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Negative Biopsy

ashlee.ream

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ashlee.ream Rookie
ashlee.ream
Posted

but i have all of the symptoms of celiac and a positive blood test. maybe its crohns or IBD? my mom and i both think i do have celiac disease.

the GI said i dont have celiac which doesnt make sense to me.

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maximoo Enthusiast
maximoo
Posted

Did you go back on gluten prior to the biopsy? Or were you gluten-free up till the time you were scoped?

Jai Rookie
Jai
Posted

Well, I had an "inconclusive" blood test and negative biopsy (of course this was done several months post gluten-free) We had suspicions and there was no way I could continue to eat gluten while waiting for the biospy (gotta love Canada's healthcare system!)

My mother has celiac and I had 100% the same symptoms as she had. I eliminated gluten and s...l..o..w..l..y but surely I got better. My gastro felt confident in saying I had celiac based on elimination of other diseases and family history.

Tests are not perfect! Despite my results I will NEVER eat gluten!

ashlee.ream Rookie
ashlee.ream
Posted
  • Author

i wasnt eating gluten when they did the biopsy. it makes me really sick and my bones and muscles ache. ect. my mom and i say i have celiac even though the biopsy says otherwise.

Jai Rookie
Jai
Posted

i wasnt eating gluten when they did the biopsy. it makes me really sick and my bones and muscles ache. ect. my mom and i say i have celiac even though the biopsy says otherwise.

oh well, if you weren't eating gluten, then there you go! You have to be in order for the biopsy to be accurate. And do you feel better when you stop eating gluten? Do you need more of an answer than that? I've had a top GI tell me that clinical results are worth way more! He said negative biopsy and all, he considers me celiac...

ashlee.ream Rookie
ashlee.ream
Posted
  • Author

yes i feel alot better when i dont eat gluten. thank you for the reply :)

  • 2 weeks later...
Retrotea Newbie
Retrotea
Posted

I'm not doctor, obviously, but if the blood tests are positive I'd say you have celiac. If it's literally looking at your "tract" and you haven't eaten gluten then it would be negative. And I would think regardless if your blood test was positive, no matter the GI tract test, then it doesn't matter. I'm told I'm celiac and I honestly don't have many issues aside from joint, teeth issues, vitamin deficiency, passing out once in awhile and bloating/stomach aches. I bet if I had my tract checked it wouldn't be that bad and may even be negative, etc, even when I do eat gluten.

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ashlee.ream Rookie
ashlee.ream
Posted
  • Author

thank you! :)

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    • knitty kitty
      symptoms.

      By knitty kitty · Posted

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    • trents
      symptoms.

      By trents · Posted

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
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      Newly Diagnosed

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    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
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