Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Well-Meaning People Who Are Always Pushing Food!


Monklady123

Recommended Posts

Monklady123 Collaborator

This post actually sort-of fits under the "can you eat this?" post, but I didn't want to hijack her thread.

My church has had a four-week Advent study immediately following Sunday worship. We had lunch each week. The first two weeks the woman who brought it went to the grocery store and got those sandwich platters. She also bought several kinds of cheese, hummos, raw veggies, fruit, gluten free crackers, and chips. I was just fine with everything except the sandwiches and it was sweet of her to buy the gluten free crackers.

The third week a different person cooked two kinds of chili and provided lots of different toppings. This is a woman who NEVER uses processed anything so her list of ingredients was totally safe and I ate it with no problem.

But the fourth week I got an email from the woman in charge of that meal saying they were going to do a lasagna lunch and could I please tell her where to buy gluten free lasagna noodles so she could make me a lasagna. Totally sweet of her. However! One, I have no idea where to buy lasagna noodles, I've never seen any. But more important, two, I would NEVER eat a lasagna made by someone else unless I really knew their kitchen and food handling. Especially if they were making a regular lasagna at the same time!

So I emailed her back to say thank you so much but don't worry, I'll bring my own lunch. Her reply said "No! We don't want you to do that! You can't do that!" etc... I replied back to say it's fine, I don't mind, it's not a problem, the company is what's important to me, not the food, and blah blah blah.

We went back and forth about three times before she gave up. At the lunch there were several lasagnas, Italian bread, and a lovely salad table. I had a nice salad, the leftover chicken I'd brought from home, and the gluten free cookies she'd bought for me. And she was still upset! oy...

Anyway, she is the sweetest lady and I kept telling her not to worry, etc., etc., ETC! But this sort of thing actually makes me want to stay home just to avoid the constant conversation.

Yeah, I could have worse problems in my life. :P Just one of those things. And I'm sure this is a common problem for those of us who need to be gluten free at the holidays and who have nice friends and family who just want to be sure we're happy. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



silk Contributor

I can absolutely relate to you. Went to a team Christmas dinner for work Monday night. As it always seems to happen, the conversation seems to revolve around what I can and cannot eat. Not because I want it to but because people, while baffled by gluten issues, are curious. My team leader said, "I have a sister-in-law who has this and everyone always stresses about what to prepare for her when she comes to dinner and she always wants to bring her own food. I mean it's not like you would get really sick if something touched just a little of something with gluten in it, right?"

I explained that yes, some people can become very ill from just having cross contamination and that it is not just important about what is in the food but how and where it is prepared that make it unsafe. I explained that the only way most people with gluten problems could enjoy a meal out with a group or potluck, is to bring their own food so that they can relax and enjoy the company without worrying that they will get sick or offend someone by not eating their food.

BTW, the team chose a restaurant that has a gluten-free menu. I have eaten there before and had no problem but got CC'd and was sicker than a dog that night and most of yesterday. :(

GlutenDude Newbie

I always tell people not to worry about me. Simply because even though their intentions are good, it is much better when I'm in control. I actually hate all the attention that celiac brings. Honestly, we can talk about other things then what I can and can't eat.

Takala Enthusiast

I would not expect them to "get" it unless they had personal (or family member) experience with either food allergies or restaurant cooking and preferably both. Anyway, I don't eat other people's food in potluck/social situations because of this and anyone who knows me knows it, it's a non negotiable item. At this time of year I'm actually more concerned with germs and the potential to get sick from somebody's day care toddler and then their sloppy food handling, than from gluten cross contamination.

Where you erred was establishing a precedent of eating some of the offered food already, so they are not aware of the seriousness of the issue. This invites comparisons....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,887
    • Most Online (within 30 mins)
      7,748

    BradL
    Newest Member
    BradL
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Shining My Light
      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
    • trents
      A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
    • terrymouse
      Thanks for clarifying! I'll put the gluten free thing on hold then. In late december last year I suddenly started having digestive issues I never had before. My stomach started feeling tight most of the time, I got full very quickly, little to no appetite, constipation, I started to feel ill after eating - sometimes a stomach ache, sometimes nauseous, or lightheaded, or heart beating fast. Some things worse than others, I started avoiding fatty foods in general because they made me throw up . I haven't had issues with food like this before, so this is all new to me. I started losing weight because eating was such a chore. I hadn't considered it could be celiac, but my GP added it to the list of things to test for and then referred me to the GI specialist when the results came back positive. They also found a large gallstone, which was causing me pain in the pit of my stomach, so I had my gallbladder removed in march. The pain is gone but otherwise everything else, the tightness and sensitivity and lack of appetite remains an issue, and I'm still losing weight. I was around 200 lb in december, right now I'm 152 lb. 
×
×
  • Create New...