Are We There Yet?

[mushroom]

Before you say there is no soy in your diet, have you considered the following?

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Food and products that contain or often contain soy

Bean sprouts

Bread crumbs, cereals and crackers

Breaded foods

Hydrolyzed plant protein (HPP), hydrolyzed soy protein (HSP) and hydrolyzed vegetable protein (HVP)

Imitation dairy food

Infant formula, follow-up formula, nutrition supplements for toddlers and children

Meal replacements

Meat products with fillers, for example, burgers and prepared ground meat products

Mexican foods, for example, chili, taco fillings and tamales

Miso

Nutrition supplements

Sauces, for example, soy, shoyu, tamari, teriyaki, Worcestershire

Simulated fish and meat products, for example, surimi, imitation bacon bits, vegetarian burgers

Stews, for example, in gravies

Tempeh

Vegetarian dishes

Other possible sources of soy

Baked goods and baking mixes

Beverage mixes, for example, hot chocolate and lemonade

Canned tuna and minced hams, for example, seasoned or mixed with other ingredients for flavour

Chewing gum

Cooking spray, margarine, vegetable shortening and vegetable oil

Dressings, gravies and marinades

Frozen desserts

Lecithin

Milled corn

Meat products with fillers, for example, preprepared hamburger patties, hotdogs and cold cuts

Seafood -based products and fish

Seasoning and spices

Snack foods, for example, soy nuts

Soups, broths, soup mixes and stocks

Soy pasta

Spreads, dips, mayonnaise and peanut butter

Thickening agents

Mono-diglyceride

Monosodium glutamate (MSG) (may contain hydrolyzed protein)

Non-food sources of soy

Cosmetics and soaps

Craft materials

Glycerine

Milk substitutes for young animals

Pet food

Vitamins

I ask this because soy rose up and bit me on the b*tt when I stopped eating gluten. It is particularly prevalent in gluten replacement foods - i.e., every time they take out gluten they seem to put in soy I never actively purchased soy, but there was enough of it just floating around in things like salad dressings, sauces, bar-type snacks, soups, baked goods. It is almost harder to avoid than gluten

Might be worth checking all your labels for these products too.

[WendyLee]

Before you say there is no soy in your diet, have you considered the following?

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Food and products that contain or often contain soy

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Goodness me, it's in a lot of stuff! Will have to check more carefully. The fact to I've been so "off" for so long I'm not eating a varied or complicated menu but will check just the same, thx for that.

Appreciated

Wendy

[WendyLee]

Well back from the Gastro Specialist and great..... now I can add Lactose, Sucrose & Maltose intolerance to the mix. Oh and toss in a major Hiatus Hernia I didn't know about.

The visit cost $100 more than last time, I wonder if he charges by how many complaints he can find?

[JustNana]

Oh Wendy, your story breaks my heart. I am 63. (64 tomorrow haha) and my son was going through a terrible divorce with a 3 year old daughter about 2 years ago. He took it so hard when he learned she was cheating and wound up with migraines and bad depression. He's my baby (though he's 37) and I was a mess. I believe that was my trigger. I have been on Wellbutrin for a long time and thought it just stopped working. Then I started itching, really ITCHING. Digging myself raw...scalp, stomach, arms, legs, back, bottom. Starting getting diarrhea. Reflux. Insomnia. Itching on palms. Hip, knee and shoulder pain that had me tossing and turning all night. Complete disinterest in anything. Fatigue so bad I lived on the couch. When my eyebrows starting falling out quickly I summoned up the strength to go to the Dr. Did I mention that I was also convinced I had early onset dementia? Small town GP. Works 14 hour days, six days a week, much of it pro bono. He ordered a big list of tests and within days he said Celiac, Hashimoto's hypothyroidism and severely deficient in several vitamins and minerals. Sonogram showed nodule on thyroid so that got biopsied. Negative. Dr says that can change. Went gluten free, started on thyroid replacement and many vitamin and mineral supplements. I feel extraordinarily lucky to have such a physician.

After a week or I was less itchy and I think the Dermatitis is about 50% cleared. I no longer have to worry about diarrhea at all. The other stuff is still there but Dr says both the damaged vili and the deficiencies will take months at my age. I am forcing myself to be patient because last nigh I slept 6 hours without waking for more than minutes at a time.

We will get better. I know it. And the amazing people on this site who are feeling well are still so generous with their time to help us!! I cannot imagine having this *%# disease 20 years ago!

Hang in there. Us old chicks gotta stick together. If there is a way to PM I'll find a way to give you my e-mail addy. :-)

After a week or so I was less itchy

[JustNana]

Gilly and Wendy,

You two can really help each other!! We are sooo lucky to have this place.

Wendy, I k ow exactly how you feel having another diagnosis. It happened to me too. I forgot to mention than I have had problems with dairy for a long time, but not bad enough to stop as it doesn't seem to cause damage like gluten. After 6 weeks of being gluten-free I have been able to have cream in coffee, buttermilk, yogurt ( am going to start making my own for more good bug action) and cheese with no gas, paint or other icky stuff! Keep the faith.

Good grief, does that date me or what? Told you I was OLD. Ummm, peace out.

:-D

[WendyLee]

Oh Wendy, your story breaks my heart. I am 63. (64 tomorrow haha) and my son was going through a terrible divorce with a 3 year old daughter about 2 years ago. He took it so hard when he learned she was cheating and wound up with migraines and bad depression. He's my baby (though he's 37) and I was a mess. I believe that was my trigger. I have been on Wellbutrin for a long time and thought it just stopped working. Then I started itching, really ITCHING. Digging myself raw...scalp, stomach, arms, legs, back, bottom. Starting getting diarrhea. Reflux. Insomnia. Itching on palms. Hip, knee and shoulder pain that had me tossing and turning all night. Complete disinterest in anything. Fatigue so bad I lived on the couch. When my eyebrows starting falling out quickly I summoned up the strength to go to the Dr. Did I mention that I was also convinced I had early onset dementia? Small town GP. Works 14 hour days, six days a week, much of it pro bono. He ordered a big list of tests and within days he said Celiac, Hashimoto's hypothyroidism and severely deficient in several vitamins and minerals. Sonogram showed nodule on thyroid so that got biopsied. Negative. Dr says that can change. Went gluten free, started on thyroid replacement and many vitamin and mineral supplements. I feel extraordinarily lucky to have such a physician.

After a week or I was less itchy and I think the Dermatitis is about 50% cleared. I no longer have to worry about diarrhea at all. The other stuff is still there but Dr says both the damaged vili and the deficiencies will take months at my age. I am forcing myself to be patient because last nigh I slept 6 hours without waking for more than minutes at a time.

We will get better. I know it. And the amazing people on this site who are feeling well are still so generous with their time to help us!! I cannot imagine having this *%# disease 20 years ago!

Hang in there. Us old chicks gotta stick together. If there is a way to PM I'll find a way to give you my e-mail addy. :-)

After a week or so I was less itchy

I can't believe the harrowing stories I'm being told and reading about. How we ever survive is amazing. Children of the Baby Boomers are doing it tough in relationships and their parents are picking up the pieces and paying for it with their health. I try not to think what it has done to my kids health for the future. I hope your son is finding some peace. The itching must of been excruciating! Would of driven me insane. I was just so very fatigued and nauseous, with feelings of anxiety most of the time. As my new doctor said, it's the constant fatigue that gives it away, no one should be fatigued for so long without a physical reason. In your case it came to the surface with the dermatitis.

You thought your AD's had stopped working as well, I wonder how many others out there on AD's have the same trouble and spend months/years on the merry-go-round of pills trying to find one that works but it never will because they are Coeliac. We've been lucky to be diagnosed sooner rather than later, unlike a lot of ppl who've struggled for years with ill health and no one listening.

I'm at the end of week 3 of GFD and feeling better than the first week. I cried every morning the first week, felt so wretched. If every week progresses like they have been then I can consider myself lucky. I guess we're both looking forward to that day when we can say we feel 'normal'

So hope today is a better one for you. Happy Easter.

Wendy