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My Recent Experience


amcouch

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amcouch Newbie

Hello,

I thought I would share my testing experience bc I was nervous about it all and this board helped a lot!

After a very positive blood test I went gluten-free for 6 weeks. After seeing a GI he wanted to do an endoscopy. He old me to go back on gluten immediately and scheduled the scope for 6 days later. I was nervous bc everything I had read said you need to be back on gluten for a minimum of 1-2 months. Nevertheless, the biopsy came back positive. Maybe being gluten-free for only 6 weeks wasn't long enough to do any healing. I am also one if those lucky people that doesn't have much of a reaction to gluten. Just bloating and a little anxiety. I've actually gained 40 lbs in the past 6 years.

Anyway, good luck to all of you going through the testing process!


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Marilyn R Community Regular

Wow we're opposites.

I had most of the horrid symptoms and went gluten-free on my own out of sheer desperation.

Six weeks after going gluten-free I had a negative IGA blood draw. I argued with by Gastro about having an endoscopy and biopsy for a while. Six months later, my "Gold Test" turned out negative. I don't have a diagnosis, but get whipped every which way when I consume gluten by mistake. :ph34r:

Isn't that weird?

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    • Churro
      Thanks for your assistance. 
    • trents
      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
    • Churro
      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
    • Churro
      Thanks for your insight. I've been eating wheat bread at least 5 times a week for several months. I've been eating chicken or eggs 5 days a week for at least a year. 
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