Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To Nutritionist Or To Not Nutritionist?


jenn42

Recommended Posts

jenn42 Explorer

Is it important in the begining to get with a nutritionist to get started on the gluten free diet? Are they well informed of what exactly is needed to keep healthy on this lifestyle? What supplements are needed for good vitamin absorbtion? And...are probiotics necessary?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I think it's a really personal decision. If you feel like you have a reasonable knowledge of nutrition, and food, then I'd skip it. If you feel that you would benefit from some information from a "professional", then by all means. Keep in mind that nutritionists vary WIDELY in their quality, and some may know next to nothing about a gluten free diet. Definitely look for personal recommendations and consider asking a few questions before scheduling any one particular nutritionist.

Mizzo Enthusiast

Initially we saw a nutritionist at the Childrens hospital and she was very well informed. She gaves us a Power point presentations, a large package of info , walked us through basic dietary needs etc... Overwhelmed us with info really, but at least we were armed with knowledge.

I got an iphone app for Gluten free foods which helped with the shopping and still does 2yrs later.

A few months back we were referred to a nutri within our Pedi assoc. My DD is in 95% ht and wt and had slightly elevated Chol last year so we are working on a healthier lifestyle with a child who doesn't like many veggies *sigh* . anyways, this Nutri sent me home with very little helpful info, and a suggestion to sub bread and rice with bulger and spelt bread. Yes, both those items contain wheat and would have made my girl very sick had I not checked it out first.

So my point is, it really depends on the Nutritionist you see. One In a hospital and dealing with GI problems all the time is your best bet.

Darn210 Enthusiast

The nutritionist that we saw (recommended by the ped GI) was well-informed. However, it took three weeks before we could get in to see her. By that time, I already knew most of what she had to share because of my online research. She did tell me (in answer to my question) . . . Yes, you DO have to have a separate toaster and a new cutting board. ;)

jenn42 Explorer

Great information! I have been doing so much research and the help of everyone here, I doubt I would need a Nutritionist. Just a thought.

Thanks again!

Avalon451 Apprentice

I thought the same thing: by the time the nutritionist could see us, we had already been gluten-free for 6 weeks. However, I saw her anyway. She is the nutritionist for Seattle Children's Hospital, and she was very well informed. This was last Tuesday, at our follow up with the GI doc. I started off telling the nutritionist that I had already done tons of research and had 3 cookbooks. So she just skimmed through the material, pointing out what we might find helpful, and she did have some very good information about local gluten-free suppliers and restaurants, as well as reams of online info, current "safe" lists, etc. Then she just sent it all home with me to refer to when needed.

One new thing I learned: she said that any time it said "Manufactured on shared equipment with wheat" that it was an absolute no for us. I mean, I kind of knew that but thought that maybe this early on, the CC wouldn't be enough to bother us. However, my youngest was quite sick that day, vomiting and D, and I think now it might have been from the onion soup mix I used in a recipe the night before, which had no gluten in it but stated that it used shared equipment.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,791
    • Most Online (within 30 mins)
      7,748

    PamelaMayot
    Newest Member
    PamelaMayot
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
    • thejayland10
      That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else 
    • RMJ
      I don’t know how common it is, but it happens.  Total IgA going up is not necessarily celiac related.  The body can make IgA antibodies against all sort of things.   But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
    • thejayland10
      interesting I did not know that was that common or could take that long.  When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing.  I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free.  Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? 
    • RMJ
      Do you have any other results from either of the two labs where you’ve been tested recently?  If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range.  I realized that I had started baking with a different brand of gluten free flour.  When I stopped using that flour the level went back to normal.  Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten? 
×
×
  • Create New...