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Daughter's Test Results Are In...opinions?

Aly1

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Aly1 Contributor
Aly1
Posted

So I heard back from our pediatrician this morning - apparently all of my daughter's tests (including ttg) were normal, except for one test, the anti-gliadin test, which was abnormal. But he says that since all her other tests were fine he views that one as a false positive. Does his opinion ring true / make sense to you guys here? Sounds reasonable but I am not very knowledgeable on testing so I thought I'd ask the forum.

I am going to try her gluten-free anyway, that was always my plan since I get so ill on gluten but all my tests are normal...

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Metoo Enthusiast
Metoo
Posted

So I heard back from our pediatrician this morning - apparently all of my daughter's tests (including ttg) were normal, except for one test, the anti-gliadin test, which was abnormal. But he says that since all her other tests were fine he views that one as a false positive. Does his opinion ring true / make sense to you guys here? Sounds reasonable but I am not very knowledgeable on testing so I thought I'd ask the forum.

I am going to try her gluten-free anyway, that was always my plan since I get so ill on gluten but all my tests are normal...

I am not great at reading these test results...but here is just a brief excerpt

"

Aly1 Contributor
Aly1
Posted
  • Author

Thanks that's interesting, I will research it further!

pricklypear1971 Community Regular
pricklypear1971
Posted

Find a new Pediatrician.

Seriously.

For the reasons mentioned above, for the reason that if any Celiac test comes back + in a child its a huge red flag.... And most of all because the child's mother is "mysteriously" ill with something that appears to be gluten related.

I mean REALLY???

What does he plan on doing with that "false positive"? Retesting? Ignore it? Look for another cause???

REALLY??????

Is there a local Celiac group near you? Call or email and ask for a Celiac friendly doc.

Aly1 Contributor
Aly1
Posted
  • Author

I took your advice and called the local support group for the name of a celiac-oriented pediatrician. They gave me the name of a pediatric GI that they recommend highly.

I can't help but think that a GI will be really scope-oriented and I'm not ready to put her through that procedure...do you think I'm right that this doc will push that? Or am I just being biased against GI's?

Skylark Collaborator
Skylark
Posted

You need to know if it's the old anti-gliadin or the new deamidated gliadin peptide (DGP). They can both be labeled "anti gliadin", though the newer one is often labeled "gliadin peptide". The new DGP test is very sensitive and specific for celiac and sometimes it's the only positive test. The OLD anti-gliadin isn't a very good predictor of damage on biopsy like TTG, but a lot of folks with a positive test still feel better off gluten.

pricklypear1971 Community Regular
pricklypear1971
Posted

I took your advice and called the local support group for the name of a celiac-oriented pediatrician. They gave me the name of a pediatric GI that they recommend highly.

I can't help but think that a GI will be really scope-oriented and I'm not ready to put her through that procedure...do you think I'm right that this doc will push that? Or am I just being biased against GI's?

I think you should go to an appointment before you make up your mind.

I struggle with the same question.

Things to consider: 1) If you take her gluten-free can she go through a gluten challenge later if needed? Most people who have a gluten issue just can't do it. 2) Will a doctor dx her Celiac or NCGI without it? 3) How badly do you need the dx for schools? Hint - most parents need it, and especially for college accomodations.

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Aly1 Contributor
Aly1
Posted
  • Author

Good things for us to consider. I am waiting to see the test results and find out exactly which ones were used. There are no easy answers though are there! :/

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    • knitty kitty
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