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Enzyme Question


Nadia2009

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Nadia2009 Enthusiast

I am dealing with bad digestion, discomfort/or pain and IBS and my new holistic doctor sent me for many tests which are not all completely done. In the meantime, I am taking probiotics and enzymes...actually I just bought the enzymes Digest More Ultra from Renew Life and it is gluten soya corn yeast additives and animal products FREE. It looks perfect except that it only has 25000 DU amylase to digest carbs and 100000 HUT protease for proteines. The first formula I was supposed to get from the doctor office (they sell them) had around 48000 unit of protease and 52000 unit of amylase.

Also, I dont feel bothered by meat as far as I know... maybe I need an enzyme formula richer in amylase.


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RiceGuy Collaborator

There are many different types of digestive enzymes, not just the two you mentioned. And the product you should choose depends on your needs. But whatever the formula, the enzymes should be derived from microbial sources, as those are the only ones AFAIK which can withstand the acidity of the stomach, and thus still be viable once they get to your intestines.

Other things which are helpful for digestion include betaine HCL with pepsin, for the stomach itself, and apple cider vinegar, which also helps the stomach. Herbs such as ginger, turmeric, basil, and many others are also known for their digestive-enhancing properties.

Nadia2009 Enthusiast

There are many different types of digestive enzymes, not just the two you mentioned. And the product you should choose depends on your needs. But whatever the formula, the enzymes should be derived from microbial sources, as those are the only ones AFAIK which can withstand the acidity of the stomach, and thus still be viable once they get to your intestines.

Other things which are helpful for digestion include betaine HCL with pepsin, for the stomach itself, and apple cider vinegar, which also helps the stomach. Herbs such as ginger, turmeric, basil, and many others are also known for their digestive-enhancing properties.

Thanks. How do you know for sure what are your needs? Is there a specific test for lack of enzymes?

I already take apple cider vinegar, fresh and supplement ginger and liquorice root. Liquorice isn't meant for my digestion but it can help. How about Cumin can it help?

burdee Enthusiast

Thanks. How do you know for sure what are your needs? Is there a specific test for lack of enzymes?

I already take apple cider vinegar, fresh and supplement ginger and liquorice root. Liquorice isn't meant for my digestion but it can help. How about Cumin can it help?

How do you take the apple cider vinegar? A test for whether you need more acid (betaine HCl) is to drink 1-2 tablespoons of apple cider vinegar with as little water as you can stand during the early part of a meal. If that lessens or eliminates indigestion, you may need supplemental betaine HCl, rather than enzymes to correct pancreatic insufficiency. If you take both, take the cider vinegar early in the meal and take the enzymes after the meal, to mimic production of acid and enzymes in the body.

I often drink ginger tea or eat candied ginger after meals when I feel overly full.

RiceGuy Collaborator

Thanks. How do you know for sure what are your needs? Is there a specific test for lack of enzymes?

I already take apple cider vinegar, fresh and supplement ginger and liquorice root. Liquorice isn't meant for my digestion but it can help. How about Cumin can it help?

Not sure about tests, but what you need may be indicated by what type of food substances get your digestion messed up. For instance, if different types of carbs bother you, then you may need enzymes for carbs (there are different kinds of enzymes for carbs, too). If proteins mess up your digestion, then that may indicate a lack of protein enzymes.

Basically, I chose a product with a very wide assortment of enzymes, and it has helped. I cannot say it solves all the issues I'd hoped it might, but it does help. It's called Digest Platinum, made by NOW Foods. Another decent one is made by Doctor's Best.

Balancing your intestinal flora can also help, and it is very important to maintain this aspect of your digestive system. Things like antibiotics often cause the balance of flora to get out of whack, and it can be very difficult to realign things. Avoiding refined sugars is an important step, which many people seem to find troublesome. I recommend pure Stevia extract powder. It is my only sweetener, and it is all natural, zero calories, zero carbs, zero sugars, and zero on the glycemic index. It is high-heat stable, so it's safe for all your cooking and baking. Though you will need to reformulate those recipes which rely on the bulkiness of sugar. Probiotics can also assist in the process of re-balancing intestinal flora. Other things such as coconut oil can be great too, as it contains caprylic acid, which inhibits unfriendly bacteria in the gut. You can also get caprylic acid in supplement form. There are also products which can kill off unfriendly bacteria, which some folks need when the situation is particularly poor. Oregano oil, Pau D'Arco, and Black walnut are some of the more popular ingredients in such supplements, often suggested to fight a candida overgrowth. Most doctors have no clue about this aspect of intestinal health, and often misguide patients by telling them that it's nonsense.

Cumin may help to some degree. I use it regularly, and I think I've noticed a small benefit. Depending on your situation, fennel, fenugreek, and peppermint can also help. Celery seeds are known to help certain digestive disturbances too.

Nadia2009 Enthusiast

How do you take the apple cider vinegar? A test for whether you need more acid (betaine HCl) is to drink 1-2 tablespoons of apple cider vinegar with as little water as you can stand during the early part of a meal. If that lessens or eliminates indigestion, you may need supplemental betaine HCl, rather than enzymes to correct pancreatic insufficiency. If you take both, take the cider vinegar early in the meal and take the enzymes after the meal, to mimic production of acid and enzymes in the body.

I often drink ginger tea or eat candied ginger after meals when I feel overly full.

I ran out of ACV but when I had it, I was taking 2 tablespoon in twice the amount of water first thing before breakfast. I will try it the way you take it before the meals too. ACV helped lessen my reflux and I had no more food regugirtation. Thanks I didn't know about betaine HCL I will research more on the subject. I asked my doctor for the enzymes before he even suggested because most of us eat food depleted in enzymes. I have eaten microwave heated and cooked food for years and I am not a vegetarian who consume lots of raw food...there must be a reason why I am only half digesting my food and having light colored stools. Maybe it is something else but I want to try enzymes too. Doctor OZ talked about pancreatic cancer this week and how one of the sign is light colored/yellow stools. OMG I got scared but hopefully I am not there.

Nadia2009 Enthusiast

Not sure about tests, but what you need may be indicated by what type of food substances get your digestion messed up. For instance, if different types of carbs bother you, then you may need enzymes for carbs (there are different kinds of enzymes for carbs, too). If proteins mess up your digestion, then that may indicate a lack of protein enzymes.

Basically, I chose a product with a very wide assortment of enzymes, and it has helped. I cannot say it solves all the issues I'd hoped it might, but it does help. It's called Digest Platinum, made by NOW Foods. Another decent one is made by Doctor's Best.

Balancing your intestinal flora can also help, and it is very important to maintain this aspect of your digestive system. Things like antibiotics often cause the balance of flora to get out of whack, and it can be very difficult to realign things. Avoiding refined sugars is an important step, which many people seem to find troublesome. I recommend pure Stevia extract powder. It is my only sweetener, and it is all natural, zero calories, zero carbs, zero sugars, and zero on the glycemic index. It is high-heat stable, so it's safe for all your cooking and baking. Though you will need to reformulate those recipes which rely on the bulkiness of sugar. Probiotics can also assist in the process of re-balancing intestinal flora. Other things such as coconut oil can be great too, as it contains caprylic acid, which inhibits unfriendly bacteria in the gut. You can also get caprylic acid in supplement form. There are also products which can kill off unfriendly bacteria, which some folks need when the situation is particularly poor. Oregano oil, Pau D'Arco, and Black walnut are some of the more popular ingredients in such supplements, often suggested to fight a candida overgrowth. Most doctors have no clue about this aspect of intestinal health, and often misguide patients by telling them that it's nonsense.

Cumin may help to some degree. I use it regularly, and I think I've noticed a small benefit. Depending on your situation, fennel, fenugreek, and peppermint can also help. Celery seeds are known to help certain digestive disturbances too.

I love all those teas but fennel is the one I usually have at home. Fennugreek has many benefits but I tried at rare times maybe because of the stigma... in warm climates, it is known to make people smell. For the cumin I used it iin some recipes and I hope it keeps its properties when cooked. Coconut oil is great and I have read a lot on the caprilic acid but I just don't do all that I know. Stevia is definitely on my list.

The thing is I don't add sugar to food or drink but I have some addictions...like our city mayor here, I have late night ice-cream cravings but thanks I don't have his weight :D I think Peter the moderator would know who I am talking about. I tried a candida diet though I was still having some rare carbs for 3 months after I went gluten free. I lost a lot of weight but felt good until one day when I saw my favourite childhood sweets and forgot my diet. That was the END. Right now, I am taking probiotics from Raw Elements, probiotics plus ginger. It has 1 billions CFU basillus coagulan and 60mg of ginger. I am taking about 6 capsules a day and it does help. The probiotic before this one was much much stronger and had 50 billions but I had strong die off symptoms and my estomac was upset but I am sure it was a good probiotic and it needed to be refrigerate.

About the enzymes, I definitely have easier with green vegetables and meat...sweet potatoes are perfect but white potatoes make me a little constipated. Quinoa is fine maybe it has more proteins and beans are the ones that I have hard time digesting I believe and I am stubborn I keep trying them because I want to eat less meat...good meat is costly these days. I am trying to eat organic hormone free meat. I already avoid most dairy because it is mucus forming but I still have some and they don't help. Nuts are also difficult on my digestion and not as bad as beans. I suspect I have more trouble with starches and fat than proteins. I am fine with fruits but I guess the sugar in fruit juice doesn't forgive in my case.

I am sure I will do much better on the paleo diet but I is a boring diet! Meat and bones and just seeds :( I need some comfort food and there is none in paleo type of diet! OK I am done whinning.

Much appreciation for all your suggestions. I have a few more questions here for when you have time.

Do you know if it is better to use probiotics that need refrigeration?

Do know if oregano oil helps with the intestinal flora because someone working in my local health food store told me it is a good antibiotic subtitute but it will kill good bacteria like antibiotics...I was really suprised.


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RiceGuy Collaborator

If you like coconut as a comfort food, you can indulge in it, and it will help fight candida at the same time. For instance, coconut macaroons sweetened with Stevia, or use coconut in a pie, again sweetened with Stevia. If sweet potatoes work well for you, then you can use them in all sorts of delicious ways. Sweet potato fries, chips, pudding, and sweet potato pie, just to name a few. Use coconut oil in place of butter/margarine in baking, and as a spread, in hot cereals, smoothies, etc. If you make your own creamy coconut dessert to enjoy in place of ice cream, and sweeten it with Stevia, then you can indulge all you want, for it will be a health food :)

I have not run into anything specific regarding probiotics and refrigeration, but I do believe the better ones would suggest refrigeration on the label, if only just to retain maximum potency. I've heard it said that oregano oil will kill anything if you take enough of it. From what I know, it is very powerful, and should be used carefully to avoid getting sick from taking too much of it.

When fighting candida, I was successful with caprylic acid as the only supplement. But I think the dietary changes were also important. I did not avoid complex carbs, but I did avoid all sugars, yeasts, vinegars, and fruits. I waited almost a year before trying any fruit, but limited it to one piece per week at a maximum. I do not know if apple cider vinegar would need to be avoided.

Nadia2009 Enthusiast

I'll be soon eating sweet potatoes and coconut on daily basis maybe with a bone with some meat on it. Where is the paleo diet and the Gap one.

My food allergy test results came today and :unsure::o:angry: it is not funny. I am intolerant to almost everything I ate this week!

Extremely high reaction to nuts. That's nuts...what other calcium and omega rich food will I be able to find?

High reaction to all dairy. Not a surprise here!

No eggs and chicken. Why? Eggs I suspected but did the chicken had to go with the eggs :(

Even the tasty beans are gone!

I am left with boring and pesticide full veggies and fruits, with mercury filled sea food and some rice and potatoes. Oh and red meat! I forgot hormone and antibiotics full meat.

The good news is that I don't have too much candida and no parasites. The doctor said we found the cause of your gut inflammation. The good news is there is something to eat. My exagerated reaction is due to the surprise. I wouldnt have thought I would have all these intolerances.

Now is this test realiable? I think it is called Elisa.

Do enzymes help with these intolerances?

RiceGuy Collaborator

Do enzymes help with these intolerances?

It is possible, since improving digestive health can bring about reduced permeability (leaky gut), thus less of the offending substances should be getting through.

Nadia2009 Enthusiast

It is possible, since improving digestive health can bring about reduced permeability (leaky gut), thus less of the offending substances should be getting through.

Thats right. Thank you for reminding me. Sorry for my rant. These days, I am all over the place in the GUT section of the forum.

Have you ever had h pylori? I created a topic on that and didn't get any reply so far. I am looking for alternative ways without the use of antibiotics to kill the bacteria. You wrote oregano oil can kill anything...can it kill this h pylori?

RiceGuy Collaborator

Thats right. Thank you for reminding me. Sorry for my rant. These days, I am all over the place in the GUT section of the forum.

Have you ever had h pylori? I created a topic on that and didn't get any reply so far. I am looking for alternative ways without the use of antibiotics to kill the bacteria. You wrote oregano oil can kill anything...can it kill this h pylori?

Though I've never had H. Pylori (that I'm aware of), I have read that mastic gum can kill it. Other things seem to be effective as well, oregano oil being one of them. Here is some info on the subject:

#1 - Mastic Gum

Mastic Gum is a very good supplement to use against H pylori. Studies have shown that it not only inhibits H pylori, it also kills it. It should be used for 60-90 days and combined with dietary changes to reduce inflammation in the stomach and intestine. If the diet changes are not made, it does not work as effectively. It is also very important to purchase high quality mastic gum.

#2 - Matula Herbal Formula

Matula is, in my experience, the most effective herbal supplement for cleansing the stomach. Stool tests have shown time and time again that H pylori is no longer present after a 30-day course of Matula. Because Matula works so quickly it is actually the least expensive option.

#3 - Olive Oil

The polyphenols in olive oil have been shown to have anti-H pylori action although there is no evidence that olive oil alone can completely eradicate the bacteria. Because olive oil is generally a healthy oil, it is wise to use it regularly in one's diet.

#4 - Cabbage Juice

Vitamin U, which is not actually a vitamin at all, is a component of cabbage juice that has been shown in Russia to help heal ulcers. It is possible to juice cabbage using a vegetable juicer.

#5 - Coconut Oil

Coconut oil is an excellent anti-microbial agent. It contains lauric acid, which can break down the cell membranes of bacteria and parasites. It is also a wonderful oil to cook with and although it contains saturated fats, the structure of the fatty acids helps support the thyroid gland, improve metabolism and helps people lose weight.

#6 - DGL

DGL is an abbreviation for deglycerrhized licorice root. It protects the stomach lining and has shown some anti-microbial action against H pylori. Taken on its own, however, it is unlikely that DGL can defeat H pylori.

Using these foods and herbs in the correct manner can inexpensively help reduce and eliminate the symptoms associated with H pylori in a matter of 5-60 days, with no side effects.

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IrishHeart Veteran

If you have been diagnosed with h. pylori infection, you may want to be treated by a doctor for that.

I know none of us like to take medications, especially antibiotics, but it is nothing to mess around with.

Open Original Shared Link

You can always take probiotics to replenish.

My father had a nasty bout with that --and it made him quite ill --and it took several rounds of medications to eradicate it.

In retrospect, he certainly had celiac and a leaky gut,and he had severe anemia requiring frequent blood transfusions for 8 years, but sadly, we did not know about such things before I was DXed. If I only knew then what I know now :rolleyes:

I would hate to see you go untreated and have such pain in your gut as he did.

Also, should you have excess stomach acid, Betaine HCL can cause a burning sensation in your gut, which means you do not need this added to your digestive enzymes.

Take Betaine HCL at the start of the meal. If taken without food, stomach burning may result. See how your stomach feels during and after eating. Should any burning or heaviness occur, or if burning has been present previously (before taking the supplement) and gets worse, you should not use this supplement. Get digestive enzymes with out that added to them.

I do not know if your question about refrigeration of probiotics was ever answered, but most suggest they should be kept in the fridge to keep them "alive". But some products say it is NOT required. I keep them in there anyway. :)

Best wishes.

burdee Enthusiast

I'll be soon eating sweet potatoes and coconut on daily basis maybe with a bone with some meat on it. Where is the paleo diet and the Gap one.

My food allergy test results came today and :unsure::o:angry: it is not funny. I am intolerant to almost everything I ate this week!

Extremely high reaction to nuts. That's nuts...what other calcium and omega rich food will I be able to find?

High reaction to all dairy. Not a surprise here!

No eggs and chicken. Why? Eggs I suspected but did the chicken had to go with the eggs :(

Even the tasty beans are gone!

I am left with boring and pesticide full veggies and fruits, with mercury filled sea food and some rice and potatoes. Oh and red meat! I forgot hormone and antibiotics full meat.

The good news is that I don't have too much candida and no parasites. The doctor said we found the cause of your gut inflammation. The good news is there is something to eat. My exagerated reaction is due to the surprise. I wouldnt have thought I would have all these intolerances.

Now is this test realiable? I think it is called Elisa.

Do enzymes help with these intolerances?

Yes, the ELISA test is reliable. If you worry about pesticides with produce, choose organic. Free range, antibiotic free meats are available at Whole Foods and other like-minded stores. Not all fish are full of mercury.

No, digestive enzymes don't help with diagnosed allergies. The only treatment is to avoid the offending foods. ELISA diagnosed reactions involve the immune system, like IgG or IgE antibodies. So you have delayed reaction allergies (IgG) unless you have immediate reaction (anaphylactic or IgE) allergies. Intolerances don't involve an immune reaction. (No, you won't grow out of delayed reaction (IgG mediated) allergies or any true allergies. You may change symptoms (and your doc may say you've 'outgrown' allergies), but your body does not forget how to react, when you have antibody (immune system) mediate allergies.

So you're diagnosed with allergies to nuts, dairy, egg, chicken and beans? What about wheat or other gluten containing grains? (I assume you already have diagnosed celiac or at least gluten sensitivity, since you're on this board.) My diagnosed (through ELISA and Enterolab tests) allergies (IgG and IgA) are gluten, dairy, soy, eggs, cane sugar, vanilla and nutmeg. My first 6 allergies are common ingredients in most baked goods. So I have few bread and dessert choices, unless I bake my own (which I do). I eat lots of vegies, fruits, fish and meats (not always chicken). Since I can't have soy, I have to use nut based milks. Since you didn't mention soy, you have a whole category of dairy substitutes. Just about any dairy product you can think of is made from soy. Focus on what you can safely eat, rather than discounting the value of what you can eat and then missing what you can't eat. You're lucky to have firm diagnoses for food allergies (although a few people on this board will discount most allergy tests), rather than having to spend a long time with elimination diets guessing what foods bother you. Elimination diets are difficult, because we can be allergic to almost anything. So there are no 'safe' foods to base your elimination diet.

BTW before I was diagnosed with my 7 foods, I ate lots of pastries and baked goods. I also had undiagnosed celiac disease for years. I suspect (and have read) that gut damage from gluten intolerance allows other big food proteins to pass through the intestinal barrier into the blood and cause reactions. So if you eat a lot of something, while you have gut damage, your 'favorite' foods become your allergies. SIGH My husband used to snack on raisins and almonds constantly. When he got his ELISA test back he was allergic to grapes, almond, blueberries, sesame, dairy, egg yolk, vanilla and nutmeg (as well as gluten sensitivity). He and I have developed a lot of new favorite foods during the past 5 years. There are lots of foods besides your diagnosed allergens. Try new foods. Try new cooking/baking techniques. Try new restaurants with different cuisines (that include your safe foods.) Focus on how much better you feel without constant food allergy reactions.

Nadia2009 Enthusiast

Though I've never had H. Pylori (that I'm aware of), I have read that mastic gum can kill it. Other things seem to be effective as well, oregano oil being one of them. Here is some info on the subject:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

Thank you for the info.

I am going to buy mastic gum and coconut for sure and I already have oregano oil. Anything that can avoid me antibiotics is good as I don't want to mess up 5 years record of not taking antibiotics.

I dont like cruceferous vegetable but if they can help wiht hpylori, why not.

I already use liquorice root for my adrenals but I think it isn't DGL. I must have the original root but will look for the DGL.

Nadia2009 Enthusiast

If you have been diagnosed with h. pylori infection, you may want to be treated by a doctor for that.

I know none of us like to take medications, especially antibiotics, but it is nothing to mess around with.

Open Original Shared Link

You can always take probiotics to replenish.

My father had a nasty bout with that --and it made him quite ill --and it took several rounds of medications to eradicate it.

In retrospect, he certainly had celiac and a leaky gut,and he had severe anemia requiring frequent blood transfusions for 8 years, but sadly, we did not know about such things before I was DXed. If I only knew then what I know now :rolleyes:

I would hate to see you go untreated and have such pain in your gut as he did.

Also, should you have excess stomach acid, Betaine HCL can cause a burning sensation in your gut, which means you do not need this added to your digestive enzymes.

Take Betaine HCL at the start of the meal. If taken without food, stomach burning may result. See how your stomach feels during and after eating. Should any burning or heaviness occur, or if burning has been present previously (before taking the supplement) and gets worse, you should not use this supplement. Get digestive enzymes with out that added to them.

I do not know if your question about refrigeration of probiotics was ever answered, but most suggest they should be kept in the fridge to keep them "alive". But some products say it is NOT required. I keep them in there anyway. :)

Best wishes.

I am sorry to hear about your dad. Celiac can be a silent killer and H pylori is often associated with celiac as I have been reading for the last few days. Also, anemia is due to h pylori...I am also learning that adrenal fatigue can be a result of h pylori as the body fighting exhausts our stress hormone.

I want to take some sort of natural medicine as I have already passed the bottom of the crisis. I had chronic fatigue for the last months and feeling better now...my itching and skin sensitivity have decreased. I still don't know if all my symptoms were due to h pylori or food sensitivities. But I will monitor and see if the natural medicines are working. If they don't I will take antibiotics.

Basically, I would need the betaine HCL if my estomac doesn't make enough acid? I took antiacids for years and I suspect I don't need more acid but I will try and see. Thank you.

Nadia2009 Enthusiast

Yes, the ELISA test is reliable. If you worry about pesticides with produce, choose organic. Free range, antibiotic free meats are available at Whole Foods and other like-minded stores. Not all fish are full of mercury.

No, digestive enzymes don't help with diagnosed allergies. The only treatment is to avoid the offending foods. ELISA diagnosed reactions involve the immune system, like IgG or IgE antibodies. So you have delayed reaction allergies (IgG) unless you have immediate reaction (anaphylactic or IgE) allergies. Intolerances don't involve an immune reaction. (No, you won't grow out of delayed reaction (IgG mediated) allergies or any true allergies. You may change symptoms (and your doc may say you've 'outgrown' allergies), but your body does not forget how to react, when you have antibody (immune system) mediate allergies.

So you're diagnosed with allergies to nuts, dairy, egg, chicken and beans? What about wheat or other gluten containing grains? (I assume you already have diagnosed celiac or at least gluten sensitivity, since you're on this board.) My diagnosed (through ELISA and Enterolab tests) allergies (IgG and IgA) are gluten, dairy, soy, eggs, cane sugar, vanilla and nutmeg. My first 6 allergies are common ingredients in most baked goods. So I have few bread and dessert choices, unless I bake my own (which I do). I eat lots of vegies, fruits, fish and meats (not always chicken). Since I can't have soy, I have to use nut based milks. Since you didn't mention soy, you have a whole category of dairy substitutes. Just about any dairy product you can think of is made from soy. Focus on what you can safely eat, rather than discounting the value of what you can eat and then missing what you can't eat. You're lucky to have firm diagnoses for food allergies (although a few people on this board will discount most allergy tests), rather than having to spend a long time with elimination diets guessing what foods bother you. Elimination diets are difficult, because we can be allergic to almost anything. So there are no 'safe' foods to base your elimination diet.

BTW before I was diagnosed with my 7 foods, I ate lots of pastries and baked goods. I also had undiagnosed celiac disease for years. I suspect (and have read) that gut damage from gluten intolerance allows other big food proteins to pass through the intestinal barrier into the blood and cause reactions. So if you eat a lot of something, while you have gut damage, your 'favorite' foods become your allergies. SIGH My husband used to snack on raisins and almonds constantly. When he got his ELISA test back he was allergic to grapes, almond, blueberries, sesame, dairy, egg yolk, vanilla and nutmeg (as well as gluten sensitivity). He and I have developed a lot of new favorite foods during the past 5 years. There are lots of foods besides your diagnosed allergens. Try new foods. Try new cooking/baking techniques. Try new restaurants with different cuisines (that include your safe foods.) Focus on how much better you feel without constant food allergy reactions.

It is even more depressing now if this means I will never be able to have dairy, nuts, beans, seeds and eggs. It involves so many type of food. Actually, my reaction to chicken is weak...I didnt read the test well the first day. My reaction to eggs is moderate but it is strong to seeds, beans and nuts...a little less for some of the dairy. I hope I can still have butter :unsure:

Of course, I reacted to gluten too and I guess I had been getting some gluten from somewhere based on the reaction. So not even when the gut heals, we cannot add these foods back?

Like your husband I snacked so much on almond, raisins and sunflower seeds. My reaction to almond and sunflower is the highest.

It is good to have firm diagnosis. I would have never guessed nuts were a problem...actually maybe I was in denial because I could see I was not digesting them. The best test for me was this last week: I had all these foods in the same week and when I went to see the doctor I wasn't feeling very well...I had my answer there.

I am not allergic to soy and corn. I dont really like soy (maybe as coffee cream it would ok) and my favourite popcorn has milk ingredients anyway so it is out :(

Thank you all for your support.

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    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
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