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Symptoms & Questions


sora

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sora Community Regular

I'll start this by saying the only thing I know for sure is that I am allergic to wheat. And this is going to be long.

I have to wait until end of June for testing and to get any official diagnosis.

I have an appointment next week with my Doctor and was hoping for some suggestions as to what to go over with her. (She is very good).

Since being on this board I am seeing a lot of the same problems in my past to what I see here with many others. I can not eat gluten so will not have the celiac test.

Symptons I have had and some I still have.

Migraines entire life

Eye irritation, blurry vision

foot cramps, toes

numb fingers, toes

Diagnosed Carpel Tunnel

Swollen fingers at the slightest use, right index finger always swollen

sore finger joints, right hand mostly

Very bad teeth problems at a very early age

low blood pressure

skinny with big pot belly

early menopause After 2nd child at 38

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, left side of head (no rashes)

Never seem to be comfortable, either cold or too hot, heat flashes

sleep apnea, restless leg, constant waking

sometimes when laying down I feel like my head weighs 1000 pounds and my pillow feels like cast iron. :ph34r:

also had a lot of things that I put down to aging like memory loss, dry skin etc.

Last 5 or so years less and less tolerant of high fiber foods.

This one is curious, sometimes, not often, if I try to swallow too large a bite of food (doesn't have to be too big) It get partway down and it feels like a chunk of glass. Very sharp and will bring tears to my eyes. This has only happened about three or four times a year. I mentioned this to my sister once and she said "Oh, that runs in the family, we have a narrow esophagus." I passed it off at the time as it didn't happen often. Then my father died from esophagus cancer and last year my brother had the same thing and had a surgery and so far so good. I do not have close relations with my family but I am trying to find out more info on this.

I have been gluten-free for 3 months now and have new symptoms. off and on acid reflux, lots of belly rumbling but I am putting this down to being new and not completely having it all sorted out yet re vitamins, learning intolerances etc.

Any thoughts anyone? Thanks.


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Metoo Enthusiast

I'll start this by saying the only thing I know for sure is that I am allergic to wheat. And this is going to be long.

I have to wait until end of June for testing and to get any official diagnosis.

I have an appointment next week with my Doctor and was hoping for some suggestions as to what to go over with her. (She is very good).

Since being on this board I am seeing a lot of the same problems in my past to what I see here with many others. I can not eat gluten so will not have the celiac test.

Symptons I have had and some I still have.

Migraines entire life

Eye irritation, blurry vision

foot cramps, toes

numb fingers, toes

Diagnosed Carpel Tunnel

Swollen fingers at the slightest use, right index finger always swollen

sore finger joints, right hand mostly

Very bad teeth problems at a very early age

low blood pressure

skinny with big pot belly

early menopause After 2nd child at 38

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, left side of head (no rashes)

Never seem to be comfortable, either cold or too hot, heat flashes

sleep apnea, restless leg, constant waking

sometimes when laying down I feel like my head weighs 1000 pounds and my pillow feels like cast iron. :ph34r:

also had a lot of things that I put down to aging like memory loss, dry skin etc.

Last 5 or so years less and less tolerant of high fiber foods.

This one is curious, sometimes, not often, if I try to swallow too large a bite of food (doesn't have to be too big) It get partway down and it feels like a chunk of glass. Very sharp and will bring tears to my eyes. This has only happened about three or four times a year. I mentioned this to my sister once and she said "Oh, that runs in the family, we have a narrow esophagus." I passed it off at the time as it didn't happen often. Then my father died from esophagus cancer and last year my brother had the same thing and had a surgery and so far so good. I do not have close relations with my family but I am trying to find out more info on this.

I have been gluten-free for 3 months now and have new symptoms. off and on acid reflux, lots of belly rumbling but I am putting this down to being new and not completely having it all sorted out yet re vitamins, learning intolerances etc.

Any thoughts anyone? Thanks.

As far as the new symptoms belly rumbling...etc. I am at 3 months gluten free also. I have found I have had to give up eggs in the last month and cut down on raw dairy. I have had new skin trouble, and I have had to be super careful about gluten, vitamins, face moisturizer. So at least to me it seems normal to have new symptoms. Once I have been more dilligent about those things, things seem to calm down again.

jeanzdyn Apprentice

These are most of my symptoms, the major noticable ones at least:

Migraines in last 5 years

Eye irritation, dryness, itching

foot cramps, toes

numbness in fingers and toes

Swollen finger joints

sore finger joints

burning pain in shoulder joints

burning sensation in back of throat with post nasal drip

Very bad tooth decay starting at an early age

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, upper back(no rashes)

possible sleep apnea, waking too early

gastrointestinal discomfort much of the last 5 months, before frequent distress

dry hair, a lot of breakage

stomach and intestinal rumbling

also had a lot of things that I put down to aging like memory loss, dry skin

For many years I have had intestinal "rumbling", other people have even heard the rumble or gurgle. I used to think that it was either something wrong with my digestive organs or some kind of food allergies.

I was diagnosed with celiac disease about 2 months ago.

I don't know about your newer symptoms, as I have only been gluten-free a short time. Have you talked to your doctor?

sora Community Regular

These are most of my symptoms, the major noticable ones at least:

Migraines in last 5 years

Eye irritation, dryness, itching

foot cramps, toes

numbness in fingers and toes

Swollen finger joints

sore finger joints

burning pain in shoulder joints

burning sensation in back of throat with post nasal drip

Very bad tooth decay starting at an early age

sensitivities all my life, soaps, scents etc

burning itch, outside below ankle bones, upper back(no rashes)

possible sleep apnea, waking too early

gastrointestinal discomfort much of the last 5 months, before frequent distress

dry hair, a lot of breakage

stomach and intestinal rumbling

also had a lot of things that I put down to aging like memory loss, dry skin

For many years I have had intestinal "rumbling", other people have even heard the rumble or gurgle. I used to think that it was either something wrong with my digestive organs or some kind of food allergies.

I was diagnosed with celiac disease about 2 months ago.

I don't know about your newer symptoms, as I have only been gluten-free a short time. Have you talked to your doctor?

I have another doc appt. next week.

I forgot about my back itch. That has gone since going gluten-free and my head itch/burn has finally eased off since changing shampoo, conditioner and hair gel. My head will itch all over if get CCed or have a wheat reaction but it will go away after a few days.

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    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
    • trents
      Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
    • Scott Adams
      Your doctor's recommendation to wait three months is very sound and aligns with general advice for celiac disease. While the acute GI symptoms resolve quickly, the autoimmune response and intestinal inflammation can linger, impairing nutrient absorption crucial for early fetal development. This three-month window allows your body to calm the immune response and for your gut to fully heal, ensuring you are in the best possible nutritional health for conception and pregnancy. In the meantime, focus on hydrating, eating nourishing, easily digestible foods, and resting—your body needs time to recover. It's a frustrating delay, but it's the best step for a healthy pregnancy.
    • Celiacpartner
      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms. 
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