Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synvisc-1 Reaction

kenlove

By kenlove
in Related Issues & Disorders

Recommended Posts

kenlove Rising Star
kenlove
Posted

ANyway have experience with Synvisk-1? This is the injectable medicine made from rooster combs that helps replace cartilage in the knee. I had the injection and had an immediate allergic reaction and passed out for over an hour.

The next day I started breaking out in the worse case of DH i've ever had, all over the shoulders and neck.

The company says there is no gluten in the medicine although they dont know what the roosters are fed.

Strange to say the least.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Daura Damm

Celiac.com Sponsor (A8-M):
Lakefront Brewery

ravenwoodglass Mentor
ravenwoodglass
Posted

That sounds awful. I hope the DH resolves for you soon. Meanwhile here is the FDA site link to report adverse reactions to drugs.

Open Original Shared Link

IrishHeart Veteran
IrishHeart
Posted

I read about this stuff when I was considering it myself for OA.

It says if you have adverse reactions to "feathers, birds, poultry or eggs" you may not wish to use the product.

Since I have a problem with eggs, I went for Hyaluronic Acid, but not the kind made from rooster combs.

Also, rashes are reported in some users, they state.

Sorry you got such a reaction! :(

Takala Enthusiast
Takala
Posted

Oh, wow. Glad you woke up out of that !

Have a look at this blog, especially the 2009 archives page:

Open Original Shared Link

Side effects from this stuff are more common than the regulatory body is letting on. :blink:

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I had the injections several years ago, before my DX. I didn't have any bad reactions. Back then they did the injections into my knees once a week for 5 weeks.

Since then..I've reacted to Eggland's Best eggs because of the soy that they feed the birds. If soy could come through to the eggs..I don't think it's a far stretch for the feed to affect the chicken?

I'm so sorry you had such a bad reaction. It's miserable!

AND I found the shots really helped my knees.

kenlove Rising Star
kenlove
Posted
  • Author

thanks, got the link

That sounds awful. I hope the DH resolves for you soon. Meanwhile here is the FDA site link to report adverse reactions to drugs.

Open Original Shared Link

kenlove Rising Star
kenlove
Posted
  • Author

Thanks much, Other the celiac I really dont have other problems although I am vegan and have not had eggs or any other animal protein in a few years. I'll have to do some research when I have time

I read about this stuff when I was considering it myself for OA.

It says if you have adverse reactions to "feathers, birds, poultry or eggs" you may not wish to use the product.

Since I have a problem with eggs, I went for Hyaluronic Acid, but not the kind made from rooster combs.

Also, rashes are reported in some users, they state.

Sorry you got such a reaction! :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
GliadinX

Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.

kenlove Rising Star
kenlove
Posted
  • Author

wow - -very interesting. i sent the lin to my kaiser doc. 4 different friends have been getting the shots with no reaction but then i'm the only celiac

Oh, wow. Glad you woke up out of that !

Have a look at this blog, especially the 2009 archives page:

Open Original Shared Link

Side effects from this stuff are more common than the regulatory body is letting on. :blink:

kenlove Rising Star
kenlove
Posted
  • Author

when i did check into the content, the company mentioned that there could be gluten in the chicken feed.

my knee is a little better but I will never get the shot again.

take care

I had the injections several years ago, before my DX. I didn't have any bad reactions. Back then they did the injections into my knees once a week for 5 weeks.

Since then..I've reacted to Eggland's Best eggs because of the soy that they feed the birds. If soy could come through to the eggs..I don't think it's a far stretch for the feed to affect the chicken?

I'm so sorry you had such a bad reaction. It's miserable!

AND I found the shots really helped my knees.

mushroom Proficient
mushroom
Posted

Glad your knee is improving, Ken. Doc wanted to give it to me but after the awful reaction I had to cortisone I declined. I have a partial knee replacement. :) It has been great :D

kenlove Rising Star
kenlove
Posted
  • Author

they never mentioned the word partial to me-- i'll ask. the cortisone didnt help me at all but it has in the past with other problems although come to think of it I passed out after the third shot in the foot with it. i'll never try this stuff again!

Glad your knee is improving, Ken. Doc wanted to give it to me but after the awful reaction I had to cortisone I declined. I have a partial knee replacement. :) It has been great :D

mushroom Proficient
mushroom
Posted

they never mentioned the word partial to me-- i'll ask. the cortisone didnt help me at all but it has in the past with other problems although come to think of it I passed out after the third shot in the foot with it. i'll never try this stuff again!

I was able to have only a partial replacement (on the medial side) because that was the onlly side where the cartilage was worn away. My damage was caused by a sacroiliac problem :(, not osteoarthritis, per se. It was a real "wear and tear" injry :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Food for Life
    Food for Life


    Celiac.com Sponsors (A17-M):

    Holidaily Brewing Co.


  • Recent Activity

    1. DanteZaffar
      - DanteZaffar replied to MelissaClinPsyD's topic in Coping with Celiac Disease
      5

      Refractory Coeliac Disease research to reduce anxiety

      Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease.
    2. trents
      - trents replied to HeloIP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

      Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific...
    3. HeloIP
      - HeloIP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EGD with flatten mucosa

      For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afrai...
    4. Joel K
      - Joel K posted a topic in Meet Up Room
      0

      Caribbean Sailing with Celiac

      Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year. Most likely in the US and/or British Virgin Islands, though other islands may also be considered. Doesn't have to be the same people and doesn't have to be only...
    5. Joel K
      - Joel K posted a topic in Board/Forum Technical Help
      0

      Forum Rules

      Greetings! I'd like to post a request for interest in an event I'd like to set up. But before I do, I'm wondering what the rules for posting in the forum are. Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
  • Celiac.com Sponsor (A19):
    Food for Life


  • Member Statistics

    • Total Members
      129,493
    • Most Online (within 30 mins)
      7,748
    Miela
    Newest Member
    Miela
    Joined
  • Celiac.com Sponsor (A20):
    NutHouse! Granola Co.

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    NutHouse! Granola Co.


  • Upcoming Events

  • Posts

    • DanteZaffar
      Refractory Coeliac Disease research to reduce anxiety

      By DanteZaffar · Posted

      Does this require proof of having refractory celiac? I’ve been gluten free for a couple months but still feel miserable but I’m not sure if its refractory celiac disease.
    • trents
      EGD with flatten mucosa

      By trents · Posted

      Welcome to the forum, @HeloIP! There are some other diseases, some medications (NSAIDs, olmesartan) and even some other food protein intolerances (the dairy protein casein) that can cause flattened villi in the duodenum but the most likely cause is celiac disease. Your GI doc may want to run some blood work to check for antibodies that are specific to celiac disease as a follow-up so, in case he/she does, don't start a gluten-free diet until that blood draw is done.
    • HeloIP
      EGD with flatten mucosa

      By HeloIP · Posted

      For years, I’ve had intermittent gut symptoms that included abdominal pain, fatigue, bloating, and gas. I did not have significant diarrhea. A few days ago, I had a EGD that revealed gastritis and mucosal flattening in the duodenum. I’m waiting on the results of the biopsy now. I feel that celiac disease is what has been my problem for years. I’m almost afraid they’ll tell me the test is negative and then I’ll be right back where I started. Any insights on these findings would be helpful. Thank you.
    • Joel K
      Caribbean Sailing with Celiac

      By Joel K · Posted

      Greetings! I would love to get a group going with fellow sailors with celiac disease who would be interested in chartering a sailing yacht down in the Caribbean perhaps a few times a year.  Most likely in the US and/or British Virgin Islands, though other islands may also be considered.  Doesn't have to be the same people and doesn't have to be only experienced sailors.  But everybody would have to be willing to share in the charter, provisioning, and running expenses, in participating in sailing the yacht, and sharing in the work of living on board for a week or two at a time.  This would be a good opportunity to travel safely, foodwise, as all food on board would be provisioned as gluten free.  Of course, I realize many with celiac disease concurrently have additional food interaction issues and we would have to plan around these as well.  But the main concern and commonality among all hands is celiac disease.  We might have some meals ashore as well, and so planning the restaurants out would certainly be a part of our discussions on the trip. The modern yachts will range from 40 to 60 foot long and we'll have berths for six to ten persons, including myself.  Since chartering is such a big deal in the Caribbean, we will need to reserve a boat well in advance.  So firm committment to the venture would need to take place early once the process begins -- often up to a year in advance.  I will have more details once we get some interest. I am a retired ship captain after 48 years at sea, having sailed also in many traditional and modern schooners and a few yachts.  I last chartered a 52 foot sloop out of Road Town, Tortola, in the BVI in April 2025, and am course certified in ASA-101, 103, & 104.  My USCG Master license for Oceans was finally retired in 2022 and no longer active.  I live in Manchester, New Hampshire and work as a Myoskeletal Alignment Therapist with a clinic in Bedford, NH. If you have any interest in chartering with me, please let me know.
    • Joel K
      Forum Rules

      By Joel K · Posted

      Greetings! I'd like to post a request for interest in an event I'd like to set up.  But before I do, I'm wondering what the rules for posting in the forum are.  Is there somewhere on this site where the rules for posting in the forum or in meetup groups are located? Thanks in advance.
×
×
  • Create New...