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Constantly Hungry- Never Full


Xhale1227

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Xhale1227 Newbie

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.


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Brittany85 Rookie

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.

I felt that way too when I went gluten-free. I think it has something to do with malabsorption. I'd suggest eating small meals and snacks frequently with lots of protein. I think this is part of the detox process and I'm sure it will get better.

squirmingitch Veteran

Did the allergy testing include testing for soy? Soy gives me bloat.

I am hungry all the time too. I think it is like Brittany said ~~~ it's part of the process.

adab8ca Enthusiast

i had no appetite before I was diagnosed with Celiac...Lost 30 pounds without trying. Once I stopped eating gluten, I was RAVENOUS. If it was not nailed down, I ate it. I was never, ever ever full.

It did subside but I did put on at least 10 pounds in a very short time. If you are feeling better, I would not give up the diet for fear of a little weight gain. It eventually subsided with me, although I have started working out a LOT and am having a hard time losing any weight. My body seems to want to hold on to the nutrition it gets!!!

Lori2 Contributor

I would really recommend that you stay away from oats for a while.

TeknoLen Rookie

I wonder if your breakfast had too high of a glycemic load. Two cups of oats and the fruit might be spiking your blood sugar which can cause your insulin production to spike which can then lead to a "crash" as the insulin knocks down your blood glucose. Hunger is a common result of the blood sugar crash. The fats and protein in your breakfast should have helped moderate digestion of the carbs, but perhaps the sheer glycemic load was too much...

Xhale1227 Newbie

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.


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psawyer Proficient

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I'm sorry to hear that. Good luck.

RiceGuy Collaborator

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

As was suggested in another post, the oats might not have been such a good idea. They're basically all contaminated with gluten unless you buy gluten-free oats. And even then, there's no guarantee that you can actually have oats without suffering consequences anyway. Some can, and some cannot.

However, the symptoms you describe while on a gluten-free diet are not uncommon for those just starting out. Sounds like it could be gluten withdrawal, and many do go through it. Give it time. I think if gluten presented no problems for you, your body wouldn't be exhibiting such changes. I too had a ravenous appetite at first, and it lasted nearly a year. Ate until I thought I'd puke or explode, but couldn't satisfy the hunger. I resorted to liquefying all my meals in a blender, so as to maximize digestion and nutrient absorption. Wasn't very tasty, and got really monotonous, but it was necessary. You may not have to take such measures, but this should illustrate just how messed up a body can become, without the person even knowing it. After all, gluten was the last thing I thought bothered me. I ate tons of the stuff.

If gluten is a problem for you, be assured it is nothing to be trifled with. It will catch up to you, and like many on this board, you'll wish you'd taken action sooner. I know I sure do. But there's no going back. Today is the first day of the rest of your life. Make it count.

  • 2 months later...
Happytobefree Newbie

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I had the same thoughts as RiceGuy ( a few posts after this quoted post). From the descrpton of what you were eating, I think you are glutenng yourself. Be aware that once you give your body a break from gluten, you basically give it a chance to stand up for itself. I think that is what you are experiencing. The oats, the protien bar, produce wax, and your old kitchen equipment are all direct or contaminated sources of gluten. You can send your body back to starvation and malnutrition mode and lessen the symptoms, but you will be doing damage overtime. I would listen to your body. If you are not feeling, it's a sign that you are still ingesting gluten. I would encourage you to try again and start yourself off with a few food items that are COMPLETELY gluten-free and have only a few things on the ingredients list to lessen the chance of cross contamination. This site is an awesome guide to gluten-free versions of common food items and, as for fresh produce, I would find frozen gluten-free veggies and try finding a local produce shop that sells uncoated and unsprayed frut and veg. It is an undertaking, I can't deny that, but I, personally have been rewarded by getting my life, mind, and health back in sound condition.

Best of luck to you,

Jessica Enevold

Razzle Dazzle Brazell Enthusiast

When i stoppedeating gluten i was taking B-12 so i think it helps tremendously. I also take gluten fre multivitamin gummies. I agree that lacking nutrients can cause that insatiable hunger. How are you coping with the diet change? Are you using alternative flours and eating a varied diet with a lot of vegetables and fruits?

squirmingitch Veteran

Please note that the OP has not posted since they said they were quitting gluten-free on 2/27/12.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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