Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scalp Problems


LauraZ

Recommended Posts

Joan D Newbie

Hi, i am Joan, and I have been gluten free for 15 months now. Before that I used to had terrible dandruff like flakes falling from my scalp, it itched a lot and I was losing so much hair that I was worried, I tried different shampoos and vitamins, nothing seemed to help. Also my nails broke for no reason all the time. Then I was diagnosed a gluten allergy because I use to had terrible migraines. I started the gluten free diet and almost immediately my hair and nails improved so much that I couldn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

Joan, you posted in a thread which is from 2005. I doubt that the original posters are around anymore. Always remember to check the dates on the threads.wink.gif

Welcome to the board Joan!smile.gif

Alwayssomething Contributor

I too have this along the back of my neck and on my scalp, sometimes behind my ears and was loosing huge clumps of hair, I have thick hair so it wasn't noticable to anyone but me, but I swear I could have made a wig or two with it.

My rash was all over my body and actually was diagnosed with a positive TPO for hos$#&moto's by an allergist, the Endo he sent me to recogonized that the rash, and the TPO and all my other issues (low vit D, anemia, low vit B etc) were all from celiac and sent me for a boipsy, the derm said no need to biopsy this is DH. So I have a diagnoises but without biopsy, but agreeded upon by two dr's, so I was very comfortable with that.

My body cleared just going gluten free, my face and scalp have been more work, all my haircare products and body products had gluten (as well as my color) so I had to change all of those. I still had episodes and gave up iodine (based on help here and the relation to hoshimoto's) and I an happy to say I am 99% clear on my face and scalp.

It is my experience that if you have a skin reaction of any sort to gluten you have to rid your life of gluten not just your diet, makeup, lotion, shampoo, conditioner, etc.

Now if I can just get all my animals foods and treats gluten free I will be thrilled (right now someone else in the family does all the animal care until I fully transfer them over)

  • 3 years later...
BeeGfree Newbie

Hi.  I can't seem to find out any information about this scalp itching and the flaking off like oatmeal except for in here.  I have been off gluten for a month now and am eating Quaker rice cakes .  Had 2 today, and while I do not have tummy troubles, I do notice that the itchy skin at my elbows starts to burn and itch, and my head gets very itchy and the dandruff kind of thickens and gets very itchy.   i get this all over my head.  I can't seem to locate any info about these symptoms.  Does anyone in here deal with this from other things than wheat?

Thank You,

BeeGFree

SLLRunner Enthusiast

Welcome, @BeeGfree. :)

Are you aware you responded to a thread that was started in 2005, with its last post in 2012?  I am sorry, but you may not get a response from any of those posters because they may not be around anymore..  :)

  • 1 month later...
irish11 Apprentice

Omigosh Laura Z.  What you described , describes ME perfectly this past year.  Perfect description of the scalp.  That has been my biggest problem.  And it increases late afternoon and night.  I couldnt get docs to understand that a 9 am appt would not produce that for them.

I have been through h and back.  And I am right back to where i started.  Its DH, and I don't test positive because of the low IGA I think  (I have similar to your number).  I am so upset I could scream.

 

Irish

 

  • 3 weeks later...
Kurasz Contributor
On 8/30/2005 at 9:33 AM, LauraZ said:

Thanks, Karen. Interesting you mention that -- Thyroid problems run in my family -- my uncles and cousins all have it. Mine has been checked and shown to be normal... Is there is another type of test that is more sensitive that I should request? My knowledge of thyroid tests is minimal...

 

Thanks!

Laura

Sounds like hashamotos disease. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    5. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,376
    • Most Online (within 30 mins)
      7,748

    Citydweller
    Newest Member
    Citydweller
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.