Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions Regarding Supplements


basilicious

Recommended Posts

basilicious Explorer

Hi all,

I am waiting for my endo/biopsy results, and I have been researching ways to promote healing in my gut. (At a minimum, I have intestinal permeability and gluten sensitivity, so going gluten-free for six months is a definite.)

Dr. Weil recommends the following as a natural treatment for those with celiac (link is: Open Original Shared Link):

"In addition to avoiding gluten, Dr. Weil recommends treating the leaky gut symptoms often associated with the body's response to these proteins. Moderate use, if not avoidance, of alcohol and non-steroidal anti-inflammatories (like Ibuprofen and Naproxen) is important. Also, make sure you're eating plenty of fiber. Take a probiotic supplement containing Lactobacillus GG or Bacillus coagulens. And follow an anti-inflammatory diet, including essential fatty acids like fish oil and GLA, and minus any gluten-containing foods, of course.

In addition, you might try supplementing with glutamine, an amino acid that helps maintain intestinal metabolism and function and seems to benefit patients who have had intestinal injury from serious insults such as chemotherapy and radiation."

My question is this: has anyone taken glutamine? If so, have you noticed any benefits? I'm a little nervous about taking it, because I'm afraid that I may have celiac-related liver damage, and the packaging says that those with cirrhosis of the liver should not take it. Now, there's no way I have cirrhosis of the liver, but since I'm concerned that intestinal permeability leads to liver damage, I'm curious about anyone's take on this or their experience.

Also, does anyone have any thoughts on taking gluten enzymes? While I realize they are in no way a substitute for a gluten-free diet, since I'm coming off the gluten challenge, I'm curious if they might assist with digestion of the lingering gluten in my system. Also, it seems like those with celiac use enzymes to assist when they eat out and fear they may have been glutened. Any thoughts on that?

Thank you so much for any insight you may be able to offer!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi all,

I am waiting for my endo/biopsy results, and I have been researching ways to promote healing in my gut. (At a minimum, I have intestinal permeability and gluten sensitivity, so going gluten-free for six months is a definite.)

Dr. Weil recommends the following as a natural treatment for those with celiac (link is: Open Original Shared Link):

"In addition to avoiding gluten, Dr. Weil recommends treating the leaky gut symptoms often associated with the body's response to these proteins. Moderate use, if not avoidance, of alcohol and non-steroidal anti-inflammatories (like Ibuprofen and Naproxen) is important. Also, make sure you're eating plenty of fiber. Take a probiotic supplement containing Lactobacillus GG or Bacillus coagulens. And follow an anti-inflammatory diet, including essential fatty acids like fish oil and GLA, and minus any gluten-containing foods, of course.

In addition, you might try supplementing with glutamine, an amino acid that helps maintain intestinal metabolism and function and seems to benefit patients who have had intestinal injury from serious insults such as chemotherapy and radiation."

My question is this: has anyone taken glutamine? If so, have you noticed any benefits? I'm a little nervous about taking it, because I'm afraid that I may have celiac-related liver damage, and the packaging says that those with cirrhosis of the liver should not take it. Now, there's no way I have cirrhosis of the liver, but since I'm concerned that intestinal permeability leads to liver damage, I'm curious about anyone's take on this or their experience.

Also, does anyone have any thoughts on taking gluten enzymes? While I realize they are in no way a substitute for a gluten-free diet, since I'm coming off the gluten challenge, I'm curious if they might assist with digestion of the lingering gluten in my system. Also, it seems like those with celiac use enzymes to assist when they eat out and fear they may have been glutened. Any thoughts on that?

Thank you so much for any insight you may be able to offer!

I don't know if this will add insight or not, but this is my experience. I bought Solgar brand L-Glutamine 500 mg tabs shortly after I went gluten-free. I've used them sporadically, even though I'm diligent about taking my calcium and Multi-V. I started taking them more regularly in the past few months.

I've had a ton of blood work done in the past two years. Some of the results were pretty whacky when I first went gluten-free. Everything seemeed to simmer down with time with the diet. (For awhile there, I got used to doctors referring me to more and more specialists based on my blood work.

I just picked up results from a routine blood draw ordered by my PCP (CBC with Dif and Basic Metabolic Panel) and my AST was off the chart along with another result. I googled a question about the results and it came up with liver disease! The only other possible explanation, apparently, is being allergic to the medications you're on. (I'm not on any.) I didn't get hyper about the results because nobody called me from the doctor's office telling me I had to go to a nephrologist, and I'm SO used to having weird blood test results.

For me, I'm axing the L-Glutamine. My experience could be totally different than your experience though.

The bottle says "Natural Muscle Food, Promotes GI Health". Argg.

Thanks for your post, I'll take the L-Glutamine 500 mg tabs with me to my next visit with the Dr. She'll notice the elevated levels and be surprised nobody called me. (That's health care where I live.)

Thank you for your post. I think I learned more from you than you did from me. In the event you want to try some, P.M. me, I'll send them on, but I think your initial qualms were well justified.

basilicious Explorer

Thanks for sharing your experience, Marilyn. I previously tried asking my gastro about glutamine, and she said I was on my own since it's not FDA regulated. Not terribly surprising but still disappointing.

sa1937 Community Regular

I did take one bottle of Bluebonnet L-Glutamine (500 mg) and frankly couldn't tell if it made a difference or not.

One thing that did help a lot was a probiotic, specifically Culturelle Digestive Health, which contains 10 billion Lactobacillus GG, which I can buy at my local Wal-Mart. I started taking it last fall when I was 18 months gluten-free as I was still having issues at that time. The difference it made was significant.

basilicious Explorer

Thanks a lot, Sylvia. I am on liquid acidophilus right now but need to explore other probiotic options. I will definitely check out Culturelle!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to suek54's topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - suek54 posted a topic in Dermatitis Herpetiformis
      3

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - xxnonamexx replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Healthy Gluten Free Foods low sugar that you found?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,247
    • Most Online (within 30 mins)
      7,748

    Noisette
    Newest Member
    Noisette
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
    • trents
      Welcome to the the celiac.com community, @suek54! Is the Dapsone getting the rash under control? Are you practicing a gluten free diet yet? The only known cause for dermatitis herpetiformis is celiac disease.
    • suek54
      Hi Im new to this game, so bear with me.  May through to December last year totally miserable, covered literally head to toe in the worst rash ever, itching like I just cant explain. After seven different medics told me just to "keep putting the cream on, whatever it is will go in the end" finally one lovely doc diagnosed dermatitis herpetiformis. Biopsy 6 weeks ago and Dapsone, which I seem to be tolerating OK so far.  The NHS is in permanent backlog so no result yet but just wanted to say hello to anyone else with this maddening condition.
    • xxnonamexx
      I know gluten free proteins like eggs and yogurt but nuts especially trail mixes are tricky as they are hard to find certified gluten free trail mixes especially w/o added sugars. I agree subscription boxes are hit or miss I think I have found RXBar with simple ingredients no added sugars gluten-free might be a great protein bar.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.