Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Teenage Celiac Daughter

lynnmb

By lynnmb
in Introduce Yourself / Share Stuff

Recommended Posts

lynnmb Rookie
lynnmb
Posted

My 13 year old daughter was diagnosed with Celiac Disease 18 months ago and has been gluten free as long. She is having continued problems with stomach pain, upper, middle abdomen. Had normal follow up endoscopy/biopsy and normal test for Gall Bladder 3 weeks ago, so it seems that there is no gluten exposure or gall bladder concerns. Any similar experiences out there?. Can low level exposure cause stomach discomfort but still have normal biopsy?

Also, she continues to have problems with sleep, fatigue and feeling disorganized etc. I want so badly for my daughter to enjoy her teenage years, and so does she!

Thanks,

Concerned mom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

It sounds as though she's eating something that is also sensitive to, such as dairy, soy, corn, etc. Has she tried an elimination diet? Many people on this board are sensitive to dairy (though, luckily, I'm not) or soy, and digestive complaints, pain, and fatigue are most often reported. Many of us are also sensitive to iodine, so you might try switching to non-iodized salt in your home.

I hope she starts feeling better soon!

lynnmb Rookie
lynnmb
Posted
  • Author

It sounds as though she's eating something that is also sensitive to, such as dairy, soy, corn, etc. Has she tried an elimination diet? Many people on this board are sensitive to dairy (though, luckily, I'm not) or soy, and digestive complaints, pain, and fatigue are most often reported. Many of us are also sensitive to iodine, so you might try switching to non-iodized salt in your home.

I hope she starts feeling better soon!

I appreciate your reply. In looking around the forum, I did see many posts talking about the elimination diet, so I was starting to wonder about other sensitivities. Anyone know of a good book or resource for the elimination diet?

Erin122 Newbie
Erin122
Posted

^ My doctor's office has a detailed elimination diet plan on their website that might be of help to you. When I did it I made a few modifications. Since I was already gluten-free I replaced wheat with soy, I don't eat citrus very often so I replaced that one with nightshades, etc.

Open Original Shared Link

dilettantesteph Collaborator
dilettantesteph
Posted

You could also try just fruits, vegetables and meats for a couple of days and see if that helps. Sometimes processed foods and grains can be an issue.

lynnmb Rookie
lynnmb
Posted
  • Author

^ My doctor's office has a detailed elimination diet plan on their website that might be of help to you. When I did it I made a few modifications. Since I was already gluten-free I replaced wheat with soy, I don't eat citrus very often so I replaced that one with nightshades, etc.

Open Original Shared Link

Thanks, I am checking it out next!

  • 3 weeks later...
MyNamesEve Newbie
MyNamesEve
Posted

I had very severe symptoms when I was younger, so my mother bought me different cooking utensils for my food - such as my own toaster, microwave, etc. She also made my school have a separate microwave for me so I could heat up my food without contamination. I never had cafeteria food either because most people do not realize how easily food can be contaminated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,563
    • Most Online (within 30 mins)
      7,748
    Judi Ronan
    Newest Member
    Judi Ronan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wamedh Taj-Aldeen
      Positive TTG antibody and negative EMA antibody

      By Wamedh Taj-Aldeen · Posted

      I recently reviewed a patient with a positive tissue transglutaminase (tTG) antibody but negative endomysial antibodies (EMA). The patient is asymptomatic, and duodenal biopsies—taken while on a normal gluten-containing diet—were reported as normal. Given the discordant serology and absence of histological changes, I understand that the probability of coeliac disease is low. However, I would appreciate your guidance on the following: Is routine follow-up required in such a case? What is the risk of progression to overt coeliac disease in the future? Would HLA DQ2/DQ8 typing be useful here to help guide long-term management or exclude the diagnosis confidently? I would be grateful for your thoughts.
    • trents
      Is "Shield" skincare products gluten-free?

      By trents · Posted

      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      Abnormal Labs, Should I Be Concerned?

      By Ginger38 · Posted

      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Is "Shield" skincare products gluten-free?

      By LynnM · Posted

      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      Is "Shield" skincare products gluten-free?

      By Scott Adams · Posted

      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
×
×
  • Create New...