Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New York And Indianapolis


UKGail

Recommended Posts

UKGail Rookie

Hi everyone. I've been basically shutting between home and work for the 6 months since going gluten free, and have only eaten a couple of times at trusted friends places. I have fairly strong reactions to airborne gluten and gluteny smells (mainly neurological), so am not keen on eating out unless it is in a gluten free place. At this point in time I also still need to keep to a mainly meat, fish and produce diet.

My family have decided they want to fly to New York and then have a road trip to Indianapolis to catch up with family we haven't seen for a few years for our summer holiday. Does anyone have any suggestions about self-catering accommodation in either of these places, and/or any gluten free restaurant/cafe recommendations? For New York we would stay in either Manhattan or in Westchester.

I am also a bit nervous about driving across country to Indianapolis, not because of the distance (we drove 2,000 miles last summer in Europe when I was sick and didn't know why...) but because of the difficulty of access to safe food during a long journey without all the usual picnic supports from home.

Any advice from more seasoned celiac travellers or residents of these places would be very welcome.

Thank you very much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ndw3363 Contributor

I live in Indianapolis and we do have some restaurants that may work for you. Not sure since you seem to be super sensitive to even the environment of the establishment. If this is true, you may have to do take out, but you would know best for that. I don't know of any strictly gluten free restaurants in the area. My favorite sit down restaurant is Cooper's Hawk winery - I've never gotten sick there. Their gluten-free menu is extensive and I go multiple times per month (the Napa Chopped Chicken salad is my new addiction). For quick and easy, I like Jason's Deli. This may be a problem for you to go there if you are super sensitive to inhaling anything as they do have regular bread around. But again, never had a problem there myself. Unfortunately, I can't help you on the roadtrip aspect since I haven't had to do one since becoming gluten-free. I would just pack a large cooler of safe foods that you know you can have and then picnic at rest stops. It's cheaper this way too! Hope you have a great time in our city!!

UKGail Rookie

Thanks so much for responding ndw. Cooper's Hawk looks great, with yummy food. I seem to be ok if I am in a room that is large and well ventilated, so this might be ok, if you trust them. The deli looks more problematical as its menu is bread-based. We have a small cafe in our neighbourhood which does lovely fresh home-made food, and its extensive selection of home-made cakes are mostly gluten free. When I found out I was gluten intolerant I thought "great, I still have a restaurant nearby to go to". Wrong! I went there to buy one of their gluten free cakes, and felt like I had been hit by a wall of flour as soon as I walked through the door. I had a similar experience at our local small deli, when trying to buy a bagel for my daughter. I realise this is not a typical celiac reaction, and may be an allergy instead.

Thank you for your advice. I have printed off the details for Coopers Hawk, and will save them for the trip.

Jestgar Rising Star

You could get a little cooler for the car: Open Original Shared Link. Get some lunch meat, cheese, whatever at a store and you are set.

curlyfries Contributor

I'm from Indianapolis but don't eat out much. You might try going to www.glutenfreeindy.com and joining the on-line support group. They can give you some great ideas on where to eat.

UKGail Rookie

Jestgar and Curlyfries - thank you very much for your suggestions. The cooler looks like a good idea, and not something I've seen in the UK. I'll give the indy support group a try too, thank you.

I am still having to think about whether I can go or not (or at least travelling any further than NY) as I am still struggling to eat anything out of a packet (I have a very, very limited list of items I am ok with). I tried peanut butter again on Friday and spent the whole weekend with all the usual lovely symptoms of a full-on glutening. It was a new jar, so I can't blame anyone else for double-dipping.

It feels a bit like Hobsons choice, do I go and risk ruining the holiday for the rest of the family if I get sick, or not go and miss out, and make my poor husband do all the work looking after the kids? They are teenagers so we only have a few years left of them agreeing to go on holiday with us anyway.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,743
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.