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I Think I'm Missing Something....

upwitht21

By upwitht21
in Coping with Celiac Disease

Recommended Posts

upwitht21 Rookie
upwitht21
Posted

Hi everyone and merry Christmas,

So my family has been gluten free for about a month. New cookware, toaster, strainer, ect have been purchased. I've been really trying to avoid processed food but I think I'm missing something. My bone pain has definitely improved but now I have stomach problems I didn't have before. Is there anything that you guys missed at first that I should look at changing? I changed lotions and things like that as well.

Thanks!

Jess

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Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

Marilyn R Community Regular
Marilyn R
Posted

sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

If your gut is damaged, it could also be one of the common culprits like dairy, soy, corn or other grains (like certifed gluten-free oats or other "safe" grains. Fortunately these may be items you can safely reintroduce in time. Foods in the nightshade family bother some people after going gluten-free too.

Try keeping a food diary. It also helped me to go to an allergist. Good luck!

upwitht21 Rookie
upwitht21
Posted
  • Author

I had zero stomach problems before I changed my diet. I was actually tested because we have fertility problems. In a lot of ways I feel worse than I did. We decided that I wouldn't do a biopsy since my labs were all high but I'm considering going back on gluten and having the biopsy. I've only been gluten free for a about a month. I've been avoiding dairy as much as possible and I'm not s huge fan of tomatoes or the other nightshade veggies so they aren't a problem.

I'm so incredibly frustrated right now.

mamaw Community Regular
mamaw
Posted

Your body may be de-toxing. A month is really nothing in terms of being gluten-free.. I call it the infancy stage. It can take several years for some people to feel better ... Everyone is different..You have taken out (wheat) something that your body was having to digest for probably years & years, then all of a sudden you take it away.. Body just may be having withdrawals & fighting back...

You could try some digestive enzymes ( I use Digest Gold) and probiotics... I think I would try anything before having to go back to eating gluten ! Also very clean eating could help for a few months. Cutting out processed foods & junk foods....just a plain basic diet...

eatmeat4good Enthusiast
eatmeat4good
Posted

I had a lot of stomach rumbling and nausea in the first few months gluten free. Your stomach isn't used to not having to deal with gluten. I had to use Promethazine by prescription for the nausea. I decided the "baby villi" were just trying to grow back. It was a long few months and I had secondary intolerances too. I didn't think I would have the secondary intolerances, but dairy, soy, preservatives, and salicylates all bothered me in the early stages of healing. It took forever to figure it out. Finally I went grain free and that is when I started healing really really fast. Just wanted you to know the early months are rough just like the other posters have said. But hang in there because it really is all worth it.

upwitht21 Rookie
upwitht21
Posted
  • Author

Thanks for all the advice glad to know this normal lol sucks to have stomach problems now but hopefully it will get better. My 9 year seems totally fine with the change so thank goodness for that.

....Jess

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GFinDC Veteran
GFinDC
Posted

It can take a while for your bodies' gut flora to get right after removing gluten. It can help to take pro-biotics and remove sugar and starches. Dairy is a fairly common problem as the tips of the villi make the lactase enzyme that breaks down the lactose sugar in cow dairy. So it can help to go off dairy for a few months and see if that improves things. The villi can heal/regrow though and then they can make the lactase enzyme again and the dairy may not bother you then.

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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