Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing And Symptoms


pjr2

Recommended Posts

pjr2 Newbie

I went to my primary physcian with a very itchy rash and was told that is was scabies. I used the medicine and parts felt better and some didn't. It came back a week later. My husband didn't have any rash. I finally went to a dermatolgist and was told it was eczema. The cream helped a little and then got much worse. I went back and he thought I might have DH. Did a biopsy from 2 places. That came back negative. He still thinks I have DH so I started the gluten free diet. My back feels much better and some other areas got better. My rash has never been turned into fluid filled blister. The diet has made my stomach and intestines feel much better. I went to a resturant and had balsamic vinegarette dressing. About an hour later my skin started tingling like when your foot or leg goes to sleep, but not numb. Has anyone else experienced this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiFi Newbie

Hi there,

With regards your rash Dermatitis Herpetiformis, the little bumps don't necessarily have to be fluid filled. On the Open Original Shared Linksite (I'm an Aussie) it says the rash can appear 'hive-like, persisting in one area, or it may look like a pink and scaly dermatitis'. I have a small pink scaly patch on the side of my wrist as well as persistent little red dots/ bumps on one knee cap that sometimes get extremely itchy, but only sporadically. My GP suspected HD so I've just had blood tests for celiac disease. And though I'm not aware of having obvious reactions to wheat or gluten, over the past 3 years I have developed very strong allergic reactions to psyllium, quinoa and oats (even though I've been eating oats for decades). Apparently the protein in oats (avenin) is very similar in structure to the gliadin protein in wheat and there's thoughts now that there may be a subset of celiacs who also react to avenin.

As for the balsamic vinegar, I too have very strong reactions to it. Balsamic vinegar is very high in two natural food chemicals called salicylates and amines and it may be that you're sensitive to either or both of these chemicals. Generally the longer food is stored or left to mature, the greater its amine (and histamine) content and the more problematic it can be for individuals with food sensitivities and intolerance.

This Open Original Shared Link is a great starting point to understanding the different types of food allergies and sensitivities that can can be caused by salicylates, amines and glutamates and the affects they can have.

And if you want to explore some of it further, here's a link to their Open Original Shared Link. You'll also find a lot of information about all of this at Open Original Shared Link.

pjr2 Newbie

Thanks so much. I will take a look at the site you suggested.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.