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Poll: Celiac's Linked To...


hexon

  

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hexon Rookie

I'm starting this poll because my curiosity was sparked by another thread. Like many of you I have gluten intolerance. Unfortunately I don't know if this is related to Celiac's disease because because I refuse to endure the gluten challenge to be tested further. Along my journey to adulthood I've experienced appendicitis and multiple kidney stones (beginning from age 8). I was also diagnosed with C. diff which was cured with Flagyl treatment a few years ago. However, with the C. diff the doctor was very curious as to how I developed it without prior antibiotic use, which is generally the causative agent for C. diff infections. I've read a few research papers from PubMed on the relationship between a few of these, but didn't find much solid data. So the scientific mind that I am just wanted to see if any of the rest of you have experience the following problems.


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burdee Enthusiast

I'm starting this poll because my curiosity was sparked by another thread. Like many of you I have gluten intolerance. Unfortunately I don't know if this is related to Celiac's disease because because I refuse to endure the gluten challenge to be tested further. Along my journey to adulthood I've experienced appendicitis and multiple kidney stones (beginning from age 8). I was also diagnosed with C. diff which was cured with Flagyl treatment a few years ago. However, with the C. diff the doctor was very curious as to how I developed it without prior antibiotic use, which is generally the causative agent for C. diff infections. I've read a few research papers from PubMed on the relationship between a few of these, but didn't find much solid data. So the scientific mind that I am just wanted to see if any of the rest of you have experience the following problems.

I had c-diff after taking antiparasitic drug alinia for cryptosporidia and antibiotic herbal supplement caprylic acid for klebsiella and later enterobacter cloacae over a 3 year period. So my good bacteria were very depleted despite taking a high dose probiotic after each treatment. My doc intially treated my c-diff with flagyl, but c-diff recurred, probably because I'd had c-diff for several months before my doc agreed to test me (with stool test). So I had more than a 'mild' c-diff infection, which flagyl usually kills off. Even on vancomycin I continued to have c-diff recurrences after treatment ended until I found through online research a tapered/pulse dose treatment study. I tried that approach with vanco and eliminated my c-diff spores. I've had 3 'clean' (no c-diff) stool test results since I used the tapered/pulse dose approach.

AVR1962 Collaborator

I have had kidney stone issues for 26 years now. I was told by doc that there is nothing a person can do for the type of stone I have, he said when he sees this is is inherited. I have 2 8mm stones lodged high in my left kidney in a dry pocket where liquids do not pass so even if they were to break them up, they would not flush out. They are in a difficult spot to extract so doc has recommended they be left and have been there for over 20 years. I have to stay hydrated and someones for what seems no reason, I will get these waves of pain which make me sick to my stomach...no infection and no stones passing, kidneys themselves are helthy so the only thing I can conclude is there is something with the lodged stones.

hexon Rookie

I have had kidney stone issues for 26 years now. I was told by doc that there is nothing a person can do for the type of stone I have, he said when he sees this is is inherited. I have 2 8mm stones lodged high in my left kidney in a dry pocket where liquids do not pass so even if they were to break them up, they would not flush out. They are in a difficult spot to extract so doc has recommended they be left and have been there for over 20 years. I have to stay hydrated and someones for what seems no reason, I will get these waves of pain which make me sick to my stomach...no infection and no stones passing, kidneys themselves are helthy so the only thing I can conclude is there is something with the lodged stones.

Yeah, my father also had a few kidney stones when he was younger. And my cousin on my dad's side also has a gluten intolerance. Thanks to those that have voted so far!

beebs Enthusiast

What is C.Diff??

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    • RMJ
      Reference range 0.00 to 10.00 means that within that range is normal, so not celiac. There are other antibodies that can be present in celiac disease and they don’t all have to be positive to have celiac.  I’m sure someone else will post a link to an article describing them! Plus, if you are IgA deficient the celiac IgA tests won’t be accurate.
    • cristiana
      Great to have another UK person on the forum!   Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana  
    • Lori Lavell
      Julia530 - I have the same gene structure and most of the symptoms you have experienced plus more.....I agree with you whole heartedly!! There are approximately 10 (NOT TWO) genes that can predispose a person to having Celiac Disease. I read in Pub Med that HLA DQA1:05  can result in Celiac Disease in approximately 1 in 875 people. While it is obviously more rare it is NOT BENIGN and should not go unnoticed. Go get the book "NO GRAIN, NO PAIN" and I highly suggest you read it cover to cover. It is written by a Chiropractor who quit his medical education when the VA wouldn't allow him to treat the Veterans with debilitating arthritis with a grain free diet. I have been grain free for over 10 years now.....the facts are we are being lied to! There is a form or gluten in every protein in every grain on the planet of which there are 1000 or more. Just because all they are testing for is the Gliadin in wheat is no excuse to report only partial facts. I became a Certified Function Nutrition Counselor who specializes in Celiac Disease other Autoimmune conditions. Lavell Krueger, CFNC - lavellnutrition    aol
    • lookingforanswersone
      Hi, just looked and it doesn't list that. Says : Tissue Transglutaminase (IgA)  0.30 (results - negative) U/ml (Units ) Reference range 0.00 - 10.00
    • Suze046
      Hey! Thanks and yes of course I’m posting from England. Thanks for the info 😊my count has been up and down for over a year and my platelets are slightly low too but have actually just increased again.
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