Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Risk Of Cancer If I Continue To Ingest Gluten?

Silencio

By Silencio
in Coping with Celiac Disease

Recommended Posts

Silencio Enthusiast
Silencio
Posted

I cant find much about it online. My doctor told me to stay off gluten because I have a better chance of getting cancer if I continue to ingest gluten. I have been off gluten since I was diagnosed but im just wondering.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

pain*in*my*gut Apprentice
pain*in*my*gut
Posted
  On 2/13/2012 at 7:08 PM, Silencio said:

I cant find much about it online. My doctor told me to stay off gluten because I have a better chance of getting cancer if I continue to ingest gluten. I have been off gluten since I was diagnosed but im just wondering.

Your doc is right. Here you go....

Open Original Shared Link

Skylark Collaborator
Skylark
Posted
  On 2/13/2012 at 7:08 PM, Silencio said:

I cant find much about it online. My doctor told me to stay off gluten because I have a better chance of getting cancer if I continue to ingest gluten. I have been off gluten since I was diagnosed but im just wondering.

Wikipedia has pretty good info.

Open Original Shared Link

Don't worry though. Our risk of cancer drops to normal after about a year on the gluten-free diet. The enteropathy-associated T-cell lymphoma is pretty scary but it's usually only seen in people with advanced celiac disease who aren't on the diet.

Silencio Enthusiast
Silencio
Posted
  • Author

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

pain*in*my*gut Apprentice
pain*in*my*gut
Posted
  On 2/13/2012 at 11:43 PM, Silencio said:

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

Yes, that would be tough. I would think regular follow-ups with your GI for blood tests would be sufficient to make sure your numbers stay in the normal range and you are not accidentally getting glutened on a regular basis.

Skylark Collaborator
Skylark
Posted

I agree. Take reasonable care and follow up with your doctor for blood tests and you will be fine. It's the people who go undiagnosed for all their lives who get cancer.

love2travel Mentor
love2travel
Posted
  On 2/13/2012 at 11:43 PM, Silencio said:

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

You and me both - I did not react to gluten, either. I have no clue whether I would now (have been off nearly a year) and not am about to find out. However, I was away for the past two weeks, visiting family (lots of little nieces and nephews) and have no idea whether I was glutened. I cooked about 95% of the meals myself and was very careful but still.

As others have mentioned, I was also told that the cancer risks are the same as non-celiacs after being off gluten a year.

My doctor has done bloodwork on me twice so far and both times were negative so I am doing something right! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Tierra Farm

Celiac.com Sponsor (A8-M):
Little Northern Bakehouse

come dance with me Enthusiast
come dance with me
Posted
  On 2/13/2012 at 11:43 PM, Silencio said:

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

Wow that would be difficult. My 8yo ingested gluten over the weekend, trace amounts, and spent yesterday in bed holding her tummy screaming out in pain, so we can easily tell. You would have to be even more aware if your body doesn't tell you. I agree with regular checks. I take my dd for follow up blood tests but yeah, as you can see, I know when there is a slight slip up.

Silencio Enthusiast
Silencio
Posted
  • Author
  On 2/14/2012 at 2:11 AM, love2travel said:

You and me both - I did not react to gluten, either. I have no clue whether I would now (have been off nearly a year) and not am about to find out. However, I was away for the past two weeks, visiting family (lots of little nieces and nephews) and have no idea whether I was glutened. I cooked about 95% of the meals myself and was very careful but still.

As others have mentioned, I was also told that the cancer risks are the same as non-celiacs after being off gluten a year.

My doctor has done bloodwork on me twice so far and both times were negative so I am doing something right! :)

Yeah I go in for blood work every 3 months to see if everything is cool. Its almost that time again (first blood work since I was diagnosed) so I guess I will find out how well I have been doing with it. On another subject, im heading down to the Kinnikinnick store here in Edmonton to check out the new soft bread and buns that you informed me about in another thread.

come dance with me, I read stories all the time of people in so much pain over the slightest amount. I am pretty lucky not to have that.

BarryC Collaborator
BarryC
Posted

Colo-rectal cancer runs in my family. I lost my Dad andtwo uncles in their 40's. I am 53, but I also lead a healthier lifestyle, no smoking, not too much booze. I wouldnt be surprised if their is a connection. They all ate lots of fatty meat slopped up with my Grannies home made bread. They all had the big bloated belly like I have, which is only now starting to soften up.

Silencio Enthusiast
Silencio
Posted
  • Author

I am pretty bad for eating alot of junk too. I am really skinny and cant gain much if I tried. I have never drank or smoked though

BeFree Contributor
BeFree
Posted

"Our risk of cancer drops to normal after about a year on the gluten-free diet."

That's good to know!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      130,283
    • Most Online (within 30 mins)
      7,748
    CSK 157
    Newest Member
    CSK 157
    Joined
  • Celiac.com Sponsor (A20):
    Authentic Foods

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse


  • Upcoming Events

  • Posts

    • Dora77
      Ocd making gluten fears unmanageable. Need advice

      By Dora77 · Posted

      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health...
    • lmemsm
      beans in dessert recipes

      By lmemsm · Posted

      I've been making a lot of black bean brownies lately because it's one of the few gluten free dessert recipes that actually tastes palatable.  I've also seen chocolate cake recipes with black beans.  Someone mentioned a cookie recipe using lentils in place of flour.  Just wondering if anyone's run across any tried and true recipes using beans, lentils or peas for desserts?  I've seen a lot of recipes for garbanzo flour but I'm allergic to garbanzo beans/chickpeas.  Was wondering if adzuki or pinto beans might be useful in replacing some or all of the flour in baking.  Since gluten free flours can be crumbly was hoping the beans might help produce a better, less crumbly consistency.  Any...
    • lmemsm
      Gluten free/ non dairy , low calorie pudding

      By lmemsm · Posted

      I've seen a lot of recipes for chia pudding, so I decided to make some with chia, water, cocoa and honey.  Didn't like the taste, so I added ground sunflower and ground pumpkin seed to it.  It tasted okay, but came out more like frosting that pudding.  I used to make pudding with tapioca starch, milk powder, water and sugar.  It came out very good but I haven't figured out what to use to replace the milk powder to make it dairy free.  Most starches will work in place of tapioca starch but quantity varies depending on the type of starch.  If I didn't add enough starch to get a pudding consistency, I'd add gelatin as well to fix it.  Avocado and cocoa makes a good dessert with a pudding like...
    • lmemsm
      Finding gluten free ingredients

      By lmemsm · Posted

      Seems like when I find a gluten free product I like, the producer stops manufacturing it and then I have trouble finding a new gluten free source for it.  What's worse, I've been contacting companies to ask if their products are gluten free and they don't even bother to respond.  So, it's making it very hard to find safe replacements.  I was buying teff flour at nuts.com and they no longer carry it.  I noticed Naturevibe has teff and soy flour.  However, I can't get a response as to whether their flours are safe for someone with celiac.  Can't get a response from Aldi if their peas are safe for someone with celiac either.  I know Bob's Red Mill has teff flour but was hoping to get a large quantity. ...
    • chrish42
      Doctors and Celiac.com

      By chrish42 · Posted

      All I can say is this site is great!
×
×
  • Create New...