Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Dye # 40?


Cortneysmibro

Recommended Posts

Cortneysmibro Rookie

I have had a few gluten type reactions lately from drinks that claim to be gluten free. I have compared the ingredients and the only thing I can find that I think would be causing it is Red 40. It was Jose Ceuervo margarita mix, Faygo red pop, and ever fresh cranberry juice. Does anyone know anything about this? I have read conflicting posts about weather or not the dye contains gluten. But either way I am pretty sure this is what is making me puff up like a balloon and get an instant headache and nausea.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Red 40 is gluten-free. It's made from coal tar or petrochemicals. (Eww, gross.) It isn't terribly uncommon to be either sensitive or allergic to it.

Unfortunately a lot of people with celiac disease have a reaction and assume the reaction is to gluten. They hop on this board or on their blog and next thing you know there are crazy rumors about gluten in this, that, or the other thing everywhere.

Cortneysmibro Rookie

Red 40 is gluten-free. It's made from coal tar or petrochemicals. (Eww, gross.) It isn't terribly uncommon to be either sensitive or allergic to it.

Unfortunately a lot of people with celiac disease have a reaction and assume the reaction is to gluten. They hop on this board or on their blog and next thing you know there are crazy rumors about gluten in this, that, or the other thing everywhere.

Yeah, It did not seem that there would be gluten in a dye. But I am very new to this. I keep find myself getting sick from things that are "gluten free". There has to be something else that is setting my body off but I have been having a heck of a time pin pointing it. I know for sure that Gluten makes me sick as a dog. But I keep getting almost the same but milder reactions when I eat and drink certain things that do not have any gluten in it. I was not sure if there where some hidden things or just other foods or additives that can give the same reaction to some people. So far I have a list of foods that do it but I have not been able to pick that ONE thing that is in them to blame. UGH ......

Darn210 Enthusiast

Unfortunately, it may be more than just one thing. Keeping a list is a good idea. Some of those items you may be able to add back later . . . some of those items you may decide that you don't WANT to add back.

Prior to my daughter being diagnosed (and for a while afterwards), she would react to blue dye. Of course being a kid that's what she was attracted to . . . The yogurt that they market to kids comes to mind.

She's able to tolerate it now but we don't go overboard with it. It's amazing how many foods have artificial dyes that you don't even realize . . . Marshmallows? Really?

IrishHeart Veteran

But I am very new to this. I keep find myself getting sick from things that are "gluten free". There has to be something else that is setting my body off but I have been having a heck of a time pin pointing it. I know for sure that Gluten makes me sick as a dog.

I'd like to echo Skylark and Darn's thoughts and add one more:

You are still healing your gut and many foods may still be causing you grief--but it's not necessarily hidden gluten. It takes many people a long time to be able to handle foods with dyes/additives/preservatives (if ever).

I had a heckofa time after first going gluten-free and I seem to react to things like dyes, preservatives, MSG (ugh!) and other "things" they put in foods. I still have to watch what I try to add back in.

Go as clean/whole foods as you can for awhile. Then, try ONE product and see what happens. Otherwise, it is impossible to pinpoint a culprit. (been there/done that! :) )

Best wishes!

Skylark Collaborator

I react to MSG too if there is a lot of it in a food. Natural MSG in things like miso gets me. I also react to tyramine that's in red wine, aged cheese, and chicken livers, and aged/fermented foods. If you suspect food chemicals this info might help. Open Original Shared Link

IrishHeart Veteran

I react to MSG too if there is a lot of it in a food. Natural MSG in things like miso gets me. I also react to tyramine that's in red wine, aged cheese, and chicken livers, and aged/fermented foods. If you suspect food chemicals this info might help. Open Original Shared Link

Skylark, ditto for me, too! red wine, aged cheeses and the lot. I think I told you this---I did the Failsafe diet for a month (ate enough brussels sprouts to last me a ifetime :lol: ) and it really knocked down that "histamine" response in me!!

To the OP--just cut out all those things for a few months and see if you feel better. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Red dye is a huge problem for me. I don't do well with highly processed preservatives - natural or synthetic. I've wondered if its salicylates or something else... but in the end I just avoid them.

BTW don't EVER eat RiceWorks chili chips if you have a problem with dyes. They are yummy but lethal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.