Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Growing After Gluten Free Diet...is It Too Late?


ImWithStupid

Recommended Posts

ImWithStupid Newbie

I'm a 6'2" 20 year old male, self diagnosed celiac. I've had stomach issues since is was 12-13 which progressed into many debilitating symptoms. These are the symptoms that subsided after going gluten free:

migraines

fatigue

diarrhea

purple/blue hands

brain fog

low blood pressure

uncontrollable muscle twitches

I've been gluten free for about a year now but I still have issues with nutrient absorption. I take a multivitamin daily, but if I don't take it for a few days I start to feel a bit off. I am now also able to eat most dairy products without issue, but milk can sometimes give issues.

Now to the point of the post. I reached 6'2" when I was 13-14 years old. My doctor told me that with my genetics and rate of growth I should easily hit around 6'7". Unfortunately as I kept getting weaker and fatigued as the years went on, I never grew another inch. I guess this is aimed at people that had it diagnosed in their teens or have kids that are now gluten free. Is it possible to start growing again once nutrients and balance is restored to your body? I know that this is a long shot but one can hope. Before I got sick I played as many sports as I could in school but unfortunately I had to give them up. Now that I am feeling better and can exercise without feeling like I am going to die, those few inches of height I missed out on are much desired.

Thanks for taking the time to read.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



saintmaybe Collaborator

I'm a 6'2" 20 year old male, self diagnosed celiac. I've had stomach issues since is was 12-13 which progressed into many debilitating symptoms. These are the symptoms that subsided after going gluten free:

migraines

fatigue

diarrhea

purple/blue hands

brain fog

low blood pressure

uncontrollable muscle twitches

I've been gluten free for about a year now but I still have issues with nutrient absorption. I take a multivitamin daily, but if I don't take it for a few days I start to feel a bit off. I am now also able to eat most dairy products without issue, but milk can sometimes give issues.

Now to the point of the post. I reached 6'2" when I was 13-14 years old. My doctor told me that with my genetics and rate of growth I should easily hit around 6'7". Unfortunately as I kept getting weaker and fatigued as the years went on, I never grew another inch. I guess this is aimed at people that had it diagnosed in their teens or have kids that are now gluten free. Is it possible to start growing again once nutrients and balance is restored to your body? I know that this is a long shot but one can hope. Before I got sick I played as many sports as I could in school but unfortunately I had to give them up. Now that I am feeling better and can exercise without feeling like I am going to die, those few inches of height I missed out on are much desired.

Thanks for taking the time to read.

For girls in your age bracket, I'd say there's a very slim possibility that any growth may occur. This is because the growth plates on the bones of the vast, vast majority of girls have fused by age 20. In fact, they've usually fused by the time a girl hits 14 or 15 years of age. This means that any more lengthening of the bone structure is unlikely. This is why most women reach their maximum height by early puberty and never put on more.

Guys however, is a different story. Guys can hit a late growth spurt in their late teens or early twenties. Unusual, but it definitely does happen. There may be hope for you yet, but I wouldn't necessarily count on it. 6'2" is a great height though. Unless you want to be in the NBA, I wouldn't stress about it too much or consider it stunted.

I was predicted to be 5'7", and ended up being the mouse of the entire family on both sides at 5'2." Girl here though, and I don't think growth patterns were as well understood back in the early eighties when they were making my predictions. :rolleyes:

stanleymonkey Explorer

guys don't stop growing on average until 21, girls 18 as they usually hit puberty earlier, so fingers crossed!

maximoo Enthusiast

It depends on what stage of puberty you are in. Stage 5 the last stage when chest hair, full beard etc are in full bloom. Boys complete stage 5 @ different ages up to age 21. But if you really want to know you will need a bone age xray to see if your growth plates are fused.

rosetapper23 Explorer

Okay, I think I know the answer to this particular question. My son, who has celiac, was projected to be between 6'5" and 6'8" inches, but his celiac was triggered at 11 just as he entered puberty. Until then, he'd been at 110% of the population, but then he began to fall behind. He was finally diagnosed with celiac a month before his 16th birthday, and I thought that he'd probably never reach his full height potential. However, he (like the other celiacs in my family) grew until he was 25 and ended up at slightly over 6'4", which is close enough to what his doctors had predicted. Also, at a conference I attended several years ago, the main speaker mentioned that celiacs' bone plates can fuse later than normal because the hormone involved in halting bone growth isn't well absorbed. I can attest to growing an extra inch in my 25th year, and I didn't yet know I had celiac. Whenever I attend annual conferences for celiacs, I'm amazed at how tall most of the attendees are--I think it's because of the growth plates not fusing as they're supposed to. Hope this helps...

ravenwoodglass Mentor

It is possible but it is also possible you won't. My DS was diagnosed at 19 but his growth plates had already fused so he didn't grow any more at all. As another poster mentioned you could get x-rays to see if your growth plates have fused. 6'2" is a great height though. Be glad your growth wasn't stopped in earlier childhood as happens with some of us.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    2. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    4. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
    • knitty kitty
      @tiffanygosci, Hello.  I apologize for your thread being hijacked.   I recognize your symptoms as being similar to what I experienced, the migraines, food and chemical sensitivities, hives, nausea, the numbness and tingling, joint pain, tummy problems, sleep problems, emotional lability, and the mom brain.  My cycle returned early after I had my son, and I became pregnant again with all my symptoms worsening.  Unfortunately, I lost that baby.  In hindsight, I recognized that I was suffering so much from Thiamine deficiency and other nutritional deficiencies that I was not able to carry it.   Celiac Disease affects the absorption of nutrients from our food.  There's eight B vitamins that must be replenished every day.  Thiamine Vitamin B1 becomes depleted first because it cannot be stored very long, less than two weeks.  Other B vitamins can be stored for two months or so.  But Thiamine can get low enough to produce symptoms in as little as three days.  As the thiamine level gets lower, symptoms worsen.  Early symptoms like fatigue and anxiety are often attributed to life situations, and so frequently go unrecognized by medical professionals who "have a pill for that".   I used to get severe migraines and vomiting after gluten consumption.  Thiamine and the other B vitamins are needed to turn carbohydrates, fats and proteins into fuel for our bodies.  With a large influx of carbohydrates from gluten containing foods, the demand for Thiamine increases greatly.  Available thiamine can be depleted quickly, resulting in suddenly worsening symptoms.  Emotional stress or trauma, physical activity (athletes and laborers) and physiological stresses like pregnancy or injury (even surgery or infection) increase the need for Thiamine and can precipitate a thiamine insufficiency. Pregnancy requires more thiamine, not just for the mother, but for the child as well.  The mother's Thiamine stores are often depleted trying to meet the higher demand of a growing fetus.  Thiamine insufficiency can affect babies in utero and after birth (autism, ADHD).  Having babies close together doesn't allow time for the mother to replenish thiamine stores sufficiently.   Thiamine insufficiency can cause migraines, pins and needles (paresthesia), and gastrointestinal Beriberi (gas, bloating, diarrhea or constipation, back pain).   Thiamine deficiency can cause blurry vision, difficulty focusing, and affect the eyes in other ways.  Thiamine deficiency can damage the optic nerves.  I have permanent vision problems.  High histamine levels can make your brain feel like it's on fire or swelling inside your cranium.  High histamine levels can affect behavior and mood.  Histamine is released by Mast Cells as part of the immune system response to gluten.  Mast Cells need Thiamine to regulate histamine release.  Mast Cells without sufficient thiamine release histamine at the slightest provocation.  This shows up as sensitivities to foods, smelly chemicals, plants, and dust mites.  Thiamine and the other B vitamins are needed to lower histamine levels.  Vitamin D is needed to calm the immune system and to regulate our hormones.  Menstrual irregularities can be caused by low Vitamin D.   Celiac Disease is a disease if Malabsorption of Nutrients.  We must take great care to eat a nutritionally dense diet.  Our bodies cannot make vitamins.  We must get them from what we eat.  Supplementation with essential vitamins and minerals is warranted while we are healing and to ensure we don't become deficient over time.  Our bodies will not function properly without essential vitamins and minerals.  Doctors have swept their importance under the rug in favor of a pill that covers the symptoms but doesn't resolve the underlying issue of malnutrition. Do talk to your doctor and dietician about checking for nutritional deficiencies.  Most blood tests for the eight B vitamins do not reflect how much is available or stored inside cells.  Blood tests reflect how much is circulating in the blood stream, the transportation system.  Blood levels can be "normal" while a deficiency exists inside cells where the vitamins are actually used.  The best way to see if you're low in B vitamins is to take a B Complex, and additional Thiamine and look for improvement.   Most vitamin supplements contain Thiamine Mononitrate, which is not easily absorbed nor utilized by the body.  Only thirty percent of thiamine mononitrate listed on the label is absorbed, less is actually utilized.  This is because thiamine mononitrate is shelf stable, it won't breakdown sitting on a shelf in the grocery store.  It's so hard to breakdown, our bodies don't absorb it and can't turn it into a form the body can use.  Take Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) which the body can utilize much better.  (Ask for an Erythrocyte Transketolace Activity test for Thiamine level.  Though not accurate, this test does better picking up on a thiamine deficiency than a blood test.) Are you keeping your babies on a gluten free diet?  This can prevent genetically susceptible children from developing Celiac Disease.   P. S. Interesting Reading  Thiamine deficiency in pregnancy and lactation: implications and present perspectives https://pmc.ncbi.nlm.nih.gov/articles/PMC10158844/ Descriptive spectrum of thiamine deficiency in pregnancy: A potentially preventable condition https://pubmed.ncbi.nlm.nih.gov/37458305/ B vitamins and their combination could reduce migraine headaches: A randomized double-blind controlled trial https://pmc.ncbi.nlm.nih.gov/articles/PMC9860208/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.