Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unformed Toddler Poop For Months (Background Included)

Bosmina323

Recommended Posts

Bosmina323 Newbie
Bosmina323
Posted

My daughter is 22 months and has been having mostly unformed poops since September. She eats a very limited diet right now and I am stumped as to what has been causing the different poop. She did have a long period of time with awesome formed poops.

My background: I was IgG tested shortly before I became pregnant with her and gluten/wheat/rye were between low and medium. The naturopath suggested limiting my gluten/wheat intake. I noticed that after not eating gluten and then eating gluten I was very tired and achey. Through my pregnancy I did eat gluten although not as much as previously.

A while after her birth I had a stool test done on myself because I was having weird floating poop (still do). It showed that I had possible fat malabsorption, needed more bifidus, and had a high enzyme level (the one that breaks up toxins forgetting the name right now). Currently I am not taking anything to help this.

Her background: Born at home and had oral vitamin K (in sesame oil) quite a few doses. At a week old she began having mucus and juice as her poop. This went on for a while and I took out the top 8. I was desperate for answers and so saw a chiro who did muscle testing. After cutting out more foods, nightshades were one, eventually things got better. Her poops no longer had mucus and after introducing some solid food became formed. Rolled off the diaper no problem, one or two wipes.

We moved slowly on the food because it seemed that many times she would get redness around her anus "allergy ring". This happened for sure with peas, baby food that had citric acid in it, at one point sweet potato, plus others that I am blanking on right now.

Fast forward to August of last year. We started her at a daycare since I needed to work more hours. I would send food with for her to eat. The daycare woman said that she would watch so that she didn't eat anyone elses food. And if she did I needed to know about it and keep track of it in the food diary, so if she did get a red bum I could maybe figure it out.

Around this same time I tried giving her first butter and then goat yogurt. They seemed to make her gassy. Also around this time her poops were changing and becoming more unformed and sour smelling and at one point there was mucus for a few days. I also introduced egg at this time (had cut it out for a week and seen no difference)

I stopped giving her the dairy. She still had unformed poops. Her last day at the daycare was Oct 14th. Since then she has had a handful of formed poops. They range from thick peanut butter to slimy explosions. At times they appear grainy and many times I use a ton of wipes to get her clean. However, she has not had a red bum for quite awhile.

I am still nursing her when we are together. I work 25 hours/week. When she had the awesome formed poops she was nursing much more than she does now.

Right now she eats: chicken, turkey, eggs, millet, tinkyada rice noodles, butternut squash, bananas, avacados, blueberries, apples, spinach, cinnamon, basil, oregano, parsley, garlic salt

In the past month we have added: black beans, raspberries, canned refried pinto beans (bearitos brand), strawberries. They appear to be fine. No red bum.

Most recently we have taken out quinoa flakes that she ate as a hot cereal (thinking cross contamination from bulk bin at our coop)

She used to eat a lot of puffed rice and millet. These were not certified gluten free.

I don't know if she reacts to gluten because I have never directly given it to her. I almost want to, to see what happens. But then again I don't.

I cannot figure it out and I am going crazy. And now I think maybe she's reacting to the bulk items that are cross contaminated (ie the quiona flakes, brown rice, millet?)

The dr has no idea and said it was toddler diarrhea.

We do give her probiotics, fish oil and vitamin D3.

She sleeps well.

She is on the small side around 21lbs?

Any ideas? Sorry it is so long.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I have no idea mate, but sounds similar to what we are going through, DS 2 is gluten free and lactose and isn't vomiting every day anymore - but man - he still has the worst, foul, mucousy huge disgusto poos. I am at a loss, we have cut out everything and reintroduce and nothing seems to change..let me know if you work it out - I'm watching this thread with interest.

StephanieL Enthusiast
StephanieL
Posted

Have you tried a really good probiotic?

My DS has many food allergies. He also has Celiac. Until he was off everything (dairy, egg, soy, peanut, tree nut, fish and shell fish) as well as gluten AND on a probiotic for about a month.

We are huge fans of Custom Probiotics. They sent us about a months worth to try before we purchased it from them. I ordered it after 3 days it changed things so much so fast!

kaity Apprentice
kaity
Posted

my son just turned three yesterday and i took him off gluten yesterday, he has never had well formed stool, except for one month when i took him off gluten but then his test results came back and the doctor said that he isnt celiac even though a doctor before him said that my son is celiac, so i put him back on, right now he is a three year old weighing 24 pounds with black patches under his eyes, big belly, he poops about 4 to 5 times a day really messy ones, i mean sometimes i have to change all his clothes becasue he dirties his pants, my 13 month old son has thicker stool than his three year old brother. i took him off gluten yesterday hopefully i will start seeing result with in a few weeks, i am so desperate, but my problem now is that he just started going to daycare, i am afraid if he eats something glutened over there... anyways i have my fingers crossed, and if i notice any imporovement i am going to keep him off gluten..

Bosmina323 Newbie
Bosmina323
Posted
  • Author

Have you tried a really good probiotic?

My DS has many food allergies. He also has Celiac. Until he was off everything (dairy, egg, soy, peanut, tree nut, fish and shell fish) as well as gluten AND on a probiotic for about a month.

We are huge fans of Custom Probiotics. They sent us about a months worth to try before we purchased it from them. I ordered it after 3 days it changed things so much so fast!

We have been giving her UAS Labs DDS Junior since she was an infant. She was muscle tested for it and we give her about 1 tsp per day. I have heard of the custom probiotics brand but we've never tried it. I might be interested if you can "try" it, before buying the whole bottle which is quite an upfront expense for us.

Right now we do give her eggs and I eat eggs (as she is still nursing). I do eat almond butter, but she does not.

I have cut both of these things out without a change, this was a while ago.

I am SO hesitant to take foods out as she already has a short list and eats so much. She is always hungry and snacking. Sometimes I am at a loss of what to feed feed her, and I don't want her to start denying certain foods [ as she already has done with broccoli and squash (most times)] because she has eaten so frequently.

lil'chefy Apprentice
lil'chefy
Posted

We have been giving her UAS Labs DDS Junior since she was an infant. She was muscle tested for it and we give her about 1 tsp per day. I have heard of the custom probiotics brand but we've never tried it. I might be interested if you can "try" it, before buying the whole bottle which is quite an upfront expense for us.

Right now we do give her eggs and I eat eggs (as she is still nursing). I do eat almond butter, but she does not.

I have cut both of these things out without a change, this was a while ago.

I am SO hesitant to take foods out as she already has a short list and eats so much. She is always hungry and snacking. Sometimes I am at a loss of what to feed feed her, and I don't want her to start denying certain foods [ as she already has done with broccoli and squash (most times)] because she has eaten so frequently.

I too am battling constant loose stool diarhea with my 25 month old son. He has even been hospitalized for dehydration twice! My son currently eats wheat and loves it, I might add. When he was in the hospital last time he had an endoscopy with 10 biopsies done. The dr. said no celiac. He also had the blood test. No celiac. There seems to be no rhyme or reason to his loose bm's. He no longer drinks cows milk, or soy, as I have noticed cow's milk makes diarrhea worse, and soy milk makes him constipated? He is drinking almond milk now, and taking gummy vites, along with florastor. After starting the florastor 7-8 months ago, I have noticed no difference, no change. I took him to an allergist: He is supposedly allergic to none of the main allergens. I hate this for him, as I am sure you do for your daughter. Potty training is something else when your kid poops 6-10 times a day. I have DH that is in remission, which is why I insisted on my son being tested for celiac, but to no avail! Good luck, I know I am no help, but at least we can commiserate.

Bosmina323 Newbie
Bosmina323
Posted
  • Author

I too am battling constant loose stool diarhea with my 25 month old son. He has even been hospitalized for dehydration twice! My son currently eats wheat and loves it, I might add. When he was in the hospital last time he had an endoscopy with 10 biopsies done. The dr. said no celiac. He also had the blood test. No celiac. There seems to be no rhyme or reason to his loose bm's. He no longer drinks cows milk, or soy, as I have noticed cow's milk makes diarrhea worse, and soy milk makes him constipated? He is drinking almond milk now, and taking gummy vites, along with florastor. After starting the florastor 7-8 months ago, I have noticed no difference, no change. I took him to an allergist: He is supposedly allergic to none of the main allergens. I hate this for him, as I am sure you do for your daughter. Potty training is something else when your kid poops 6-10 times a day. I have DH that is in remission, which is why I insisted on my son being tested for celiac, but to no avail! Good luck, I know I am no help, but at least we can commiserate.

It's so hard isn't it. That must have been quite scary to have your son hospitalized for dehydration.

I am really not looking forward to potty training at all. I hope I can get things figured out by the time she is 2.5 since that's when she will start at a preschool and they have to be potty trained to attend.

Thanks so much for your post. It's nice to know I am not alone.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beebs Enthusiast
beebs
Posted

I too am battling constant loose stool diarhea with my 25 month old son. He has even been hospitalized for dehydration twice! My son currently eats wheat and loves it, I might add. When he was in the hospital last time he had an endoscopy with 10 biopsies done. The dr. said no celiac. He also had the blood test. No celiac. There seems to be no rhyme or reason to his loose bm's. He no longer drinks cows milk, or soy, as I have noticed cow's milk makes diarrhea worse, and soy milk makes him constipated? He is drinking almond milk now, and taking gummy vites, along with florastor. After starting the florastor 7-8 months ago, I have noticed no difference, no change. I took him to an allergist: He is supposedly allergic to none of the main allergens. I hate this for him, as I am sure you do for your daughter. Potty training is something else when your kid poops 6-10 times a day. I have DH that is in remission, which is why I insisted on my son being tested for celiac, but to no avail! Good luck, I know I am no help, but at least we can commiserate.

Was there any sign of anything?? Inflammation/GERD etc

lil'chefy Apprentice
lil'chefy
Posted

Was there any sign of anything?? Inflammation/GERD etc

no. not really just inflammation

GFdad0110 Apprentice
GFdad0110
Posted

My son is now 22 months and We go through some of the things that the rest of u all talk about. We noticed within a couple weeks he couldn't tolerate cows milk because his bm were wet, yellow, and about 10-12 a day. So we switch him to a soy based formula a almost immediately it was normal. When we started solid foods we noticed he was intolerant to gluten again because of his bm witch were diarrhea and just have a different nasty smell. I am gluten intolerant so I was all ways on the look out for it. he seems to be ok on a gluten free/ lactose free diet ' but sometimes he gets a mystery loose bm? He started day care in september and of course our fears were if he eats something he shouldn't. The teachers are aware of it and i'm sure there was a couple of times where he did eat something, but what can we do. I grew up with it in a world that was a lot less aware of celiac disease and i made it. As a child I tested myself from time to time and I think thats only natural. No kid wants to be different and there were times when me and my friends would go to mcdonalds and I would be embarrassed because I had to take the bread off my burger. I'm sure my son will go through the same things i did. It sucks when your kid doesn't feel good and you don't know why. Nothing stresses me more. All I can say is read every label. Make sure the probiotics and every thing else you give your little one are free of the bad stuff. Hang in there. It will probably take some time to figure out what is tolerable for the diet. These forums are awesome for peace of mind to know your not alone out there.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.