Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Free?


everything-free

Recommended Posts

everything-free Newbie

I have a lot of different food intolerances including gluten, lactose, potatoes and sugar. This obviously limits my diet, but because of the pain associated with eating these foods I do not find it too difficult to stick to it. I am always hesitant to try new foods because even when I stick to my diet, I have never felt 100% better (always tired even after sleeping ten plus hours a night and abdominal discomfort). I rarely eat dairy products that are labelled lactose free because I have heard about Casein and how a lot of people with gluten intolerances are also casein intolerant. Is there casein in all dairy products? And are there any other foods that may contain it that you would not expect?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I'm no expert but I think there is casein in all dairy products. I was told I could have goat's milk products but those made me just as ill.

mushroom Proficient

There are two components of dairy products: lactose, which is the sugar part of milk, and casein, which is the protein fraction. These are each digested by different enzymes. Lactose is digested by lactase which is produced at the tips of the villi in the small intestine -- the part that is damaged by gluten and has to heal before lactase can be produced again. This is why some people can eat some dairy products which are low in lactose, such as yogurt and hard cheeses, because these products contain very little lactose (It has already been digested by cultures and enzymes, and butter is almost entirely fat with the lactose churced out of it as buttermilk.

So it is easy to test if your are casein intolerant - eat some really aged cheddar cheese. Chances are if you react to it you are reacting to the casein, not the lactose. If you are okay with the cheese, drink a glass of milk which is almost pure lactose (especially low fat milk). That will test the lactose for you. There is no casein in anything which does not contain dairy products. There will be casein in baked goods which use butter or milk or milk solids. You can make your own baked goods using rice, almond, hemp or coconut milks. :)

tom Contributor

. . . ..There is no casein in anything which does not contain dairy products. ...

With the insane exception of powdered "non-dairy" creamer.

Or it's not an exception since it has dairy. :wacko:

I've been able to have goat cheeses & was thrilled to find goat cheddar, mozzarella & others besides the classic soft ones.

The difference, as I've heard, is that smaller mammals' casein molecules are smaller & I suppose just not recognized on a molecular level.

I've had goat cheese for yrs but just last night tried a sheep's milk feta as an experiment. Tasty & I think I just found another safe ingredient.

everything-free Newbie

Ok thanks a lot! I had an endoscopy and was told that I was lactose intolerance, but I will definitely try the old cheddar cheese idea to see if I react to the casein. It is also nice to hear that goat's cheese is still an option in small quantities. :)

mushroom Proficient

With the insane exception of powdered "non-dairy" creamer.

Or it's not an exception since it has dairy. :wacko:

I've been able to have goat cheeses & was thrilled to find goat cheddar, mozzarella & others besides the classic soft ones.

The difference, as I've heard, is that smaller mammals' casein molecules are smaller & I suppose just not recognized on a molecular level.

I've had goat cheese for yrs but just last night tried a sheep's milk feta as an experiment. Tasty & I think I just found another safe ingredient.

That term "non-dairy" creamer drives me insane too. I always used to think it was just that!! What exactly is the point of calling it non-dairy when there is dairy :wacko: ?? To confuse the heck out of peeps??? To make them sick? :ph34r:

I discovered the sheep's cheeses in Italy and fell in love with them totally :wub: The fresh pecorino especially, yum yum. Also love the heck out of goat cheese but iti s so expensive, but I do like the soft ones. ;)

everything-free Newbie

Are all goat's cheeses gluten and lactose free? I saw one at the grocery store that was "smoked goat cheese", do you think that would still be safe, or would you stick with the plain stuff?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Ok thanks a lot! I had an endoscopy and was told that I was lactose intolerance, but I will definitely try the old cheddar cheese idea to see if I react to the casein. It is also nice to hear that goat's cheese is still an option in small quantities. :)

Maybe. I'm casein-sensitive and can't tolerate it. Buy a little goat cheese and test first before you go whole hog.

Smoked cheese should be OK. Obviously beer washed cheeses are not.

tom Contributor

Are all goat's cheeses gluten and lactose free? I saw one at the grocery store that was "smoked goat cheese", do you think that would still be safe, or would you stick with the plain stuff?

Ohhhh that's right, lactose too. I've really only heard of goat casein sometimes or often being ok for ppl w/ a cow casein problem, but I don't recall anyone talking about lactose in that sense.

Shoot

stanleymonkey Explorer

if you have caesin issues double check the ingredients on all soy cheeses, I Know in Canada lots of soy cheeses have Cardin in them, we gave a daughter who has an anaphylactic reaction to Caesin

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,670
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.