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My Recent Experience

amcouch

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amcouch Newbie
amcouch
Posted

Hello,

I thought I would share my testing experience bc I was nervous about it all and this board helped a lot!

After a very positive blood test I went gluten-free for 6 weeks. After seeing a GI he wanted to do an endoscopy. He old me to go back on gluten immediately and scheduled the scope for 6 days later. I was nervous bc everything I had read said you need to be back on gluten for a minimum of 1-2 months. Nevertheless, the biopsy came back positive. Maybe being gluten-free for only 6 weeks wasn't long enough to do any healing. I am also one if those lucky people that doesn't have much of a reaction to gluten. Just bloating and a little anxiety. I've actually gained 40 lbs in the past 6 years.

Anyway, good luck to all of you going through the testing process!

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Marilyn R Community Regular
Marilyn R
Posted

Wow we're opposites.

I had most of the horrid symptoms and went gluten-free on my own out of sheer desperation.

Six weeks after going gluten-free I had a negative IGA blood draw. I argued with by Gastro about having an endoscopy and biopsy for a while. Six months later, my "Gold Test" turned out negative. I don't have a diagnosis, but get whipped every which way when I consume gluten by mistake. :ph34r:

Isn't that weird?

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      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
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      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
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