Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Aches (Thighs And Calves)


birdie22

Recommended Posts

birdie22 Enthusiast

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I usually find that for me it's from a lack of potassium. If you are ok with orange juice, potatoes and bananas those should help. They always make my muscles feel better especially after being glutened.

saintmaybe Collaborator

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.

Some ideas:

1. Very early rheumatoid arthritis.

2. A groin pull.

3. Trochanteric bursitis- bursitis of the hip.

4. Early osteoarthritis of the hip.

5. Very remote possibility of lyme.

A rheumy would be able to pin it down a little better. It depends on exactly where you feel the pain.

birdie22 Enthusiast

I do eat a lot of potatoes. At least once a week but not bananas. Could easily add those.

As for arthritis would I feel that other than in the joints? The ache is not at the joint specifically. Like when it aches in my calves.

Wanted to add that sometimes it is just one leg that aches (more often just the right). I never ache anywhere else.

AVR1962 Collaborator

If the muscle feels crapped add a potassium supplement, eating abanabs might not be enough. If the muscle feels hard kind of like you have been running, then try adding an Omega 3,6,9 supplement.

love2travel Mentor

I used to get leg cramps, mainly at night, and was told by my chronic pain doc to increase my magnesium to 900-1800 mg. He also recommended using magnesium glycinate as it is said a far higher percentage is absorbed than plain old magnesium. It took about a month at 900 mg before I felt a difference. But if you try this, be sure to increase magnesium gradually to avoid diarrhea.

zimmer Rookie

Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up.

I have similar pain that starts at the hip joint and runs down my leg. Achy. Sometimes tingling. Sometimes extending all the way to my toes. Acetaminophen / ibuprofen helps. It makes sleeping on my side difficult, and one side is worse than the other. It comes and goes, and has improved since going gluten-free. I find taking D3 has helped. Recently I added other vitamins/supplements - fish oil, cod liver oil, potassium, calcium, multivitamin. When I take all of those the pain goes away. Maybe like other posters said it's the potassium that helps? When I skip a day or two of taking the vits/supps then the pain creeps back in.

I'm thinking of seeing a rheumotologist (sp?) but am afraid of not finding one that is educated re celiac. I'm reluctant because I can help the symptoms and it doesn't really interfere with my life. It's mainly a nuisance and a frustration at this point, and I usually grin and bear it. I'm not sure what to do unless/until it gets worse.

I'm sorry you have this problem, but it's nice to know I'm not alone...! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



smsm Contributor

I have a twin sister - both of us have suffered from back pain for years and just figured it was they way we were. She started getting the hip pain/thigh pain that you are describing and went to an arthritis specialist out of desperation about a year ago. He tested her for arthritis and came up neg. and he just started testing her for everything under the sun to figure out the source of her pain (no one had ever done anything but dismiss our pain before this). Sure enough, celiac was the answer - this is how we found out. After going gluten-free, the pain gradually has disappeared but when I do get glutened, now I also get the thigh pain (it is one of my first symptoms!). While it may be something else, I wanted you to know that thigh/leg/knee/back/neck/muscular pain is my glutened reaction and I have been for many other things. Ibprofen (I don't think I spelled that right) helps a little, but I just have to wait - sometimes up to 4 weeks - for the inflammation to subside.

birdie22 Enthusiast

Thank you all for your continued suggestions. It is helpful. It is so hard to describe the ache. It isn't a cramp or knot or tightness or burning or even pain. Just a dull, persistent ache deep in the thigh. If you asked me to, I couldn't even pinpoint for you exactly where it aches, just that it does, and that more often than not it seems to start at the crease where my leg meets my pelvis. It doesn't hurt up at the hip bone, nor the groin.

I've wondered about restless leg, though it doesn't wake me up at night or keep me from falling asleep.

I've upped my potassium intake this week and will consider if I need to add any other supplements to the mix.

Metoo Enthusiast

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

love2travel Mentor

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

I have IT band syndrome as well and it causes all sorts of problems with my hips and legs regularly. OUCH!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

    5. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748

    Kundrey
    Newest Member
    Kundrey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.