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Frustrated...feeling Sicker

Metoo

By Metoo
in Coping with Celiac Disease

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Metoo Enthusiast
Metoo
Posted

I was gluten free for about 5 weeks, then I had gluten 2 days in a row. After that my ezcema on my hand exploded, then it looked like it was resolving.

Now more than a week later, my hand has kind of flared back up...and to top it off, I keep getting (tmi) Diahrea, which I NEVER get. I spent all of christmas eve in the bathroom..ugh and starving afraid to eating anything. Also my face is horribly broken out and it was completely cleared.

Before going gluten free my biggest symptoms was stomach pain and ezcema. The ezcema had completely gone away after 4 weeks gluten free. And I have been free of stomach pain since I stopped eating gluten free oatmeal the first week.

I guess at this point I am not sure what to entirely do. I have gone back to only eating food that is labeled 'gluten free' only and I replaced my shampoo with a gluten free one. Is there anything else I should be watching carefully?

I just can't believe that I have gotten this much more sensative or something, or that I am having it somewhere I didn't realize.

Todays food consists of hardboiled eggs, greek yogurt gluten-free certified, clementines, Thai Rice Noodles, chicken and gluten-free sauce, then more Chicken and minute rice for dinner with gluten-free soy sauce. All these things seem super safe hoping eating the same things for a week will make everything better.

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Duhlina Apprentice
Duhlina
Posted

I was gluten free for about 5 weeks, then I had gluten 2 days in a row. After that my ezcema on my hand exploded, then it looked like it was resolving.

So sorry you're feeling like this. I too have eczema on my hands and it sucks! I've been gluten free for almost 10 weeks now and it still isn't gone, but seems to be subsiding. I have also noticed that the longer I'm gluten-free the more sensitive I am if I get glutened. I never had the GI problems that other people experience, but now even the tiniest amount lands me in the bathroom for the night.

You're not alone. I'm sure others will respond and help!

Macbre Explorer
Macbre
Posted

Ive had terrible eczema since I was a baby but it has cleared up now since being gluten-free, but it does flare up when i get glutened. Ive been gluten-free 1year with many slip ups in the beginning. I have developed more food allergies and an airborn allergy to gluten. The longer I go without being glutened the worst my symptoms are when I do get glutened. I never had the GI issues before but that is one of my main symptoms now along with anxiety. It took me months to heal (approx 11) and everyone is different. One thing I did realize I was getting cc by was my dog & cat food. I have to wash my heads immediately after feeding them. Perfume is a biggie for me too.

Hope this helps and you start feeling better soon!

eatmeat4good Enthusiast
eatmeat4good
Posted

If what you are calling excema is really a form of DH - the skin form of Celiac, then eggs can cause a reaction because they are high in iodine. Dairy too. You might try the thyca.com diet to see if you are sensitive to iodine. Gluten and iodine are terrible for DH. Even traces of gluten cause me to have skin reactions for weeks.

Hope it's not DH, but just in case...wanted you to know.

red island Newbie
red island
Posted

I could not figure out why I was still getting glutened when I thought I was being so careful until I went thru my kitchen and replaced my plastic mixing bowls which had scratches in them. I have been fine for 2 weeks now so maybe something other than food could be a possibility. Also, after I started eating gluten free my reactions became much worse too (48 hours of GI and neuro). I am hoping that once I can get my antibody levels down that the reactions will not be so severe. It does seem that you get worse before you get better doesnt it.

BethM55 Enthusiast
BethM55
Posted

I could not figure out why I was still getting glutened when I thought I was being so careful until I went thru my kitchen and replaced my plastic mixing bowls which had scratches in them. I have been fine for 2 weeks now so maybe something other than food could be a possibility. Also, after I started eating gluten free my reactions became much worse too (48 hours of GI and neuro). I am hoping that once I can get my antibody levels down that the reactions will not be so severe. It does seem that you get worse before you get better doesnt it.

Your experience just made me realize I need to replace all my scratched plastic cutting boards that probably harbor gluten bits no matter how much they get scrubbed. I got glutened in my own home when we had our holiday dinner. I didn't eat any of the gluten containing food, but got sick anyway. (we don't have a fully gluten free home, which usually is just fine. Just not when there is a horde here!) So, out go the old cutting boards! I'll keep one cutting board for gluten foods and label it. All my mixing bowls are glass, so they aren't a problem.

Thank you for sharing your experience.

Metoo Enthusiast
Metoo
Posted
  • Author

If what you are calling excema is really a form of DH - the skin form of Celiac, then eggs can cause a reaction because they are high in iodine. Dairy too. You might try the thyca.com diet to see if you are sensitive to iodine. Gluten and iodine are terrible for DH. Even traces of gluten cause me to have skin reactions for weeks.

Hope it's not DH, but just in case...wanted you to know.

I may have to try this...I am eating a lot more eggs than I was before going gluten-free.

I think I have narrowed down my problem to vodka on Christmas Eve. At least I think I have something to attribute it to now. Ugh.

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spryng Rookie
spryng
Posted

I found too it may be the gluten-free soy sauce, some people have a reaction to the soy, yesterday I made chicken fried rice and started itching about an hour later and today I ate leftovers and it landed me straight in the bathroom about an hour later so I think it may be the soy in it, I'm going to watch it closely and see but you never know it could have been the egg in the fried rice as well.. sigh.. I'll have to try each by themselves I guess to know for sure.

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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