Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Venting


angel-jd1

Recommended Posts

angel-jd1 Community Regular

Ok I just have to vent. I went out with some friends for supper tonight. I went ahead and ate before time. I knew we were going to Applebee's and they are not very celiac friendly. They put seasonings on their meats and even plain veggies aren't safe there.

I really thought I would be ok to just sit there and order a pop, seeing as I was full. I HATED sitting there and not getting some of the yummy coconut shrimp and pasta stuff and all the good smelling food.

I had fun, got to see people I hadn't seen in a while, but I hate feeling the way I felt tonight. Waiters kept asking why I wasn't eating etc etc. My waiter even bought my pop for me because he felt so bad!!

I really haven't had one of these "poor me" days in a while. I guess I'm due for one. Thanks for listening.

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Laura Apprentice

I hate those days!

I get them when I go grocery shopping when I'm hungry. I learned not to, but not until a couple times in the grocery store where I just about cried when I went past the frozen foods aisle, with all those pizzas. Now I've learned to shop when I'm not as hungry, and instead of crying, I stick my tongue out at things I can't eat.

Tonight, however, it's me and a bottle of champagne and a lot of Sex & the City videos and everything is good....(Dinner was cheeseburgers wrapped in corn tortillas...mmm) Gluten-free cookies later? Or ice cream? It's nice every now and then to take a night to have things I want and can have, and be totally decadent about it just for me. Then I don't feel so bad next time I can't have something I want.

hsd1203 Newbie

Guess the old "misery loves company" is true sometimes, but thanks for starting this thread as it makes me feel better that I was almost in tears at the grocery store tonight at all the things that looked yummy but I couldn't have... the worst are the foods that there is really no reason to put wheat in them but the companies feel the need to throw a handful in anyway (like my pre-celiac favorite kind of potato chips, for goodness sake) :( .

But on a happier note, I came home to find my (celiac) mommy had sent me super yummy gluten-free macaroons in the mail. Such a nice surprise and made me feel sooo much better.

So best wishes to everyone and hooray for the help this message board gives in keeping our chins up.

Guest jhmom

Jessica, I am so sorry about your night, I've had those too! :( After a while you get "tired" of explaining to everyone the reason you are not eating, it all gets very frustrating!!!

Maybe next time you and your friends can meet at a place where you will be able to not only enjoy their company but some of the yummy food too! :D

Hang in there :D

outthere39 Rookie

I know just what you are talking about (jessica), going out to eat can be down right miserable. I went out to a really nice restaurant a couple of weeks ago with a bunch of friends, and I wanted to scream. I ended up having a plate of sushi while others sampled everything on the menu. Needless to say I was still hungary. I am also sick of waiters and waitresses acting nimble minded when I try to alter a dish so that it is gluten-free. But the worse is my friends and new acquaintences asking repeatedly," do you want to try this...or why are you not eating>>even after I have informed them of being a celiac. I try eat out as little as possible and generally eat before doing so. :angry:

debmidge Rising Star

It's also depressing to go to a party like a wedding and not be able to eat anything, or being afraid to eat something plain that is normally gluten free.

guppymom Newbie

Wow, are we all having a time? I was asked to make dinner for an elderly, ill couple tonight, so I whipped a frozen veggie lasagne into the oven...one that we used to love, even though it made us sick. sigh. So it's cooking and it's all smelling so wonderful and I take it to their home, and THEY AREN'T HOME! They ditched me. So home it came and husband is going to eat it tonight. At the same table as the rest of us. Wanna bet there'll be drool over the top of it?

Remember my post about my daughter going to this day camp thing and how cool it was 'cause they were going to make food for her especially? ha. "it's too expensive to make non-gluten food, so we're having subs, she can eat the stuff on it and just leave the bread."

argh

I didn't even bother to explain about the condiments and the meats and etc etc etc.

i'm just sending food with her that she can eat. But good gosh. I thought we'd made some progress.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



danesmom Newbie

It's hard for me to understand what you have to cope with. My one year old is having his biopsy to confirm this on monday. It's depressing reading your messages and tears are rolling down my face as I type this thinking of him in your shoes. But thank you for sharing and making me understand a bit more into what he will - We will- have to begin dealing with.

Dane's Mom

Laura Apprentice

Not that it won't be terribly difficult for your son, but he won't have a chance to develop favorite foods that have gluten in them, so it'll be a different kind of difficulty. I guess it's like, would you rather be blind from birth and not know what you were missing or would you rather have the memory of sight so you know what other people are seeing?

It's also important to remember, for all of us, that the food situation gets better and better. In the 1970s my mom knew a woman whose son had celiac disease and she told my mom about trying to make him a birthday cake out of cornmeal. Now when I want cake, I just go to the grocery store and have several mixes to choose from, and so many different gluten-free flours to use to bake from scratch. As more doctors learn what to look for, there'll be more of us eating gluten-free, and more incentive for companies to make more and better foods for us to eat.

There are always going to be hard days, for sure. I have them often enough too. But at least on my birthday I can have a real cake!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.