Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Took Gluten Out And Feeling No Pain

addis001

Recommended Posts

addis001 Apprentice
addis001
Posted

So my liver is normal

My poop is normal

My colonoscopy was normal, camera down the throat was normal

The GI calls it IBS... Yeah right...

The pain is only on my right side under my right rib.. My biggest 3 concerns is gluten sensitivity/allergy, a stone in bile duct (no gallbladder), and Sphincter of Oddi Dysfunction(happens when you've had gallbladder removed).

My Grandmother has Celiac. And my aunts and cousins on that side have horrible food allergies.. My brother is allergic to shellfish of all things..

I did Gluten free for about a month now.. and the pain is gone.. I have it once in awhile when I am not careful, because I'm not totally gluten free, just avoiding anything potentially gluten. Basically eating Chicken, rice, rice cakes, fruits, vegetables were just added, V-8 juice, and a few other things. But I have cheated once or twice and felt the pain return. So I hope its not in my head and this might solve my mystery pain, diarrhea, nausea etc...

I see my new GI next Monday.. he is amazing and a wonderful listener.. So I'm hopefully going to get the help i need soon..

Do you think I need to get recommended an allergist? Or stick with GI more?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cathlaur Newbie
cathlaur
Posted

WOW we could be twins. I am shocked. My Dr had me tested for Celiac and everything came back no. I still had pain on the right side under the rib just like you. She said she thinks it is still Gluten. I have been Gluten free for a month AND OMG I feel awesome. The pain is gone for the most part. I cannot believe it. Who would have thought. So I guess I have a Gluten Intolerance. SO this is how I am eating. I do not find it that hard probably because I do not have to worry about cross contamination.

What a pleasure to feel better. I was so skeptical that this is what it was!

So I am happy to know I can control the pain that was taking over me every single day.

Good luck

Katie

So my liver is normal

My poop is normal

My colonoscopy was normal, camera down the throat was normal

The GI calls it IBS... Yeah right...

The pain is only on my right side under my right rib.. My biggest 3 concerns is gluten sensitivity/allergy, a stone in bile duct (no gallbladder), and Sphincter of Oddi Dysfunction(happens when you've had gallbladder removed).

My Grandmother has Celiac. And my aunts and cousins on that side have horrible food allergies.. My brother is allergic to shellfish of all things..

I did Gluten free for about a month now.. and the pain is gone.. I have it once in awhile when I am not careful, because I'm not totally gluten free, just avoiding anything potentially gluten. Basically eating Chicken, rice, rice cakes, fruits, vegetables were just added, V-8 juice, and a few other things. But I have cheated once or twice and felt the pain return. So I hope its not in my head and this might solve my mystery pain, diarrhea, nausea etc...

I see my new GI next Monday.. he is amazing and a wonderful listener.. So I'm hopefully going to get the help i need soon..

Do you think I need to get recommended an allergist? Or stick with GI more?

Roda Rising Star
Roda
Posted

Did your doctor even test you for celiac with blood work? There is also a good chance if they were not looking for celiac at the time you had your upper scope that the doctor didn't biopsy for it. Or if they did biopsy, then not enough samples were taken. For some reason doctors only like to take a couple and you need a minimum of 8-11 taken just in the upper part of the small bowel alone not counting the samples they take from the stomach and esophagus. Request a copy of all your labs and your report from your scopes. You might just be suprised by what you find or don't find.

If you want to persue more testing you need to be aware that being gluten free and even gluten light can skew the tests. Or if your done with testing continue gluten free. It sounds like it has helped already.

addis001 Apprentice
addis001
Posted
  • Author

Yes being gluten free has helped my energy level, and pain..

Which is funny today and felt my back right rib, and felt a protrusion.. Definitely going to ask GI on Monday's appt.. My biggest fear is that it is a cyst of some kind..

My new GI, I'm going to ask for blood test, a new biopsy test, and a CT scan.. But after going gluten free, and being pain free, I really don't want to go back to gluten and be in pain just so they can test for it.. Its the worst pain ever!

  • 3 weeks later...
loreece Newbie
loreece
Posted

Hi everyone. I'm a new member here. I've been doing a lot of research online because so far, nothing has been found to be causing my right side pain. My pain is located below my right rib cage on the side, the back, and the front. I've had ultrasounds (abdominal and pelvic), a CT scan to check for kidney stones, and numerous blood work that all showed normal. I'm now waiting on a referral to see a GI doctor and possibly getting a colonoscopy and an endoscopy. The pain is more toward the surface of the skin and it's sharp and pinchy. It sometimes moves around and can feel it in the top of my stomach or left side. But those pains subside but the right side pain stick around. It's been over a month now and I am sick of feeling this pain daily. After reading many posts on this site, I am now wondering if I need to start a gluten free diet? Any insight and/or suggestions? Thank you so much!

addis001 Apprentice
addis001
Posted
  • Author

I would try it... I was soooo tired of the pain all the time.. Not knowing how long the episode would last.. I was desperate to try anything...

Now after 6 months of TTC, I am pregnant after just one month on the gluten-free diet.. how crazy is that!!!! With my first we were pregnant on first try.. so taking this long was a surprise to both of us.. but just one month on the gluten-free diet, and we;re pregnant.. I know for sure its celiac..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...