Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Energy Please.


lorka150

Recommended Posts

lorka150 Collaborator

Hey everyone,

Since realizing this summer that I have celiac disease, it's been tough, and my energy levels started hitting all time lows. When I stopped eating as much gluten, I got some energy back, and then when I went gluten-free, more came back. However, I am clearly lacking the energy to fuel my bod.

Most of the allowed grains for celiacs I have allergies to. I eat good servings of proteins and get tonnes of good carbohydrates through a ridiculous amount of veggies and fruit.

I am wondering if I should incorporate an actual bar/drink something energy related, because perhaps I am lacking in other things? I am not sure if I can find gluten-free products that I can have (because of the allergies too), but does anyone have any thoughts? I realize things like peanut butter and stuff will give me energy, but I'm thinking about all the other nutrients added to these products.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nogluten- Newbie
Open Original Shared Link and many other gluten free on-line stores have search engines that let you enter which items you want to avoid. This can help narrow down the search. Can you have milk protein (casein)? If so, Boost Breezes are good and give energy. I'm unable to continue them due to the casein, but they are good and give energy. Ensure also provides a lot of vitamins with limited allergens. Red Bull Energy Drinks are gluten free too, I think. Hope that helps some. Good luck.
aaascr Apprentice

I too, exercise everyday and have multiple food allergies along with

celiac disease. What I have found so far: Blue Sky's Blue Energy is gluten-free for

an energy drink. I use a sublingual B complex - B Total made by

Neutraceutical Solutions - also gluten-free, this helps me from "crashing"

which was a problem when I returned to my routine.

The only protein that I haven't reacted badly to is Shelled Hemp Seed -

I use Nutiva's though there are several brands around.

When I can tolerate it - I eat Nutiva's Hemp Seed Bar for an

extra boost. I am still searching for helpful food items

- but I find that a balanced diet while paying attention

to my activity level has worked mostly so far.

You didn't say which food allergies you have, there

may be more choices for you as mine are extremely

limited.

Guest gfinnebraska

I exercise daily, and, yes, sometimes energy is an issue. I work all day... cook, clean... you get the picture. Some days I need a quick 10 min. snooze to be able to keep going. That is what works for me! :) I do take liquid vitamins ~ that helps as well. The exercise actually helps me get more energy for the rest of the evening, so it is well worth it.

lorka150 Collaborator

What vitamins do you take? and what do they specifically help you with?

Guest gfinnebraska

I take a liquid B-12 and a mulitivitamin liquid for women over 40... :) I can't rememeber the link to the site (it is at work), but you can "google" liquid vitamins and go from there! The brand I use is: Luiquid Health ~ their web site is:

Open Original Shared Link

Hope that helps!!

  • 4 weeks later...
Carriefaith Enthusiast

I've been drinking a lot of blueberry smoothies lately and find that they give me extra energy. This is how I make them:

1 cup frozen blueberries

1-2 tablespoons honey

1 teaspoon vanilla

1 - 1 1/2 cups So Good Vanilla Soy milk

1 small banana (optional)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

CoQ10 is supposed to be helpful for energy. I'm taking it - on the recommendation of my doctor - as a migraine preventative, but think it's made an energy difference as well. (I take it along with my regular calcium/magnesium/vitD, B-50, and multi.)

bluelotus Contributor

I work out daily as well. I began eating more animal protein (and try to stay away from beef and pork for most meals, just b/c of fat). This has seemed to help. I wanted to start drinking a protein shake, but don't have the guts or the heart to contact these companies - I just know none are safe!

Claire Collaborator

Just another vote for CoQ10 - 200-400 mg per day. Claire

mytummyhurts Contributor

Have you had blood work done to see if you are deficient in vitamins? Low B12 causes problems with energy. Amongst other more serious problems. A multi-vitamin won't help much until your intestines are fully healed which often takes many months as you won't absorb it very well. Shots or sublingual tablets are better.

  • 1 month later...
LLCoolJD Newbie

I've not read through the other replies, but here's my advice:

-Get tests done to determine whether you have nutrient deficiencies. Anemia being the key one to check for. If you do have anemia, then some iron ought to help things.

-'Think Thin' is an energy/protein bar you can get here in the United States. At Wal-Mart, they sell for about $1.50 per bar, which isn't bad, because they're the highlight of my day, food-wise. Gluten-free, of course. They go great with my morning coffee. Packed with protein and a host of nutrients. Very good stuff, and my recommendation if you're considering a daily energy bar (try the peanut butter crunch.... oh yeah ;) ).

- I take a number of supplements: L-glutamine, Selenium, Calcium, Magnesium, Zinc, and a Multivitamin. The Selenium and Zinc are a couple that I'll probably phase out of using, but the others I plan on sticking with. If there's only one of these that you should take, it's definitely the multivitamin. Centrum is gluten-free.

- I also take Lactobacillus probiotic tablets with my big meals. I feel better when taking these everyday. It may just be psychosomatic, but some reports state that they help with the leaky gut suffered by those with Celiac disease. Who knows. They're cheap, and harmless at worst, and beneficial at best.

I'm not always energetic (who is?), but I find that plenty of sleep, plenty of food, and the supplements to my diet listed above help keep my energy high. Since going gluten-free and learning the ropes of the lifestyle, things have gotten better in the gym, and I'm much stronger than I was when chowing down on high-calorie, gluten-rich foods.

  • 2 months later...
lemonade Enthusiast
I've been drinking a lot of blueberry smoothies lately and find that they give me extra energy. This is how I make them:

1 cup frozen blueberries

1-2 tablespoons honey

1 teaspoon vanilla

1 - 1 1/2 cups So Good Vanilla Soy milk

1 small banana (optional)

Carriefaith,

i was wondering, what type of vanilla do you use?

L

VegasCeliacBuckeye Collaborator

I work out in the morning and drink an Ensure at Mid-day (+ 1 Granny Smith Apple) and my energy level is ok (until around 8 or so)

watkinson Apprentice

Hi,

Have you had your thyroid checked? If your hypothyroid that could be the reason. Even if you are in the low levels of normal it can zap you're energy. Try taking tyroid aid vitamins. I get mine at Whole foods. Check the label for the gluten-free kind. My hands and feet are always like ice cicles. These vitamins seem to help that. I've also noticed less pain in my legs when I run. :)

I also take Omega-3 fatty acids. (fish oil, walnuts, flax seed). They seem to help with everything. Energy, clearer thinking, joint pain, even my hair is softer. :)

Wendy

velo-mike Rookie

lorka150, I see you're from Canada. Give this a try: www.myvega.com. It is vegan and gluten-free. I find that it just works great. One scoop twice a day really helps keep my energy levels up.

Not sure if it's available in the US though?

  • 2 months later...
GreySaber Apprentice

This is something of a concern to me as well, but rather then 'ready made energy booster' products, I'm really more interisted in gluten free 'every day' energy. So many people get their carbohydrates from wheat, such as wheat pasta or whatnot.

I don't feel like I'm getting enough enery from the gluten free products I'm eating. Can anyone give me some advice or some pointers? I'm trying to eat more beans and I do have white rice and white rice pasta, but I'm informed that white rice isn't all that good for you.

I don't have so much of a problem preventing weight loss, indeed I am trying to loose weight and build muscle, but I often feel I just don't have the energy to excersize.

lorka150 Collaborator
This is something of a concern to me as well, but rather then 'ready made energy booster' products, I'm really more interisted in gluten free 'every day' energy. So many people get their carbohydrates from wheat, such as wheat pasta or whatnot.

I don't feel like I'm getting enough enery from the gluten free products I'm eating. Can anyone give me some advice or some pointers? I'm trying to eat more beans and I do have white rice and white rice pasta, but I'm informed that white rice isn't all that good for you.

I don't have so much of a problem preventing weight loss, indeed I am trying to loose weight and build muscle, but I often feel I just don't have the energy to excersize.

hi! what kind of exercise do you enjoy doing? do you eat quinoa? it's an excellent source, same with buckwheat. do you bake and cook? you can make your own bars.

GreySaber Apprentice
hi! what kind of exercise do you enjoy doing? do you eat quinoa? it's an excellent source, same with buckwheat. do you bake and cook? you can make your own bars.

Mostly I like practising the Liechtenauer system, (on good energy days) but pretty much anything would be good.

What is Quinoa? Must look this up..

lorka150 Collaborator

quinoa is fantastic - it's a super grain, and a full protein. you can buy it and cook it similar to rice, or buy it in flakes, or flour.

Carriefaith Enthusiast
Carriefaith,i was wondering, what type of vanilla do you use?
McCormick will clearly label gluten, so I usually use that brand. Actually I make smoothies without the vanilla and they are just as good. I found that the vanilla got too expensive.

And a response to the original post... I was diagnosed just over 2 years ago and I just noticed that this is the first year that I have noticed my energy levels returning. I play soccer and this is the first year since my diagnosis that I actually feel like myself again :) I can actually sustain my energy instead of feeling like I am going to faint. I must of needed that much time to recover. Maybe you just need more time. In the meantime, try eating blueberries and foods high in protein for energy such as shrimp.

Robix Apprentice

Hello there, (warning - very long post)

I have been teaching fitness for 16 years, and have regular column in the industry magazine here in Canada, as well as being a master instructor and certifier for the national association. I teach daily, I teach a morning class, a mid-day class and an evening class, on top of taking martial arts on my own time. I teach about 400 students per week, am a workshop presenter, had a daily tv show on our sports channel here, and cousel professional athletes on nutrition.

I say all this just so that you know that I am a reliable source of information.

First thing, if your energy is low, you have to start at the matabolic level:

How is your hormonal balance? (especially for women, given our hormonal fluctuations and terrible fad diet habits, many women have chronically low growth and sex hormone levels). You may not know your hormonal profile, but here are a few ways to ensure your hormonal levels are adequate to maintain your basal metabolic rate high enough:

1. Avoid soy (the phyto-estrogens in soy wildly interfere with growth hormones, which in turn inhibits us from recuperating adequately from physical stressors like exercise or resistance training)

2. Ensure you are getting magnesium

3. Ensure that you are getting omega-3s (hate to say it, but cod-liver oil is the best)

4. Ensure you're hemaglobin profile is balanced (check your B-serums, and Iron)

5. Ensure you are well hydrated (about 2 litres per day, plus 1 litre for every hour of strenuous exercise - the first sign of dehydration is exhaustion, not thirst)

6. Ensure you are getting enough calories, here is how to calculate:

Basic caloric needs (depends on your gender, weight, height and muscle mass)

Add the calories for exercise expenditure (this will vary per training day)

Here is how I calculate mine:

basic calories: 2,500 (based on my stats)

Cardio: 800 calories

Resistance training: 450

Total calories needed per day: 3,750

Sounds like a lot? If I eat less than this I lose muscle mass and experience tremendous fatigue and interestingly, put on fat (crashes my basal metabolism).

7. Ensure you are getting the proper nutrients, and in a steady supply:

I recommend my athletes (if you train every day, I consider you an athlete) eat 6 to 8 small meals per day

We calculate their protein requirements in grams per meal (every meal is protein and fat based)

Carbs come from vegetables and fruits to avoid energy burn-out on processed starches and sugars

Not enough fatty protein in your diet will inhibit the production of growth hormones (again a key metabolic process for athletes) fatty protein: seeds, nuts (sunflower, pumpkin, almonds, hemp, flax are ok), salmon, beef, tuna, raw oysters are ideal. Eat organic if possible, and as raw as possible. Organic eggs are one of natures most perfect sources of protein - eat the whole egg and if possible poached with a runny yellow (avoid frying, avoid fully cooking the middle.).

8. Energy zappers to avoid:

Artificial sugars and sweeteners (they interfere with your endocrinology)

Processed and refined sugars and starches (they cause massive insulin deregulation)

Energy drinks of all kinds (if you must, one or two organic coffees per day - avoid anything that glows in the dark, ir bright orange, green or purple. LOL! Sorry gatorade, we know you are sugar water, and red bull is downright dangerous for your health).

Energy bars, protein shakes...I know this is controversial, but have a handfull of seeds, nuts and dried fruits instead. Just try to read one of the labels on those things - they are basically an amalgamation of 40 to 60 chemical products. Again, chemicals have all sorts of effects on your hormone levels. My rule of thumb is if you don't know what it is, can't pronounce it, don't eat it. Unless you are a professional bodybuilder getting ready for a competition, avoid crap like this. They take controlled risks by injecting and ingesting stimulants and additives in order to have artificially developed bodies.

Avoid packaged foods. The longer the shelf life of a food, the less it will be nutritious.

9. Sleep.

Most people are sleep deprived, and athletes need even more sleep than the average person as this is when their body repairs itself and when (ta-da) growth hormones, cortisol, is released. Not enough sleep, not enough growth hormones: your body will make you tired in order to encourage the rest it needs to produce it.

10. Still tired? Revise your work-out plan. It might be poorly constructed.

Cardio - ok to do every day as long as you are not working out to the point of muscle exhaustion.

Resistance training, ensure that you give every muscle group trained (even abdominals, its a myth that you can do those every day) a 24 hour rest.

Stretching - flexibility exercices should only be performed on resistance trained muscles on their rest day. Light stretching is ok on day of - but not deep stretches which deepen the micro tears.

Something like Yoga, Pilates can be done daily, as long as you do not experience muscle exhaustion. If you do, your muscle group requires rest. (really depends on how these are performed).

11. If you are female - it is absolutely normal to feel extreme fatigue the day of your ovulation, and the days preceeding your period - why? Higher estrogen and progesterone, lower testosterone. If you listen to your body, it will tell you to work just as hard on those days, but that your point of fatigue will come earlier and require lower weight resistance on those days. Its important to respect your body when it tells you to back off - or your metabolism will force you to take a break by conserving energy and slowing down.

Ok! I think this is my longest post EVER! Sorry - hope you stuck with my this far.

Usually I charge $150 an hour for this - but what the hay! I know how many of us fight for energy, having pernicious anemia and gluten intolerance means that I fight for energy every waking moment. The above list allows me to access and optimize that energy by revving my engine (metabolism).

Taking energy bars is like treating the symptom instead of the disfunction - and the energy bar craze is my personal pet peeve. They are bad for you and in the long run, screw up your system.

Be well - namaste.

lorka150 Collaborator

thanks!

i know you usually charge, but do you think perhaps you could help me out, more on a one on one level? i can give you details, if you are potentially interested, or not too busy.

thanks again,

Laurie

Robix Apprentice

I am actually launching my online services in the fall (complete with a video series! am very excited about this!) but don't mind giving people on the board a helping hand from time to time, given that I actually take away so much free advice from the community.

I love the information I get here, and unfortunately, the only expertise I can contribute is fitness related! So if I can make a small contribution, its my pleasure!

I can't commit to personal coaching online right now, given that my time online is limited (as you can see from my usually short and infrequent posts) but if I can answer specific questions for you, or point you to other sources of good information it will be my pleasure!

PS. lots of bad information out there, much of it is in fitness magazines - if you want a good source of information, ignore anything that has advertising or sponsorships from the big supplement companies.

JenAnderson Rookie

I exercise every other day, Take a hypoallergenic prenatal vitamin every day, and I use Hydroxycut (two tablets in the morning) every day. I have never felt better and I have lots of energy despite being anemic. I talked to my Doctor and she said that the only thing that was in there that was "bad" was caffeine, and she said that would probably help me cut back on the amount of caffeine I have daily. I have and I've lost a total of 25 pounds and 3 inches on my waist. I have no complaints about it at all, but I would recommend that you talk to your Dr. or don't take it if you have thyroid problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.