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A Major Slip-Up!

cityflower21

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cityflower21 Newbie
cityflower21
Posted

Hello everyone,

I was very recently diagnosed with Celiac disease (mid January) and have thus far found the transition to gluten-free eating to me pretty manageable. I'm still in university and my dining halls have a pretty decent selection of gluten free foods and my friends are very supportive.

Anyways, down to the nitty gritty: today I was alone cleaning up an event hosted at my school which involved desserts. I decided to eat some icing of the top of a leftover cup cake, and literally, the next thing I knew I had polished off a ton of these sweets (all containing gluten!). I'm sort of surprised and weirded out by the whole incident... I've never particularly binge-eaten before, and before my diagnosis I was never enough of a sweet tooth to demolish all those goodies in one sitting.

Has anyone ever struggled with something similar? I'd very much appreciate understanding what brought this on, and maybe some advice for avoiding it in the future. My best guess is that I'm a college athlete, and maybe I have not been adequately replacing the carbs I used to get from wheat products, and this was based in some sort of weird instinct/craving.

Also: does anyone know what my short-term reaction to this will be? I know I've done major digestive damage, I'm just sort of worried about what to expect in the next 24 hours or so.

Thank you all for your help! I'm sorry my first post on here has been such a demanding one :).

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lynnelise Apprentice
lynnelise
Posted

Everyone seems to react a bit differently. For me I'd have D, bloating, joint aches, rashes, and worsening fatigue for the next few days. Others get constipated, anxious, depressed, heartburn, ect. Some people have no reaction other than internal damage.

Maybe add more fruits and non-gluten carbs to your diet in the coming weeks so this sort of thing doesn't happen again! I hope the aftermath isn't too bad and passes quick.

cityflower21 Newbie
cityflower21
Posted
  • Author

Everyone seems to react a bit differently. For me I'd have D, bloating, joint aches, rashes, and worsening fatigue for the next few days. Others get constipated, anxious, depressed, heartburn, ect. Some people have no reaction other than internal damage.

Maybe add more fruits and non-gluten carbs to your diet in the coming weeks so this sort of thing doesn't happen again! I hope the aftermath isn't too bad and passes quick.

Thank you so much for answering! I seem to be experiencing a bit of all of the above, but I think I've definitely learned my lesson. Cheers :).

GFinDC Veteran
GFinDC
Posted

Welcome to the site Cityflower. Nice name! There is a gluten withdrawal that some people experience. That could be the catalyst for your binge. Gluten withdrawal symptoms fade with time so all you have to do is stick it out and they will go away.

How your body reacts to gluten may change as you are away from it longer. It is not a set in stone thing ta the beginning of the diet. I hope you don't have to much of a problem from it. It is almost inevitable to slip-up and make mistakes sometimes IMHO. Especially at when learning the gluten-free diet. But it gets easier as time goes by and we learn new things to eat.

anabananakins Explorer
anabananakins
Posted

Has anyone ever struggled with something similar? I'd very much appreciate understanding what brought this on, and maybe some advice for avoiding it in the future. My best guess is that I'm a college athlete, and maybe I have not been adequately replacing the carbs I used to get from wheat products, and this was based in some sort of weird instinct/craving.

I haven't with gluten specifically but I have struggled with bingeing generally for years (always on carb-y stuff) because when I try to lose weight the mental restriction of giving something up triggers an urge to binge. It doesn't matter that I can eat anything else from other categories, the concept of having to give something up would trigger an overwhelming desire to binge, even if I never even got to hunger. You might have felt something like that having only recently given up gluten. Maybe next time try and steer the cravings to something gluten free while you work through it?

I actually need to cut carbs really low to avoid cravings, but that's something else.

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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