my kids (who are very young still), and to convince my mom and sister who have problems and are stubborn to get tested. But honestly I feel so much better I don't want to go back to gluten or the ridiculous cost of testing.

I haven't tried sushi yet, I believe not all rice is gluten free, most soy sauce is 60% wheat also. You actually have to buy soy sauce thats gluten free (kind of messed up that soy sauce is mostly made of wheat normally).

[Celtic Queen]

Sushi is hard. Not only do you have to avoid the regular soy sauce, but some of the other sauces used in the sushi also have gluten. Like the sauce they use on the smoked eel (which was my favorite before going gluten-free). And teriyaki sauce can have glutent too. Doesn't leave much options except for lots of edimame

Most soy sauce has wheat unless you buy gluten free Tamari soy sauce, which is 100% soy. But not all Tamari sauces are gluten free, so make sure it says so on the label.