Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash On Wrist!

Amby

By Amby
in Dermatitis Herpetiformis

Recommended Posts

Amby Newbie
Amby
Posted

Hey there! I just recently joined and was wondering if some of you could help me. I've had celiac disease since I was 10, as well as diabetes type 1. ( I am 25 now) About 9 months ago I've gotten a really bad rash on my right wrist that itches like crazy! I went to a doctor and they gave me medicine, but it helps for a while to lighten up the redness--just never goes away. It's red, flaky and itches nonstop. I'm going to a new endo for my diabetes on Monday, and will bring up everything with her. Just thought maybe you guys could tell me if you've heard of dh on a wrist before. Take care :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

DH can appear just about anywhere on the body. And I've had it on my wrists. How strict are you in your gluten-free diet? Are you getting any cross contamination?

Amby Newbie
Amby
Posted
  • Author

I've actually just started following it maybe 2 days ago (thats also why I joined). I'm hoping to see an improvment soon because it really itches and looks disgusting.

I know I should have been taking care of this but late is better than never :)

weaselfish Rookie
weaselfish
Posted

Hey there! I just recently joined and was wondering if some of you could help me. I've had celiac disease since I was 10, as well as diabetes type 1. ( I am 25 now) About 9 months ago I've gotten a really bad rash on my right wrist that itches like crazy! I went to a doctor and they gave me medicine, but it helps for a while to lighten up the redness--just never goes away. It's red, flaky and itches nonstop. I'm going to a new endo for my diabetes on Monday, and will bring up everything with her. Just thought maybe you guys could tell me if you've heard of dh on a wrist before. Take care :)

Hello Amby,

Yup, in my peak of DH I had it on both wrists, most of my forearms up to my arm pits, lower to middle back, outside of thighs, calf's and shins. I'm 54 and DH hit me hard nearly a year ago. I've been gluten-free since about the middle of December 2011 and I'm now healing ( ie, no weeping, open lesions, blistering, stinging / burning, or itching ). It's a slow process but I'm making progress.

My research and experience tells me that the ONLY way to deal with DH is to remain gluten-free and more likely than not, severely restrict iodine intake or in some cases, eliminate it all together. However, the Thyroid needs iodine to function properly. So, we are ALL individual cases and must pay close attention to how our bodies react with the above mentioned.

So, YES, DH manifests on the wrists too. Be ever vigilant and observant and you will free yourself / be able to control the affliction.

Best of luck and peace,

WF

eatmeat4good Enthusiast
eatmeat4good
Posted

I had it on my wrists too...and my face...and my calves...and my back...and the back of my neck...and by far the worst is to have it on your face. But,yes, you can have it on your wrists.

Glad you are going gluten free. The rash tends to be very sensitive to traces of gluten and the flares can last a long time. Iodine may need to be limited for healing to occur. If this is the case for you see thyca.com for how to limit iodine in your diet. The pain and itching can be temporarily relieved with benzocaine products such as solarcaine, bactine, and walgreens pain relieving ointment, all of which contain benzocaine which helps to stp the burning and itching. But nothing will heal the rash except strict gluten free diet and low iodine until the rash heals. Then you can add iodine back to your diet.

Good luck, I hope it stays only on your wrists and that it heals fast.

Di2011 Enthusiast
Di2011
Posted

I have a problem with many "gluten free" products that use wheat(gluten) as derivatives. As an example xanthan gum is often wheat derived but supposedly "gluten free" due to the process it undergoes.

It is gluten free enough for me so I avoid the gums and the 400's and 1400's additives as a strict rule.

My DH has been so bad that I tend to avoid any product with numbers in the label. This includes "flavours" (((what flavour from what original source)))0.

Amby Newbie
Amby
Posted
  • Author

Thanks everyone! It's a hard adjustment, but well worth it! I've actually seem to have more energy now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,679
    • Most Online (within 30 mins)
      7,748
    ashleyturner3696
    Newest Member
    ashleyturner3696
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.