Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed - Not Sure Where To Begin


AlexS

Recommended Posts

AlexS Apprentice

Hi, I was just diagnosed today with blood tests and I don't even know where to begin! I've been looking up which foods to avoid, and pretty much all of my regular diet contains gluten. The problem is that I live in a small island in the Caribbean, and we don't really have much gluten-free food options here. I can find gluten-free flour to make my own bread, gluten-free cereals, gluten-free pancake mix, and that's about it. Restaurants here aren't really gluten-free friendly either. I can order some gluten-free stuff online and ship them here, but that will take a while.

So my question is two-fold:

Do you have any recommendations for what basics I should order online?

What can I eat in the meantime? I'm don't even know what to take to work for lunch tomorrow!

Also, one other question - which seasonings do I need to avoid? I've been having trouble finding answers on that.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome!

Plain meats, fruits, and vegetables are naturally gluten-free. Rice and potatoes are gluten-free. Dairy products (cheese, milk, butter) are gluten-free unless a flavor is added. Even then, most flavorings are gluten-free.

Look for processed foods from large multinational corporations that will clearly disclose gluten. A partial list includes Kraft, General Mills, Unilever and Con Agra. Read the labels on them. If you don't see wheat, rye, barley or oats named, then the product does not contain gluten.

Ginger7 Rookie

Keep it simple, rice and plain meat are great options. By just keeping foods simple, you can avoid gluten without spending a ton of money. I found that by starting out simple, I could adjust and slowly explore other foods without getting overwhelmed.

Lisa Mentor

Hey Alex! And welcome...

Initially I would keep things simple. Meats, fish, fresh veggies, fruit, potatoes and rice for a couple of weeks. Salt and pepper for seasoning or whole/natural herbs. And gradually add new items one at a time.

Udi products are pretty good. I will find the link and post below.

It's often recommended to eliminate dairy for a few weeks. It can cause the same gluten-type symptoms. When some healing has taken place, most often times it can be successfully reintroduced.

Check you shampoos, lip treatments, meds for gluten ingredients or anything that can find it's way into your mouth.

I would buy a new toaster and be cautious about shared condiments with other non gluten intolerant peeps in your home.

There is a great deal of information here. I welcome you to take a walk around. :D

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Insomnia help

    2. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Insomnia help

    3. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Insomnia help

    4. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Insomnia help

    5. - hjayne19 posted a topic in Traveling with Celiac Disease
      0

      Mallorca Guide

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,935
    • Most Online (within 30 mins)
      7,748

    riceayedoonlap
    Newest Member
    riceayedoonlap
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
    • cristiana
      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety.  I had awful anxiety at diagnosis, and that feeling of doom that you describe.   My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me.  I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking).  That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines.   In fact I felt so unwell that I didn't even recognise it as 'anxiety'.  I remember googling my various symptoms and it was only that that  made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech.  This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less.  It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you.   And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can.   There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example,  a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan.  When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'.    I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse.  I remember reading on this forum one should take magnesium tablets, and it did really help.  As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin.  But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety,  I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful.  The Depression Cure: The Six Step Programme to Beat Depression Without Drugs.    Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life:  physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness, and meaningful, engaging activity.    The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer.  I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul.  I am so grateful that these books crossed my path.   Anyway, sorry for the length of this post.  I hope something might be of help. Cristiana  
    • hjayne19
      Hi @trents thanks so much for the insights this helps alot.    These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep with insomnia is if I eat a banana or a snack. I have a follow up appointment soon so will look into those other B vitamin levels. 
    • trents
      When you say "vitamin B" was normal? Which vitamin B are you referring to? Typically, physicians will only check for B12 deficiency because it can connect to iron deficiency via something called "pernicious anemia". But all the B vitamins work together in a synergistic fashion. That's why we recommend a high potency B-complex. And D3 is turning out to be much more important than we ever realized. In many ways, it is a "master vitamin". And in the modern world where we spend much more time indoors than our ancestors did, we often don't get enough of it, especially if we live in northern latitudes. And it's also true that "normal" levels may not be the same as optimum levels.  Ferritin is an iron storage protein. The body can rob from storage in order to maintain immediate blood levels of iron so, yes, ferritin can take longer to rebuild than hemoglobin counts. Your ferritin levels are low end of normal.
    • hjayne19
      Hi celiac community. Reaching out for some help. I am traveling to Mallorca in May for a cycling trip and would like some recommendations on gluten free safe eats and if there are things in the stores to buy. Let me know what works 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.