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Colonoscopy


addis001

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addis001 Apprentice

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??


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kareng Grand Master

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

Ask him " Why not take some samples of my small intestine since you will already be there? Maybe I have more than one thing wrong? Couldn't hurt because you are already there." No arguing just point that out.

Gemini Experienced

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

The reason they do these invasive tests before blood work is, quite simply, they make a lot of money from them. It is always prudent to do blood work or other less invasive tests first but that's not the mind set of the medical community these days. It's up to the patient to request those first.

The remark he made about it not likely being Celiac because you wouldn't have so much pain is false, false, false!!!!! I had excruciating pain every time I ate and it was definitely Celiac. This is the usual stuff you get from non-informed doctors and there are many. I would ask for screening blood work first to see if that shows anything but it's likely he won't even do the right tests. It's very hard to find a good GI.....I never had success with them at all.

I wish you luck with all your testing..hope you find some answers.

Skylark Collaborator

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

False. Yes it's weird that he won't do bloodwork. I'm not sure I think much of this doctor. Crohn's is much rarer than celiac and IBS is a non-diagnosis.

Insist on celiac biopsies during your endoscopy, and he needs to take at least 7 or 8 samples, not the typical 2-4 many doctors use. If he won't biopsy, find another doctor because you don't want to go through it twice.

addis001 Apprentice

I thought so.. My gut told me this guy is not that great.. But he fit me in quick..

His bedside manner is horrible.. but his partner just left the practice and hasn't found an office yet, and he is much better. both my parents used him.. But he wouldn't be able to see me in a month or so...

The only thing that is keeping me with this horrible guy is that the nurses said that both guys are great. The best in our city. Just one has a horrible bedside manner and the other has a wonderful bedside manner.

I'll probably just transfer to the nicer one, once the procedure is done and I know a little more.

mushroom Proficient

When we are in pain and need help right away, we have a tendency to seek the first available appointment wikth anyone. The problem with this is that no one else wants to see them and that is why they have a slot available.:ph34r: The cardiologist I really wanted to see didn't have a slot for three months - she was worth waiting for (with remediating measures in the meantime).

Can you get your GP / PCP to run the complete blood panel for you and in the meantime try to find a GI who knows something about celiac disease and is not just out to take your money?

addis001 Apprentice

I wish I could do that. But I feel like something is really wrong, since i'm feeling so much pain on my right side. Even with the tramadole (spelling?), it relieved the pain one night, but the next night it did not help at all. But on the third and fourth night the diet is finally helping somewhat..And the procedure is in 7 days, they rushed it since i'm in pain, or I would have had to wait a month. i would feel bad cancelling after they squeezed me in...

I feel like people in pain do get stuck with duds sometimes because we will take anyone. But then if we go when we are just in a little bit of pain and complain, we get someone really awesome, and then the doctor can't find anything wrong. Then I feel stupid.... Its like the no-win scenario..


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mushroom Proficient

I know, then you just p**s them off, like why are you wasting my time??? :angry: There's not much winning in this world - we have to work for small victories :D That's why I suggested the blood work right away from your PCP - not instead of but in addition to whatever else you do. If you knew you were celiac, you would know that was probably what was causing your pain. And if the diet is helping, you need the blood work before the antibodies leave yhour system, which can start happening in a week. By two weeks they could be completely gone, and the confirming blood tests would require you to eat gluten for 2-3 months again :o A lot of doctors require both!! for a diagnosis.

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    • trents
    • Nikki03
      Ok Ty i have a dermatologist so I’ll also discuss this with her as well as the new GI when I get in ty again so very much!!! Hope I get answers soon I’m sick of being sick every single day not even able to get my normal task done I feel so horrible. Appreciate all the info!
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    • Nikki03
      Ty very helpful I’m in the process of getting in with a new gI doctor and will ask more about all that then and yes the rash is exactly like that. I have a half cousin with celiac but that’s it in my whole family and idk if that matters as I see it is hereditary and others say the the only in the family with it. Either way this was very much appreciated ty again. 
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