Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Attempt To Go Straight Gluten Free


Sparky84

Recommended Posts

Sparky84 Newbie

Well I have had stomach issues all my life (started with GERD as an infant). About 2 years ago my doctor determined I have celiac. I have been doing a gluten free diet, most of the time, but would always eat normal for a day or two on the weekends (and yes I would suffer from it). It would always be worth the pain for me just to be able to eat normal with my family for a day. Well those days are catching up with me it seems and I can no longer eat "normal" without getting really sick. Also I have been doing more research and realize the health concerns I could have if I continue to eat that way.

Another problem I have is what I believe is called oral allergy syndrom. It all started about 10 years ago when I would eat apple my lips and mouth would start to burn a little. That has now turned into swelling and intense burning when I eat raw apples, bananas, pears, watermelon, etc. almost all fruits and now even almonds and some other nuts.

I can eat cheese (straight, cottage, cream, etc.) and not have any problems but it seems ice cream or drinking straight milk has a poor effect on me and also makes me sick.

Basically I am feeling sorta depressed about this whole situation but know I need to change my lifestyle so I can be around for my family for hopefully many years. Sorry for the rant but it is going to be a hard adjustment. Look forward to searching this site for tips and helpful info.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Metoo Enthusiast

Its totally normal to feel like that! I know I did!

I still think longingly for gluten sometimes but I no longer feel sad or overwhelmed about it!

Good Luck! The other food issues may go away after you are gluten free for awhile!

Victoria6102 Contributor

I have celiac, oral allergy syndrome, and am lactose intolerant. You CAN do it! Eating gluten on the weekends is going to slowly kill you. You have to eat gluten free, no cheating!!! it will get easier as you go along, and in time you will be able to accept that you can't eat those foods. For now, stay strong and know it will get better! :)

Skylark Collaborator

I'm glad to hear you understand the dangers of eating gluten now. I wish it were as simple as tolerating being a little sick, but this isn't a diet where we can have a day off. :( It's often easier if you make or buy gluten-free versions of your favorite foods. It will help keep you from feeling deprived. There is a recipe section on the board where you can ask if you can't find a recipe.

You need to be careful of cross-contamination in the kitchen too if your family is still eating gluten. Crumbs in the butter or mayo can be enough to damage you. You need your own condiments and I would not recommend doing any baking or cooking for the family with wheat flour. It gets into the air and goes everywhere in your kitchen. You need your own cutting board, your own toaster or toaster bags to keep your bread clean of crumbs, a separate colander for gluten-free pasta (they are too hard to clean!), and don't use porous things you can't wash well like wooden spoons in gluten-free food.

It sounds like you're lactose intolerant if you can have cheese but not milk or ice cream. That's really common if your villi are damaged and it can go away if you are strict on the gluten-free diet. Have you tried Lactaid milk?

I used to have a little oral allergy to cantaloupe and ripe bananas. It stopped being a problem after I had been gluten-free for a couple years.

Sparky84 Newbie

Thanks for the replies. I think my main mission here is going to be planning. If I can plan my entire week of food I believe it will be a lot easier to keep with the diet, otherwise I always find myself in the "there's nothing to eat" mindset. One hard thing for me is I work on the road everynight and planning what I can bring in a cooler usually is difficult, can't wait to find some type of gluten free bread so I can make a sandwich!

Skylark Collaborator

If there's nowhere you can buy it locally, there are plenty of places you can mail-order bread. The sponsor of this message board, Open Original Shared Link has a wide selection. I'd recommend Udi's or Rudi's for sandwiches. They have a good texture. You can also make bread from a mix like Bob's Red Mill or Pamela's.

Remember that cut veggies, plain potato chips or corn chips, fruit, and nuts are all naturally gluten-free and good to throw in a cooler. You can also throw in meat, cheese and rice cakes or corn tortillas if you find yourself out of sandwich bread. Another option is to warm some dinner leftovers and put them in a thermos.

Adalaide Mentor

I love Udi's for grilled cheese and french toast but not so much for cold sandwiches. I just prefer Rudi's for that. Not sure if they're still available but last I looked Rudi's has $2 off coupons on their facebook.

I've always been a pasta lover, Tinkyada holds up well enough to make cold pasta salads which would work well for a packed lunch. (I have leftover chicken alfredo with me today.) Also, if you are up to baking check out the gluten free Bisquick recipes. A lot of them would make wonderful things to bring along. I just made the coconut pie 2 nights ago and it is absolutely to die for. Muddy buddies also make a great portable (if mildly messy) snack.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sparky84 Newbie

I bought some Udi's bread and had a sandwich today. I warmed up the bread for about 10 seconds in the microwave before I made it which made the bread soft. Only odd thing to me is the size of the slice of bread. Is it made for little kids??!!!

GottaSki Mentor

Only odd thing to me is the size of the slice of bread. Is it made for little kids??!!!

:) We thought the same thing when we first started eating Udi's -- now other folks sandwiches look huge to us! My family's favorite bread has switched to Canyon Bakehouse if it is available near you -- it is sold in the "fresh" bread section of our Sprouts (used to be Henry's) Store -- guess it has been around for a little while but I was so trained to go to the frozen section for Udi's I missed when they started selling it.

We still keep a stock of Udi's in the freezer as I try to wait for Canyon Bakehouse to go on sale to stock up!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.