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Wheat Allergy

Ginger Sturm

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Ginger Sturm Newbie
Ginger Sturm
Posted

Hey,I havent really figured out how to use this blog so hopefully this works and I can get some responses! (:

I am 19 years old and have a high allergy to wheat. I know having a wheat allergy and having Celiac Disease are completely different things but I'm just wondering if anyone knows how long it takes to feel better from a wheat allergy?

I have been sick with stomach problems, nausea, and fatigue on and off for about 5 years now. I just found out 3 months ago that I have a high allergy to wheat and my Celiac blood test came back negative.

Soooo, I have been gluten free/wheat free for 3 months and not really seeing too much improvement. I'm just wondering how long I should give it? Just feeling kinda discouraged =/

(I also just found out that my deodorant that I have been wearing for the last 6 months has barley in it and I"m curious if stuff like that might be preventing me to feel better sooner?)

Thanks for listening!

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Metoo Enthusiast
Metoo
Posted

I can tell you what I know.

I tested negative through a scratch test for wheat allergy, but through work I had a positive IgE to gluten. Which would be an allergy to gluten.

A positive IgE to gluten, can be indicative of both an allergy or celiac though...so they did a celiac test.

I had a negative Celiac blood test, which according to my doctor is so inaccurate its nearly useless. If they preformed the blood test on 100 people with Celiac, 30 of those people with Celiac would get a negative blood test. So basically he said having a negative blood test does NOT mean you don't have Celiac.

So I was supposed to log my food and wait for another appointment, but I went gluten free instead because I have had stomach pain for years.

Within 3 weeks I felt the best I have EVER felt, I finally felt what it was like to feel full again, and no pain.

If I were you...I would go gluten free now! I have not eliminated gluten/wheat from any of my body/face products yet, I am considering it though.

Did you test positive through a scratch test to wheat?

lemontree1 Rookie
lemontree1
Posted

You are probably still getting bits of wheat/gluten through contamination. Being highly allergic, I am betting you are also very sensitive. You have to look at the labels for everything, avoid oats as well because they are highly contaminated, don't buy anything from bins at bulk food stores, even check your spices. Then look at what you are using to prepare your food, if it has been used with wheat and has anyplace gluten can hide (scratches , pores, etc), don't use it. Flour in the air can get you, as well.

Going wheat/gluten free is not a simple thing and it is easy to make mistakes. If after everything, you still feel lousy, you should have your thyroid checked, and nutrient levels. I hope you get to feeling better!

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

I can tell you what I know.

I tested negative through a scratch test for wheat allergy, but through work I had a positive IgE to gluten. Which would be an allergy to gluten.

A positive IgE to gluten, can be indicative of both an allergy or celiac though...so they did a celiac test.

I had a negative Celiac blood test, which according to my doctor is so inaccurate its nearly useless. If they preformed the blood test on 100 people with Celiac, 30 of those people with Celiac would get a negative blood test. So basically he said having a negative blood test does NOT mean you don't have Celiac.

So I was supposed to log my food and wait for another appointment, but I went gluten free instead because I have had stomach pain for years.

Within 3 weeks I felt the best I have EVER felt, I finally felt what it was like to feel full again, and no pain.

If I were you...I would go gluten free now! I have not eliminated gluten/wheat from any of my body/face products yet, I am considering it though.

Did you test positive through a scratch test to wheat?

Ahh I wish I knew more about it! As far as I know I'm not getting any gluten or wheat whatsoever! I have already checked all shampoos and make up etc..

And the only testing I really got done was the blood test for celiac (which came back negative) and I got a blood test for a panel of allergies and wheat was the only allergy I had! My natualpathic doctor says it is high and she really doesnt think I have Celiac.

Some of my symptoms have improved slightlyyyy but I feel like I'm just stuck in this rut. I'm just nauseus and tired all the time so I dont even really go out anymore

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

You are probably still getting bits of wheat/gluten through contamination. Being highly allergic, I am betting you are also very sensitive. You have to look at the labels for everything, avoid oats as well because they are highly contaminated, don't buy anything from bins at bulk food stores, even check your spices. Then look at what you are using to prepare your food, if it has been used with wheat and has anyplace gluten can hide (scratches , pores, etc), don't use it. Flour in the air can get you, as well.

Going wheat/gluten free is not a simple thing and it is easy to make mistakes. If after everything, you still feel lousy, you should have your thyroid checked, and nutrient levels. I hope you get to feeling better!

I know I have had some accidents but I feel like I have cut it out completely =/ Could my deodorant and makeup that I was wearing for so long still be effecting me?

Do you know how long it takes to heal from a wheat allergy? Should I get my small intestines checked to see if I really do have celiacs?

And I have been hearing alott about the thyroid so I'm thinking I need to get that checked! Do you know if any of this relates to terrible menstrual cramps?

Thanks everyone for replying! I feel so loved haha (:

catsmeow Contributor
catsmeow
Posted

Hi, I have a severe wheat allergy as well. After I went gluten free, I felt better in about a week, but not perfect. What finally made me feel perfect at home was changing shampoo (it has wheat), buying gluten free make-up, deoderant, and lotions. I also, had to take all gluten out of the house, buy new pans and a new toaster. I learned the hard way about cross contamination after making gluten-free brownies on an old pan and getting sick. I made a zillion mistakes in the first year. It's a huge learning curve to be totally gluten-free. You cannot just order what appears to be gluten-free off of the menu at a restaurant, I learned the hard way, that unless they have a gluten-free menu in place and know what they are doing...you "might" stay well, they "might" not make you sick. And you cannot trust what others cook either, most people do not even know what gluten is....they think you mean sugar B)

Last week the doc started me on Zantac (histamine 2 blocker) and it has relieved me of my airborne wheat reactions. I wrote a big post about it in the "coping" section. I will never be able to eat it again, but at least I can be around it in public without getting sick and having to get stuck with my epi-pen. Do you have an epi-pen?

I'm so happy that you have found out whatis wrong with you. Getting a diagnoses is a sweet thing. Do you have any other food allergies?

My husband is hypothyroid, and felt like dog do before getting on meds. I would get tested, if it is a problem, being treated will be great.

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

Hi, I have a severe wheat allergy as well. After I went gluten free, I felt better in about a week, but not perfect. What finally made me feel perfect at home was changing shampoo (it has wheat), buying gluten free make-up, deoderant, and lotions. I also, had to take all gluten out of the house, buy new pans and a new toaster. I learned the hard way about cross contamination after making gluten-free brownies on an old pan and getting sick. I made a zillion mistakes in the first year. It's a huge learning curve to be totally gluten-free. You cannot just order what appears to be gluten-free off of the menu at a restaurant, I learned the hard way, that unless they have a gluten-free menu in place and know what they are doing...you "might" stay well, they "might" not make you sick. And you cannot trust what others cook either, most people do not even know what gluten is....they think you mean sugar B)

Last week the doc started me on Zantac (histamine 2 blocker) and it has relieved me of my airborne wheat reactions. I wrote a big post about it in the "coping" section. I will never be able to eat it again, but at least I can be around it in public without getting sick and having to get stuck with my epi-pen. Do you have an epi-pen?

I'm so happy that you have found out whatis wrong with you. Getting a diagnoses is a sweet thing. Do you have any other food allergies?

My husband is hypothyroid, and felt like dog do before getting on meds. I would get tested, if it is a problem, being treated will be great.

Thats awesome you felt better in about a week!! I wonder whats taking me so long :(

I feel like its affecting me long term and maybe I dont get sick as soon as I eat it? It just sucks because i have been gluten free for about 3 months now and even gluten free food upsets my tummy still and I have alot of inflamation =/

And no I do not have an epi pen =/

I know I cried at the doctors when she told me I had a wheat allergy!! haha I was sooo relieved to finally know whats wrong and that I can finally be in control... But its been months and I feel pretty much the same =/

What are the symptoms that your husband had if you dont mind me asking (:

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Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

Can it take the same amount of time to feel better from a wheat allergy as it does from Celiac? and is it possible to have a wheat allergy and celiacs?

catsmeow Contributor
catsmeow
Posted

My husband's hypothyroid symptoms were extreme fatigue, he slept all the time, his face was very puffy, he gained 30 pounds, and he lost half his eyebrows (outer). He was cold all the time, he went bald, dry eyes (still does), crazy deep rough gravelly voice, high chloresterol, and memory loss. Here is a symptom checker. I didn't know that his eyebrow issue was caused by hypothyroid until I read this site awhile back. The hair still has not grown back.

Open Original Shared Link

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

My husband's hypothyroid symptoms were extreme fatigue, he slept all the time, his face was very puffy, he gained 30 pounds, and he lost half his eyebrows (outer). He was cold all the time, he went bald, dry eyes (still does), crazy deep rough gravelly voice, high chloresterol, and memory loss. Here is a symptom checker. I didn't know that his eyebrow issue was caused by hypothyroid until I read this site awhile back. The hair still has not grown back.

Open Original Shared Link

ok thank you! I have some of the symptoms mainly just really tired though. I think im going to get it checked again next week. I had it checked alot when I was younger but not recently.Can somthing like that change over time? I dont know how much longer I should give this gluten free diet either =/ it just seems like I should be seeing more improvement by now. Thank you!

Di2011 Enthusiast
Di2011
Posted

Where you tested for any other allergies or conditions?

Ginger Sturm Newbie
Ginger Sturm
Posted
  • Author

Where you tested for any other allergies or conditions?

Yes I had a lot of bloodwork for allergies done and the only allergy I had was a high one for wheat. I dont think i have been checked for any conditions? Not for a few years anyways. My naturalpathic doctor wants me to get done some testing for food intolerances but its superrr expensive so I'm not sure if I'm going to get it done or not.

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